He Helps People with Parkinson’s Disease Live Healthier, More Confident Lives
Chad Moir calls his mother his greatest teacher.
“She really, truly lived by the mantra that you never look down on someone, and that you always stick your hand out to help them,” he said. “I’ve been lucky enough to be put in a position where I can help people while honoring my mother, and I can do it in a fun and exciting way.”
He’s referring to DopaFit Parkinson’s Movement Center, the business he started six years ago as the culmination of a tragic event — the premature passing of his greatest teacher, who was stricken with an aggressive form of Parkinson’s and was gone five years after her diagnosis.
Moir took his mother’s death hard. “I fell into a bit of a depression,” he told BusinessWest when we first spoke with him two years ago. “I hated Parkinson’s disease and everything to do with it. I didn’t even want to hear the word ‘Parkinson’s.’ But one day, something clicked, and I decided I was going to use my resentment toward Parkinson’s in a positive way and start to fight back.”
Today, DopaFit members, all of whom are at various stages of the disease, engage in numerous forms of exercise, from cardio work to yoga; from spinning to punching bags, and much more. On one level, activities are designed to help Parkinson’s patients live a more active life by improving their mobility, gait, balance, and motor skills.
“It has been proven through science that, when you do vigorous exercise while living with Parkinson’s disease, your symptoms won’t progress as quickly, and sometimes they are halted for a while as well. We have seen people whose symptoms have regressed.”
But research has shown, Moir said, that it does more than that: exercise releases the neurotransmitter dopamine into the brain, slowing the progress of Parkinson’s symptoms.
“Exercise is the only proven method to slow down the progression of Parkinson’s disease,” he told BusinessWest. “It has been proven through science that, when you do vigorous exercise while living with Parkinson’s disease, your symptoms won’t progress as quickly, and sometimes they are halted for a while as well. We have seen people whose symptoms have regressed. The goal is for people not to progress, or progress slowly, but if we can reverse some of those symptoms, that’s a big win.”
Members are typically referred to Moir from their movement-disorder specialist, neurologist, or physical therapist. “A lot of times, for our older members, it can be one of their kids who finds us; their parent was diagnosed with Parkinson’s disease, they want to do anything they can to help, and they come across us online.”
Whatever the case, Moir and his team will meet with the individual and often a family member and discuss symptoms, their story, and how DopaFit might help.
“We have about a 99% success rate of people who try it and stay,” he said. But getting in the door — or online, as the case may be in this challenging time — is only the beginning.
Recognizing a Need
Moir’s own beginnings in a career focused on this deadly disease was a half-marathon in New York City to raise some money for the Parkinson’s Disease Foundation. He ended up collecting about $6,000, and started to think about what else he could do for the Parkinson’s community.
While attending classes at American International College, he saw a need for a Parkinson’s exercise group in the area. “There is a lack of Parkinson’s services in general. I really, truly believed that if I built it, they would come. That was our motto, and I stuck to that motto through the hard times, and it certainly has brought us here. We thought there was a need, and we’ve proven there was a need.”
He started working with individuals in their homes, then opened the first DopaFit gym in Feeding Hills in 2015. He moved to the Eastworks building in Easthampton a year later, and then to the current location, at the Red Rock Plaza in Southampton, in 2018 — a site with more space, ample parking, and a handicapped-accessible entrance. He also launched a second, smaller DopaFit location in West Boylston.
When they first arrive at DopaFit, members undergo an assessment of where they are physically and where they would like to be in six months. Then they’re assigned to one of two exercise groups. One includes people who don’t need assistance getting in and out of chairs and can move about freely with no assistive equipment, like canes, walkers, or wheelchairs. The second group requires a little more assistance.
“With the group-exercise portion, that’s where we have to be very imaginative and come up with fun and different ways to work with you because there are different levels of disease progression,” he explained.
Programming has continued to expand. “Our goal is to provide every non-pharmalogical therapy that you can in one place for people with Parkinson’s disease,” Moir said. “So we have yoga, tai chi, our exercise classes and movement program, and the Art Cart.”
That latter piece, a nationally recognized creativity and movement program for individuals with Parkinson’s disease, was launched by Moir’s wife, Saba Shahid, who nominated him for the Difference Makers award.
“Chad is truly the definition of a Difference Maker,” Shahid wrote. “He has provided countless hours of free educational services for patients and assisted-living and nursing centers that provide support to people with Parkinson’s, and has spoken at a variety of seminars with the simple goal of spreading awareness about Parkinson’s and the importance of exercising for disease management. His dedication and love for others is seen in his daily efforts.”
Moir is always open to new modalities as well, such as a recent addition, ‘laughter yoga.’ A member brought the idea to him, and it turned out one of the practice’s leading instructors lives in East Longmeadow, and was happy to teach a class.
“Everybody loved it,” Moir said. “People said it made a difference that day, and in the days after, to be able to laugh again.”
Indeed, the past year has brought unforeseen stress to the lives of everyone, including business owners like Moir and the folks with Parkinson’s disease he serves.
“We had been growing exponentially prior to the pandemic; we had a little over 100 members, and we’d see about 80 of those members every week, at different sessions,” he recalled. And when COVID-19 shut down the economy, including DopaFit’s facilities, Moir had to pivot — fast.
“Yes, we do exercise, but we also educate, and then we empower. So we had to move the education online as well. Even though we couldn’t be in the space, we were able to support them physically and mentally.”
He quickly moved to an online model, starting with prerecorded exercise videos, daily e-mails, and phone calls. Zoom classes followed, which were more engaging and interactive than the videos, and trainers could work with members to make sure they were doing everything correctly.
“We did our best to keep our members engaged,” he added, through efforts like webinars with movement-disorder specialists to make sure members stayed current with the latest information. “Yes, we do exercise, but we also educate, and then we empower. So we had to move the education online as well. Even though we couldn’t be in the space, we were able to support them physically and mentally.”
While the West Boylston facility remains shuttered and programs are run completely virtually, DopaFit’s Easthampton site opened about four months ago to small, scaled-down classes — two groups of no more than four people each — who work out separated by distance and dividers, and all surfaces and equipment are sanitized between each use.
“People who come say they feel 10 times safer here than they do going to the grocery store,” Moir said.
Through it all, he had his worries about surviving such a difficult time.
“The rent didn’t stop. The space was closed, but the bills were still here. But we’re blessed with a tremendous community,” he said, noting that local groups ran fundraisers to support DopaFit, and he was able to keep the business in operation and pay employees through the pandemic. “You truly see the impact when it’s taken away. Even people who don’t come here but know what we do wanted this service to stay available to the people in this community.”
Through it all — the expanded membership, and then the obstacles posed by COVID-19 — DopaFit’s outreach in the community has only grown, Moir said. “We’ve made some great connections with the local physical therapists and neurologists in the area, which has helped tremendously. We are now well-known as a very viable and necessary option for someone with Parkinson’s disease.
“When it comes to being innovative and trying new things, that is something we will always do,” he added. “The world is ever-changing, and there are so many great people who do so many great things that can help someone with Parkinson’s disease.”
With that in mind, the next goal is a larger, standalone building that offers not just a big exercise room, but plenty of rooms for other services, from education to support groups to social work. In short, Moir wants to take what he’s learned in the past six years and build a truly one-stop destination for people with Parkinson’s disease to access the resources they need.
Some things he’s learned have been unexpected — like mastering Zoom.
“I helped so many people navigate Zoom, many of them older people,” he said. “I figure, if this doesn’t work out, I can go to Zoom and work for their technical support. I’ve got that down.”
Fortunately for so many, his day job seems to be working out just fine, despite the recent challenges. And he’s grateful his members have a place where they can come and, well, just be themselves.
“It pains me to hear someone stopped talking to their friends because ‘I don’t want them to pity me.’ Or, ‘we used to go out to dinner every Thursday, but I stopped going because I shake too much and don’t want people looking at me.’
“But after spending time here with other people with Parkinson’s disease, they come back and say, ‘you know what? I felt confident to go out and have dinner with my friends, and I felt better than I’ve felt in 10 years,’” he said. “So the exercise is a beneficial part of this; it can physically make someone better. But being able to feel better and be more confident gives them so much empowerment in other ways.”
That’s yet another difference Moir wants to make in people’s lives, as he continues to honor the legacy of one great teacher.
“Knowing that I can make a difference in someone’s life, just a little bit of difference, means the world to me,” he said. “It’s the fuel that keeps me going through the day. And that we’ve been able to figure out how to do it on a bigger scale is just very exciting.”
Joseph Bednar can be reached at [email protected]