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New Treatment Programs Developed to Combat Eating Disorders

By Dr. BARRY SARVET

It practically goes without saying that human beings need to eat.
Eating is not only necessary for survival, but what we eat and how we eat is often a fundamental aspect of one’s personal and cultural identity. For the newborn infant, feeding serves as one of the primary foundations of the relationship with his or her parent or caregiver, and a positive feeding experience in infancy and early childhood is vital to healthy physical and psychological development.
Continuing throughout the lifespan, eating together with family, friends, and co-workers strengthens relationships and builds community. Some even consider eating to be one of the most pleasurable activities of life.
Although difficult for many to understand, there are those among us for whom eating is associated with a terrible inner struggle. Individuals with anorexia believe themselves to be overweight and deny themselves food even when they are literally dying of starvation. Others diagnosed with bulimia are trapped in endless cycles of uncontrollable eating alternating with dangerous efforts to purge themselves of the food they’ve eaten. According to the National Institute of Mental Health, an estimated 6% of the adult population in the U.S. suffers from anorexia, 1% from bulimia, and 2.8% from a binge-eating disorder. Women are much more likely than males to develop an eating disorder and are three times as likely to experience anorexia and bulimia.
For many patients with eating disorders, the onset of symptoms occurs during adolescence. Without treatment, patients may develop chronic symptoms that cause significant medical and psychological disability throughout their adult lives. Some experience a particularly malignant course that may result in death if left unchecked.
Although numerous physiological, psychological, and environmental factors are thought to be associated with the development of eating disorders, it is very common for these disorders to be triggered by intensive weight- management regimens, including severe dietary restriction and rigorous exercise regimens. It is thought that the experience of starvation caused by intensive dieting may trigger physiological changes in the brain that contribute to some of the highly compulsive patterns of behavior, irrational thoughts, and distorted perceptions of the body associated with anorexia.
Many experts believe that another important factor contributing to the relatively high prevalence of eating disorders is the influence of popular culture and advertising media in contemporary society. Advertising and entertainment media seem to promote superficial and unrealistic norms of beauty and associate unnatural thinness with glamour and success. At the very same time, young people are encouraged by the same media to instantly gratify their desires and purchase and consume high-calorie fast foods and snacks.
There are numerous approaches to the treatment of anorexia and bulimia. One of the first priorities in the care of patients with eating disorders is a careful medical assessment. The primary-care provider is an important starting point for this assessment, although, depending upon the degree of starvation, patients may need to be monitored in the hospital setting in order for their weight to be safely restored. Beyond the immediate safety of the patient, medical stabilization and weight restoration is a necessary part of the psychological recovery of the patient. Patients with severe metabolic abnormalities associated with the state of starvation are usually not able to benefit from psychotherapy.
As soon as patients with eating disorders are medically stable, psychotherapy should be provided. In the Greater Springfield area, there are numerous psychotherapists who are experienced in the treatment of patients with eating disorders. Therapy must be customized to the needs of the patient and should involve the family whenever possible. Some approaches to therapy focus on helping the patient understand and fight against the irrational thoughts and behaviors associated with the eating disorder. Others focus on improvement in self-esteem and coping with negative emotions and conflictual relationships.
A particularly promising form of treatment for adolescent patients is family-based therapy for eating disorders, also known as the Maudsley approach. In this form of treatment, parents initially receive a great deal of support and coaching in order to leverage the power of their parental relationship in overcoming the child’s resistance to eating. As treatment progresses, the therapy shifts toward gradually promoting the teenager’s independence and autonomy in the family. Although this type of therapy is not suitable for all patients, the outpatient Child Behavioral Health Associates at Baystate Medical Center has seen excellent results with the use of family-based therapy.
Eating disorders are notoriously challenging conditions to treat. In the throes of their illness, patients often are in a battle for control with doctors, therapists, and loved ones who are trying to get them to change. Researchers are constantly looking for new therapeutic treatments that could help motivate patients to get treatment and develop a more accepting and comfortable relationship with their bodies.
There have been preliminary studies suggesting that the practice of yoga may have such an impact, and may therefore be a valuable part of the treatment plan. At Baystate, we are conducting a research study investigating the impact of a 12-week program of gentle yoga practice on some of the core symptoms of eating disorders. The study is supported through the generosity of the Calabrese family, who established the Lisa’s Light of Hope Fund at the Baystate Health Foundation in memory of their beloved daughter Lisa Calabrese, whose life was tragically lost after a long battle with an eating disorder.
The program, designed for teenage girls and young women ages 16 to 21 who have been diagnosed with an eating disorder, meets twice weekly at Yoga Sanctuary in Northampton. Sessions are conducted by a certified yoga instructor in collaboration with a clinical psychologist, and include gentle yoga practice along with brief group discussions. Participants are asked to complete questionnaires before and after the program to assess the severity of symptoms of their eating disorder and other associated symptoms. Those interested in participating in the program, or learning more about it, can contact Jennifer McCaffrey at (413) 794-6628.
For more information about research at Baystate Medical Center, visit baystatehealth.org/research, and for more information about Baystate Children’s Hospital, visit baystatehealth.org/bch.

Dr. Barry Sarvet is vice chair of the Department of Psychiatry for Baystate Health, and chief of Child and Adolescent Psychiatry at Baystate Medical Center.

Health Care Sections
The Obesity Epidemic Broadens the Role of Today’s Pharmacists

Melissa Mattison

Melissa Mattison, clinical assistant professor at the Western New England University College of Pharmacy.

In June, the American Medical Assoc. (AMA) made official what all those in healthcare already knew and understood — that obesity wasn’t simply a problem, but a disease, and one that reached epidemic proportions in this country.
The motivation behind the declaration was to advance treatment and prevention of obesity, one of the leading causes of diabetes, said Ardis Dee Haven, president of the AMA, in remarks made in June. “This issues a call for a paradigm shift in the way the medical community tackles this complicated issue so that we can reduce the number of Americans suffering from the effects of heart disease, diabetes, disability, and other potentially life-changing health conditions.”
And perhaps nowhere is this shift being seen and felt more than in the realm of pharmacology, said Melissa Mattison, clinical assistant professor at the Western New England University College of Pharmacy, who also spent 18 years as a pharmacist at Walgreens.
Indeed, the emergence of obesity as a major issue in healthcare — and the many health problems it leads to — has been a huge factor in an ongoing evolution in the role pharmacists play, she told BusinessWest.
“Diabetes is definitely an epidemic,” she explained. “As clinicians, we need to educate patients that obesity, which can lead to diabetes, is a preventable disease and that there are many lifestyle modifications that a patient can embrace.”
Elaborating, she said that obesity and the problems that stem from it have impacted myriad aspects of pharmacology — from the products sold and medications dispensed to how diabetes-related items are displayed in the store.
But perhaps the biggest change has come in the relationship between the patient and the pharmacist, she went on. While there has always been an educational component to this profession — it’s never been about simply putting pills in bottles — that aspect of the job description has become far more prominent in recent years.
And obesity and its correlation to diabetes and other health problems is a big reason why.
“The doctor may see the diabetes patient once a month or once every three months, but the pharmacist sees that patient almost every week,” said Mattison, noting that such patients generally take 10 to 12 medications. “And if you see me that many times a week, we start to form a close relationship.”
Skip Matthews agreed. He’s president of the independent and locally owned Lewis & Clark Drug and Medical Supply. He’s not a pharmacist, but manages his family’s 48-year-old business, which includes two pharamacies and two medical-equipment stores in the Springfield area.
“We’ve always seen patients with diabetes, but the demand has really grown,” he explained, adding that this surge in volume affects a host of decisions he makes regarding his stores.
“Our pharmacies are geared toward those with multiple conditions, maybe a little more than a chain pharmacy,” he continued. “And we’ll see diabetes, hypertension, cholesterol, and anything to do with the heart — and every one of those issues is directly or indirectly related to obesity.”
For this issue, BusinessWest talked with area experts about how what has become the nation’s most pressing health problem has in many ways changed the job description for pharmacists and made them more prominent players in the delivery of healthcare.

It’s Weighing on Them
When it comes to obesity, diabetes, and the collective impact on the role pharmacists play, the numbers tell the story — or a big part of it, anyway.
The most recent statistics from the Centers for Disease Control and Prevention show that more than 23 million Americans, or close to 8% of the population, have diabetes, and more than one-third of the adults in this country (35.7%) are clinically obese. These numbers have doubled in just the past two decades, and current projections show that the number of people with diabetes in the U.S. will rise to 48 million by 2050.
And this dangerous trend is quite visible in Western Mass. and especially its largest city. According to the Mass. Behaviorial Risk Factor Surveillance System, Springfield has the highest percentage of adults diagnosed with diabetes in the Commonwealth (13.1%) and the highest percentage of adults being told they have pre-diabetes (10.2%).
The impact of all this on pharmacies is made clear by statistics compiled by the Pharmacy Times which show that, while the average consumer spends $300 annually on retail pharmacy purchases, a consumer diagnosed with diabetes will spend $2,500 on average each year in medication, insulin, blood-glucose-monitoring products, and other over-the-counter supplies.
These alarming statistics help explain everything from the rising numbers of health screenings in pharmacies (especially the larger chains) to the fact that many different types of medical equipment have been altered and recalibrated to reflect a much heavier America.
“It really sticks out on the medical-equipment side,” said Matthews, noting that the walkers, canes, hospital beds, bath-transfer seats and commodes that his stores sell, which once were ‘200-pound rated’ (to support patients up to that weight), now come rated at 250, 300, or 350 and higher for the morbidly obese. “The manufacturers have changed what they make, and we’ve had to change our product mix accordingly.”
But perhaps the biggest change that can be traced to those statistics has been the emergence of the pharmacist as educator and counselor, said Mattison.
Elaborating, she said that, in many respects, the pharmacist acts as a liaison between the patient and the primary-care physician.
“In pharmacy school, our focus is not just on the disease state and what the medications are used for,” she noted. “Now, the pharmacist has the responsibility, and the privilege, to spend time with the patient and say, ‘look, Mrs. Jones, we did your screening, and your body-mass index is in the obesity range; what do you know about that? Can I talk to you about that?’”
Matthews agreed.
“There is a greater recognition of the role of pharmacists, even by insurance companies and doctors, in just the past five years, and that wasn’t always the case,” he told BusinessWest. “That’s because the pharmacist brings a lot of value, due to his or her position in healthcare between the doctor and the patient.”

Dispensing Information

This larger, more prominent role takes many forms, said those we spoke with, who noted, for starters, that pharmacists are doing much more, historically speaking, to hold patients accountable for adhering to their medication and recommended lifestyle changes.
“Typically, diabetic patient-adherence rates are somewhere around 50%, so they don’t take their medication every day, and for numerous reasons,” Mattison told BusinessWest. “Adherence is a big push now with pharmacist intervention.”
There’s also that educational component, she went on, adding quickly that, while pharmacists have always welcomed and answered questions, they’re doing much more of that today.
“Now, they [pharmacists] are on the ground floor, and many of the new pharmacists are out on the floor with an iPad and helping customers,” she explained. “They are the first person that the patient sees [after a doctor’s visit], and they can be a continuing point of contact.”
This ongoing evolution in the pharmacist’s role brings with it both opportunities and challenges, said Matthews and Mattison.
In that first category, they place the prospects for growth that come with quality customer service, which takes on new meaning in the expanded role. In other words, pharmacies and individual pharmacists can stand out as a result of how well they accept — and carry out — their new responsibilities.
Mattison added that pharmacies have an advantage over other retail outlets in that they have the opportunity to sell the self-management items diabetic patients need, and also the experience and knowledge needed to offer positive medical support. For this reason, retail pharmacists may choose to place their diabetes-care display near the pharmacist’s counter, or place weight-control and nutritional foods, vitamins, and dietary supplements near the diabetes-care section. The marketing-savvy pharmacists will offer more and more product demonstrations, educational sessions, nutritional advice, blood-pressure screenings, coupons, and store sales.
As for challenges, perhaps the biggest stems from the fact that, in simple terms, pharmacists are not paid to dispense information and be that liaison between patient and physician, said Mattison, adding that doing so takes time, which in this business (or any other, for that matter) is money.
“The expanding role of the pharmacist now involves much more than counting pills,” she explained. “But the problem becomes, who’s going to pay for it, or make it reimbursable, and create a profitable model for the pharmacy?”
Another challenge, Mattison continued, stems from the fact that this broader, pharmacist-as-educator role requires a skill set that for many must be acquired.
And the university is responding accordingly, she said, adding that, in addition to a year-long class focused on the business skills needed for setting up and then operating a successful pharmacy, the school also includes a customer-service component within its healthcare communications class.
It teaches students how to talk compassionately with patients, adherence to a doctor’s plan, and how to navigate customers’ financial, socio-economic, and language issues.
One of the more hands-on aspects of healthcare communications is the process of physically putting the student in the patient’s position, she noted, by making them wear heavy gloves and macular-degeneration goggles that mimic deteriorating eyesight. They’re then asked to read a prescription or open a bottle of pills.
“And they find they can’t do it,” she went on. “So now this 22-year old student gets the perspective of a 78-year old patient, and it teaches them empathy.”

Counting on Them
Empathy is just one of many skills pharmacists now need to do their jobs effectively.
Indeed, where once being able to count was the most visible skill set, now, those in this profession must be able to listen, consult, and help lead their customers to healthier lifestyes.
The epidemic of obesity has much to do with this phenomenon, and all indications are that it will continue to be a large problem — in every sense of that phrase — for a long time to come.

Elizabeth Taras can be reached at [email protected]

Health Care Sections
Despite Controversies, Vaccines Remain a Critical Line of Defense

Dr. Stephanie Carlin

Dr. Stephanie Carlin says a belief that vaccines cause autism persists in some pockets of the community.

It’s like the end of a horror movie, when viewers think the villain is dead – only to see him rise up one last time.
Meet the villain known as measles. Due largely to an inoculation developed in the 1960s – now commonly administered to young children along with mumps and rubella vaccines in a combined vaccine known as MMR — the U.S. and the United Kingdom had both categorized measles as effectively ‘eliminated’ by the turn of the millennium.
That’s not the case anymore. Child deaths from measles worldwide fell 71% from 2000 to 2011, according to the Measles & Rubella Initiative, a partnership of global-health groups.
Most of that improvement has taken place in developing countries. But cases are rising in the U.S. and especially Europe. The 117 U.S. cases reported in the first half of 2013 alone are up from 54 in all of 2012. Meanwhile, England reported 1,168 cases in 2013 through May, up 64% from the same time a year earlier. The culprit, public-health groups say, is an increased refusal by many parents to have their children vaccinated, citing safety fears, and particularly a belief that vaccinations can cause autism.
“Even though it’s been disproven over and over again on a scientific level, we definitely have that myth circulating in the community,” said Dr. Stephanie Carlin, a pediatrician at High Street Health Center, a Baystate Health practice in Springfield. She said some parents worry about mercury used in the vaccine preservative, which today has been eliminated from early-childhood vaccines like the MMR.
“We also try to educate about the nature of autism, that it tends to be diagnosed around the same time we’re given vaccines. That’s why there was this connection made between the MMR vaccine and autism,” she explained. “But autism is multi-factoral. We think there’s a strong genetic component, and we try to broaden parents’ understanding of autism as a disease that’s not connected to a vaccine.”
What’s happening in Wales is a strong argument for vaccines. Anti-vaccination sentiment ran particularly strong there in the late 1990s after a now-discredited study by Dr. Andrew Wakefield (more on that later). A measles outbreak infected 1,219 people in southwest Wales between November 2012 and July 2013, compared with 105 cases in all of Wales in 2011. Many victims were teenagers whose parents refused vaccines for their infant children.
“Despite the fact that it’s one of the greatest health measures ever invented by man or woman, there seems to still be a small residue of humanity that objects to the very idea of immunization,” Dr. Dai Lloyd, a Welsh physician who treated many of the recent measles cases, told the Wall Street Journal. “If you go around the cemetery, you can see the historical evidence of childhood slaughter from pre-immunization days.”

Different Perspective

Part of the problem, Carlin told BusinessWest, is precisely that today’s young parents didn’t grow up surrounded by that carnage, so they don’t take seriously the potential damage once-common childhood diseases can cause.
“By the age of 2, you could potentially prevent 14 serious diseases in children, which is incredible,” she said. “But parents today haven’t seen the devastating effects of these diseases because we don’t see them anymore. Well, some we do; although we vaccinate for whooping cough, chicken pox, and and measles, outbreaks could rise up again if we didn’t.”
What parents are seeing today, however, is a drastic uptick in autism-spectrum diagnoses.
Enter Wakefield, who first suggested a vaccine-autism link in 1997 when he was a researcher at London’s Royal Free Hospital.
Wakefield was the lead author of a 1998 study, published in the Lancet, which reported on 12 children who allegedly developed gastrointestinal problems and developmental disorders, including autism bowel disorders, after being vaccinated. Alleging a possible connection with the MMR, he publicly advocated for, at the very least, separating the components of the injections by a year or more.
However, the section of the study dealing with an autism link was subsequently retracted by 10 of the paper’s 13 authors. In 2004, following an investigative report by journalist Brian Deer — claiming that children may have been subjected to unnecessary lumbar punctures and colon biopsies, including one colonoscopy that caused the child life-threatening perforations of the bowel — the British General Medical Council (GMC) launched an inquiry into allegations of serious professional misconduct against Wakefield and two former colleagues. The GMC also accused Wakefield of suppressing and falsifying data.
In 2009, an investigation by London’s Sunday Times determined that Wakefield had “changed and misreported results in his research, creating the appearance of a possible link with autism,” citing evidence obtained by the newspaper from medical records and interviews with witnesses. The newspaper also reported that the rates of inoculation in the U.K. fell from 92% to below 80% after the publication of Wakefield’s study, and that confirmed cases of measles in England and Wales rose from 56 in 1998 to 1,348 in 2008, with two child fatalities.
In 2010, the Lancet formally retracted Wakefield’s 1998 paper, and the GMC revoked his license to practice medicine in the U.K. He now practices in the U.S., where a significant number of adherents, many of them parents of autistic children, continue to claim a link between vaccinations and autism.
Dan Olmsted, a blogger with the anti-vaccination website Age of Autism, is one strong voice in the movement (whose most noted celebrity backer has been Jenny McCarthy, who claims that vaccines caused her son’s autism). It’s a varied community — some adherents want mercury out of all vaccines (it’s still used in flu vaccine), others want the MMR vaccine components separated, and others question the necessity of giving young children so many vaccines — but a belief in the autism link is largely common ground.
“One thing I do know for sure,” Olmsted writes, “is that the autism epidemic reflects a fundamental betrayal of American families. Doctors and journalists and judges and scientists, among many others, have failed in their duty to listen to the real stories of real people, real families, and instead have thrown in their lot with the bigs — big medicine, big pharma, big media, big government, big money — and left families to fend for themselves.”
Notably, however, the major advocacy organization Autism Speaks is forcefully on record that studies examining possible links between vaccinations and a rise in autism have not found a link between the two.
“It remains possible that, in rare cases, immunization may trigger the onset of autism symptoms in a child with an underlying medical or genetic condition,” the organization notes, explaining that it is funding studies on the underlying biology of autism, including studies to better understand medical and genetic conditions associated with autism – as well as research on associations between autism and a wide range of non-genetic, environmental, factors, including vaccination history.
In the meantime, “we strongly encourage parents to have their children vaccinated for protection against serious disease. We recognize that some parents still have concerns about vaccines, particularly if they have a child or relative with autism. We urge them to find a health practitioner who will consider their concerns and help them ensure the well-being of their child. Establishing open communication and trust with a physician who understands each child and family is the best strategy for keeping children healthy.”

Fighting Back

However, measles outbreaks continue to pop up occasionally, including the reported infection of at least 15 people in Texas affiliated with a megachurch whose leader, Kenneth Copeland, advocates against vaccines; 12 of those people were not vaccinated as children.
James Goodson, the lead measles expert at the U.S. Centers for Disease Control and Prevention, calls the disease “the canary in the coal mine,” telling the Wall Street Journal that people who refuse one vaccine may be rejecting others as well, setting communities up for outbreaks of other dangerous diseases that are slower to propagate, such as diphtheria and whooping cough.
“The really important concept is that, by vaccinating your child, you’re protecting your community,” Carlin told BusinessWest. “You’re not just making decisions for your kid. If your kid didn’t get vaccinated and gets chicken pox and is around a 3-month-old baby who has not been vaccinated yet, he can give that 3-month-old chicken pox, which can be devastating, depending on the severity of the illness. This is a public-health issue.”
Before 1963, the U.S. saw up to 4 million measles cases annually — a disease that kills about 1 in 1,000 sufferers and can pose respiratory complications, hospitalizations, and seizures for others. Carlin said it’s not an environment the healthcare industry wants to see re-emerge, even in small pockets.
“A lot of parents are asking to separate the vaccines instead of giving them so many in one day — spread them out a month at a time, that kind of thing,” she said. “We’re trying to discourage that as well; if they’re not following the schedule recommended, it’s possible they could be delaying the immune response and not protecting their children as well as they should be protected.”
As for those who question the effect of the antigens in vaccines — substances in vaccines that cause the body to produce antibodies, proteins that help fight off infections — vaccination adherents note that the body is exposed to antigens all the time in the form of bacteria and viruses.
“We try to teach them they’re not overloading their immune system by giving them the vaccines scheduled for that day,” Carlin said. “Our immune system is exposed to millions of antigens on a daily basis, and this very small exposure to vaccines is so little compared to what the daily exposure is. You’re not overloading their system by vaccinating.”
She concedes that the vaccination schedule has expanded over the years, with inoculations required at various stages of life, from infancy to grade school, middle school, and even college.
“Every year it seems to be changing. The long and short of it is, pediatricians view vaccinations as one of the best things you can do for the long-term health of your children — not only to protect them against potentially serious diseases, but also to protect their classmates, family members, and the community.”

Joseph Bednar can be reached at [email protected]

Health Care Sections
Take Steps Now to Keep the Court out of Your Personal Decisions

Gina Barry

By Gina M. Barry, Esq.

If you were to become incapable of making your medical and financial decisions, do you know who would handle your affairs? Failing to plan for incapacity may mean becoming subject to guardianship and/or conservatorship proceedings in the probate court.
Ideally, you have executed formal legal documents naming someone to make those decisions for you, but many people remain unaware of the consequences of failing to establish a plan for incapacity as well as the steps to take to avoid having the court involved in their personal decisions.
If you were to become unable to make your decisions, whether due to mental illness or physical incapacity, and you have not executed a durable power of attorney and healthcare proxy, it would be necessary to petition the court in order to have a guardian and/or conservator appointed to make your decisions. A guardian is appointed to make personal and medical decisions, while a conservator is appointed to make financial decisions. In some cases, only a guardian or a conservator is needed, but often both must be appointed. While a person under guardianship is deemed ‘incapacitated’ and a person under conservatorship is deemed ‘protected,’ for clarity in this article, all will be referred to as incapacitated.
The guardianship and/or conservatorship process begins with the completion of a lengthy petition that details the incapacitated person’s biographical and personal information, as well as a medical certificate, which must be completed by qualified medical personnel, setting forth the medical basis for the individual’s inability to handle their own affairs. Since the incapacitated individual has never set forth their wishes as to whom they would want to make decisions for them, the person seeking guardianship or conservatorship over the incapacitated person may be someone other than whom the incapacitated person would have selected.
Once the petition is filed, notice must be given to all interested parties, including the incapacitated person, their heirs-at-law, and, in some cases, state agencies. It is also often necessary to publish a notice in the newspaper that the petition has been filed. This notice informs the interested parties of their ability to object to the petition if desired. If an objection is filed, a trial may be needed in order to determine whether a guardian and/or conservator is necessary, as well as to determine who should be appointed.
After the date for objections has passed, and assuming there is no objection, the decree will issue, appointing the guardian and/or conservator. Having a guardian or conservator appointed takes approximately two months, even if no objections are filed. If an objection is filed that cannot be resolved without resorting to a trial, resolution could take many months. Fortunately, a temporary guardian and/or conservator can be appointed while the process is pending.
Even if the court process proceeds without objection, this is fraught with emotion and a loss of privacy. The majority of the papers filed with the court, as well as any hearings, are open to the public. Evidence is presented regarding the nature of the incapacity, and matters very personal to the incapacitated individual are discussed, including their financial situation. The court process is also expensive. In addition to filing fees for most cases, there will also be costs associated with providing proper notice, such as certified mailing and publication expenses. Generally, there is at least one attorney involved, although many times, there are more.
After appointment, a guardian or conservator must file an initial care plan and an additional care plan each year thereafter, detailing their ongoing service as guardian or conservator and their plans for the upcoming year. A conservator must also file an inventory of all the real and personal property that they are managing on behalf of the incapacitated person and must render an annual account detailing all income and expenses.

Avoiding the Court Process
Fortunately, with proper planning, it is possible to avoid the court process. If a durable power of attorney and healthcare proxy have been signed, the individual has named someone who can make all financial and/or medical decisions on their behalf. A durable power of attorney is a legal document that names someone to make financial decisions in the event of incapacity. A healthcare proxy is a legal document that names someone to make medical decisions in the event of incapacity. You must be competent to execute these documents, and thereafter, upon incapacity, there is no need for a guardian or conservator because individuals are already in place to make those decisions. Having both a durable power of attorney and a healthcare proxy is absolutely crucial to avoiding guardianship.
While you are competent, you have the ability to name the people that you would want to make decisions for you if you could not make them for yourself. By doing so, you will eliminate the loss of privacy, money, and time that is associated with the guardianship and conservatorship process. Establish proper documents now, and keep the court out of your personal decisions.

Gina M. Barry is a partner with the regional law firm of Bacon Wilson, P.C., Attorneys at Law. She is a member of the National Association of Elder Law Attorneys, the Estate Planning Council, and the Western Mass. Elder Care Professionals Association. She concentrates her practice in the areas of estate and asset protection planning, probate administration and litigation, guardianships, conservatorships and residential real estate; (413) 781-0560; [email protected].

Health Care Sections
Spiros Hatiras Set to Take the Reins at Holyoke Medical Center

Spiros Hatiras

Spiros Hatiras is slated to take the helm at Holyoke Medical Center in September, succeeding long-time president and CEO Hank Porten.

Spiros Hatiras likened it to being homesick.

That’s how he chose to describe his mindset during what would become the latter stages of his tenure as chief executive officer of NIT Health in New York, a health-informatics company that specializes in the implementation of electronic medical records for hospitals and healthcare systems.

He enjoyed the work and found it rewarding in some respects, but the more he was in that position, the more he realized just how much he missed what he would later describe as his passion — leading a small community hospital.

“I really missed hospital administration,” said Hatiras, who joined NIT after a two-year stint as president and CEO of Hoboken University Medical Center (HUMC), where he also served as chief operating officer, vice president of Administration, and many other positions during a 19-year tenure. “I missed that sense of community, that relationship building that goes on when you’re part of a team.”

So Hatiras eventually put the word out to executive search firms that he would be interested in returning to that realm. But there were some caveats, or conditions under which he would like to do so, he told BusinessWest, adding that he set out what he called a “profile.”

The institution in question had to be in a good location, preferably the Northeast, he explained, adding that he preferred a community hospital with 200 to 300 beds in a small to mid-sized community (the situation at HUMC), and one with a good staff and a reputation for quality. The facility also had to be in “good shape,” which in this case meant the soundness of both the physical plant and the fiscal bottom line.

“I didn’t want to walk into a dire situation — I’ve been involved in those, and while it’s rewarding when you can pull out of one, I didn’t want to get back in a situation where, from day one, you’re struggling to keep your head above water,” he said, adding that one institution he was asked to consider could check all those boxes and thus fit that profile — Holyoke Medical Center, which was seeking a successor to Hank Porten, who announced he was stepping down after nearly 30 years at the helm of that facility.

Fast-forwarding a little, Hatiras eventually prevailed in a nationwide search for HMC’s new director; he is slated to start in early September. He spoke with BusinessWest late last month about why he chose to accept this challenge at this stage of his career, while also touching on the challenges moving forward — for all community hospitals, and especially HMC.

At the top of that list is fiscal stability, he said, noting that ‘survival’ is too strong a word for a facility that is in decent condition financially, but still must fight for every dollar in reimbursements from payers and aid from the Commonwealth.

“This is simply a hospital that needs to keep its eye on the ball,” said Hatiras, noting that HMC is what’s called a “safety-net hospital” in Massachusetts, one that receives a combination of state and federal assistance to offset the large amount of free care that such facilities provide; Mercy Medical Center is also one. “We need to make sure we don’t miss an opportunity when it comes to grant money and other programs.”

There are other matters to contend with, such as updating a long-term strategic plan for the facility, and also improving visibility and awareness of a medical center that has a solid reputation and many quality programs, but remains too much of an unknown quantity in this region.

“What I’ve heard loud and clear from everybody is that we do a lot of great things here — we’re the number-one stroke center in the state of Massachusetts for performance, and we have a lot of other great programs — but folks here think we don’t put it out to the community enough, and people don’t know about them,” he explained. “We need to figure out a way to get the message out, because if you do wonderful things and no one knows about them, you can’t get the recognition and the patients you need.”

 

Background — Check

Hatiras told BusinessWest that, unlike many hospital administrators today, he started out in direct patient care, as a physical therapist.

“I remember my first day on the job at St. Mary, which is what the hospital was called before it became University of Hoboken Medical School,” he said. “I got yelled at by the head nurse because, after I was finished with a patient, I left the bed rail down, and she was concerned about the patient falling out of bed.

“This gives me a good perspective; I’ve treated patients, I know what pain is like, especially in physical therapy, and know from a staff’s perspective what it takes every day to take care of patients,” he continued, referring to the many career stops he’s made and titles he’s held, ranging from corporate director of Rehabilitative Services to vice president of Post-Acute, Ancillary, and Support Services. “I started with patient care at the bedside, I’ve done home care, I’ve done nursing care and rehab — and my management style reflects all this. I’m easygoing, I can establish a rapport with patients and staff easily, and I’m personable. I like to walk around and talk to people, eat in the cafeteria, and chat with people; my door is always open.”

And at HMC, that door will be in the hospital, he went on, noting that Porten moved to what was supposed to be a temporary office in another building on the medical center’s campus during an extensive renovation and expansion project undertaken in the late ’90s, but that move turned out to be permanent.

“I’ll find space — I don’t care if it’s in a closet,” he explained. “For me, it’s very important for physicians, employees, and managers to easily access me, and for me to be close to patient-care areas.”

This is how it was at HUMC, which Hatiras led through a situation that could only be described as dire. Indeed, during his tenure, and while transitioning the hospital from municipal to private ownership, he implemented fiscal controls that resulted in a 50% reduction in operating losses, from a $22 million loss in FY 2008 to $11 million in FY 2009. He also achieved a balanced budget the next year, without a reduction in force, by negotiating concessions with employees, physicians, and vendors, which resulted in savings of more than $15 million for two years.

Other accomplishments at HUMC include implementation of an electronic-medical-records system, creation of a hospitalist program, and the securing of a number of grants for operational and infrastructure improvements.

The challenges at HMC will be different, as most all of the above, including financial stability, has been achieved. Looking ahead, he said, beyond finding space for his office, the immediate priorities are to meet with a host of constituencies — physicians, employees, the board of directors, business leaders, and Holyoke city officials — to get a better feel for how well the facility is serving the community, and where change and improvement is needed.

Hatiras said he’s already met with a number of employees and physicians during a few visits to the medical center for interviews, and a few others after he was hired. He came away impressed with the long tenures of many of those he met, but also somewhat intimidated by the notion that many will be retiring within the next decade or two.

“The longevity here is amazing,” he noted. “It seemed like everyone I met said they’d been here 30 years or more. That’s fantastic, but it’s also a challenge; we have to make sure we have good people to follow. That’s something we have to plan for.”

 

Let’s Get Fiscal

While he won’t have to contend with mass retirements any time soon, there are some matters that will need more immediate attention.

At or near the top of that list is being ready as a community hospital for what is still in many respects an uncertain future in the healthcare industry.

“This is a big unknown — I think healthcare reform is not done with us yet, not by a longshot,” he said, referring to payment reform — specifically, paying providers to keep people healthy, not just for treating them when they’re sick — and other issues. “Is there a formula under which community hospitals can survive? I think there is. I’m not of the opinion that you have to merge with someone or be affiliated with someone to survive, but it’s not an easy road, either.

“If you work with your community, if you work with your physicians, and if we’re heading in the direction of payment reform and population health, then I believe community hospitals have a better chance of leveling the playing field,” he continued. “If it continues to be simply a volume game in the future and a rates game, then that’s a harder game to win; the bigger hospitals get the bigger volumes, and they get the higher rates from private payers.”

Another issue moving forward is raising HMC’s profile in the region, he said, adding that this is a big part of the challenge of changing the perceptions, and habits, of people who believe they can get better care in Springfield, Hartford, or Boston than they can in Holyoke.

It’s a situation Hatiras said he faced in New Jersey, when he assumed management of the rehabilitation hospital within St. Francis Hospital (part of the Franciscan Health System of New Jersey), which operated in the shadow, figuratively and almost literally, of the Kessler Institute for Rehabilitation, known for treating Christopher Reeve, among countless others.

“When they needed rehab, people automatically assumed that the best place to go, and the only place to go, was Kessler,” he said. “Here we were, the new kid on the block trying to attract those patients, and they would literally travel from our community 15 or 20 miles to the Kessler facility.

“Changing people’s perceptions is a lot of hard work,” he continued. “It’s relationship building, word-of-mouth referrals, and you have to make sure that people have a good experience and people feel good enough about it to tell others.”

At St. Francis, administration and staff did a lot of what Hatiras called “legwork,” which included everything from providing high-quality care to making sure that physicians in that area were aware of the outcomes, and that they were comparable, or better, than Kessler’s.

“That’s really the only way you can do it,” he went on. “Yes, you can put up a billboard, and you can put an ad in the paper — and those are necessary too — but the best advertisement, and the best marketing, is when people say, ‘I had a great outcome, the people were nice, I was in and out, I had a great experience.’”

Moving forward, HMC will try to use similar legwork, and perhaps some of those advertising vehicles, to make it known that it has a lot going for it, said Hatiras, from a location right off I-91 to a strong track record with regard to outcomes.

“We want to be the place for the immediate community, the neighborhoods right around the hospital,” he said, “but we also want to be the place for the people who choose to come here, because they’ve seen something good about it or heard something good about it, not just because they live next door. There is a lot to build on here.”

 

At Home with the Idea

In a month or so, Hatiras will no longer be homesick.

Instead, he’ll be home, in hospital administration, and presumably in an office in the main building at HMC not carved out of a closet.

As he talked with BusinessWest about the type of scenario he desired as he returned to hospital management, he said he didn’t want a dire situation, but certainly did covet a challenge.

“I get easily bored with routine,” he said with a laugh. “I need spice in my life. Healthcare in general provides enough of that, but if you’re in a small place that needs to fight for every dollar, that usually provides a little more spice.”

And that’s one more reason why HMC fit his ‘profile,’ and is now the next line on his résumé.

 

George O’Brien can be reached at [email protected]

Health Care Sections
The Entering Class at Baystate Has a Decidedly Regional Feel

Dr. Margo Rockwell

Dr. Margo Rockwell is one of many residents at Baystate who have ‘moved back home’ this summer.

Dr. Margo Rockwell says she recently came across a journal she kept while winding her way through the eighth grade.
She said she just happened to open the book to an entry that today seems loaded with prescience — and irony.
“I hurt my ankle playing soccer, and so I came to the hospital,” she said, paraphrasing what she put down on paper 17 years ago. “I talked about going up to the NICU [neonatal intensive-care unit, where her father, Gary, worked as a neonatologist], where my dad showed me around, and I saw all the babies. And I wrote, ‘maybe someday I’ll be able to work at the NICU — I think that would be fun.’”
Well, that day is here. Sort of.
Rockwell is now a pediatric resident at Baystate Medical Center, and will undertake a rotation in the NICU sometime within the next year. She’s also one of an unusually large number of people who grew up in this region who are part of the new class of residents at Baystate and started work just about a month ago.
Indeed, Rockwell said she found her journal after “moving back home,” a phrase that many at Baystate are using this summer. In some cases, it means back to the house they grew up in, while for others it simply means Western Mass.
BusinessWest talked recently with four of these local residents — a phrase that certainly has a double meaning — three of whom are in the same field, pediatrics, or ‘peds,’ as it’s called. Their stories vary in some respects, but the common denominator is that on March 15, ‘Match Day’ for thousands of medical students across the country, they were thrilled to get the news that they would be coming back to this region.
Dr. Adam Kasper

Dr. Adam Kasper, who recently moved back into his childhood bedroom, says Baystate was his first preference when ranking hospitals for his residency.

“I was born here, and my mother was an RN here,” said Dr. Adam Kasper, a 2005 graduate of East Longmeadow High School. He would go on to Lehigh University and then Temple University Medical School, which still distributes old-fashioned letters in envelopes to let students know where they’ll be going for their residency.
As Kasper opened his, he was confident he’d be staying in this time zone — eight of the 12 teaching hospitals he interviewed with are in the Northeast — but was pleasantly surprised to read simply ‘Baystate Medical Center.’
“I’ve got my old bedroom back,” he said, describing his parents’ home as an intermediate-term living plan. “I plan on moving out in the fall, but it’s very nice to be at home; it made the transition from medical school to residency so much less stressful.”
Dr. Elizabeth Langmore-Avila won’t be moving back to her childhood home, but she will be returning to the area where she grew up — she was born in Blandford — and has already worked professionally in the behavioral-health field.
Dr. Elizabeth Langmore-Avila

Dr. Elizabeth Langmore-Avila says she finds work in behavioral health, and especially with those battling substance abuse, to be professionally rewarding.

She’s called many other places home along the way, though. She went to college at Vassar in New York, then lived in Mexico for a number of years, where she went to drama school and did community work with children. She returned to this country to pursue a master’s degree at Antioch College in Keene, N.H., and then returned to this region to work, settling in Amherst for awhile before heading off to medical school at A.T. Still University in Mesa, Ariz., where she would focus on psychology (more on that later).
Revisiting Match Day, she said she had interviewed at hospitals on both coasts, but Western Mass. was her preferred landing spot.
“I realized that it has a lot to offer in terms of what I’m looking for,” she said, listing both professional opportunities and quality of life. “And I decided I wanted to come back.”
That goal became reality when she woke up after a long night’s work in an emergency room to see a message on her phone left by someone with the prefix 413. It was the director of Baystate’s Psychiatry program offering her a welcome.
For this issue, BusinessWest revisits four such message deliveries and what they meant to those who received them, but also looks ahead with those individuals at where their current experiences in the place they call home might take them.

Meeting Their Match
As Dr. Laura Koenigs, director of the Pediatric Residency Program at Baystate, talked about Match Day, she referenced what she called the “computer in the sky.”
Others we spoke with used similar language, calling it simply “a computer” or “the computer,” or “a very complicated logarithm.” What it is, where it is, and what it’s called, no one seemed to know.
What they did know is that the software program in this computer would somehow determine their fate — for the next four years and possibly for the duration of their careers in medicine.
It’s called Match Day, because that’s when thousands of matches are announced, said Koenigs, adding that both medical students and teaching hospitals that interview them send their preferences for various specialties to that aforementioned computer, which ultimately analyzes a host of factors and determines where each medical-school graduate will go next.
“You rank programs, and the programs rank you, and you get matches — that’s what the computer does,” said Langmore-Avila, adding that med school students first learn if they’ve been matched (and more than 80% are), then must wait five agonizing days to find out which hospital they’ve been matched with.
Teaching hospitals like Baystate will weigh everything from academic performance to Springfield’s climate — “the cold and the dark can really impact some people,” said Koenigs, referring to the region’s long winters — when they submit their preferences. Meanwhile, medical-school students, some of whom will apply to a few dozen hospitals, will have their own criteria and priorities.
This year, the pediatric program took on 12 new residents, with half of them calling Massachusetts home, and four from the Pioneer Valley.
Dr. Shannon Rindone is among them.

Dr. Shannon Rindone

Dr. Shannon Rindone says she gravitated toward pediatrics because she finds the work challenging and rewarding.

She received her diploma from East Longmeadow High School four years before Kasper (“he graduated with my little brother”), and by then had a pretty good idea that she wanted to follow her parents into the healthcare field — her mother is a nurse at Mercy Medical Center, and her stepfather does the same at Cooley Dickinson Hospital.
“I’ve always been surrounded by it,” she said, referring to the world of medicine. “My mother always said I could be whatever I wanted, and when she would bring me to work, I just loved it — I enjoyed talking to the doctors, the nurses, and the patients, and then I wound up working at Mercy myself as a patient-care technician.”
She said she was first drawn to pediatrics, or what she called “the little people,” while working at Cambridge University Hospital in England as a midwife care assistant. (She went overseas to be with her then-fiance as he worked toward his MBA at Cambridge.) She would go on to attend medical school at Nova Southeastern in Fort Lauderdale, Fla., and is now a DO, or doctor of osteopathic medicine.
On Match Day, she remembers being nervous and also somewhat jealous when a friend attending another medical school received her news a full half-hour before she did. When the e-mail finally arrived, she saw several words, including her name, but the only one she read, or cared about at that moment, was ‘Baystate.’
“The real preference was to come back home, and this is home,” she said, noting that she interviewed at many institutions, including a few in Florida.
She doesn’t, and couldn’t, know what tackling the rigors of a residency 1,000 miles from home, family, and friends would be like, but she acknowleged that having a support system close by (her mother and Mercy Medical Center are a half-mile away) is comforting.
“But at the same time, after a 16-hour day, sometimes you just want to put your head on a pillow, and your sister may want you to come over for dinner,” she noted. “And that can sometimes be difficult, because it’s hard for everyone to understand that you’re exhausted; you’re home, and they want to see you.”
She told BusinessWest that her career could take one of a number of paths, but she has developed a passion for pediatrics, and has shifted her focus there from her original pursuit, the ob/gyn field.
“I realized that the reason I liked obstetrics and gynecology was because of the family interaction and the baby, the product, at the end,” she explained. “And I really fell in love with just dealing with kids of all ages.”
Currently on the rotation known simply as ‘the wards,’ or the ‘floors,’ Rindone said this involves seeing and treating patients in the Children’s Hospital, and represents a steep learning curve.
On the wards, she encounters children suffering from everything from meningitis to seizure disorders to fever. “It’s hard to see them when they’re like that, but it’s wonderful to know you’re helping them and easing the parents’ anxiety.
“Working with kids makes me smile every day,” she went on, “and you can’t complain about a job that makes you smile.”

Close Calls
Kasper can relate.
He said he was drawn to pediatrics while moving through the core clerkships during his third year of medical school at Temple. These also included internal medicine, surgery, family medicine, ob/gyn, and others, with pediatrics somewhere in the middle.
“I just found that I was more interested in the material,” he said of his chosen specialty. “I actually didn’t mind going home and reading about the topics as much as I did some of the other rotations. I just found that I enjoyed going to the hospital a little more each day — I knew this was where I was supposed to be.”
Elaborating, he said he liked the “patient population,” found his personality is better suited for that field than others, and, overall, considered it both more challenging and more rewarding than other areas of practice.
“The potential impact that you have,” he explained, “is much greater than when you’re treating a 70-year-old who’s been smoking for the past 50 years and has no intention of changing anything he does no matter what you say.”
Currently on the genetics rotation, Kasper said behavioral development is next, and as he looks ahead, he’s eyeing each of the segments with equal amounts of anxious anticipation and “dread about how well I’ll perform in them, because I’m still getting my feet under me and getting used to working at this hospital.
“They’re equally exciting to me right now because I’m entering residency the same way I while I was in medical school,” he continued. “I don’t know exactly where I want to go in pediatrics, so each thing is a possibility.”
Rockwell said she’s in a similar state, one where the options are many and most have yet to be explored in depth.
She segued into medicine while majoring in geology and comparative literature at Hamilton College in New York. “You could write about rocks, I guess,” she said with a laugh when asked what one could do with those degrees, adding quickly that she always had medicine in the back of her mind, did pre-med work at Hamilton, and was an EMT on campus.
She enrolled at the University of New England Medical School in Maine, where, like Kasper, she zeroed in on pediatrics rather late in the game — it was her last rotation, and she found she enjoyed working with children and families.
On Match Day, she was in surgery at a hospital in New York City when the clock struck noon and the results are posted. “The surgeon let me scrub out,” she recalled. “I opened my phone, and it was there in an e-mail: ‘Margo Rockwell; Baystate Medical Center; Pediatrics.’
“You were waiting all year for that e-mail, so it was pretty exciting,” Rockwell went on, adding that pediatric endocrinology was her first rotation, and that two months in the NICU, November and May, lie ahead.
She said she might get to work with her father, although they will likely be on different teams. And in the meantime, he’s been a great resource. “I certainly ask him a lot of questions.”
Meanwhile, Langmore-Avila is working with much older patients in Baystate’s Adult Psychiatric Treatment Unit, the adult inpatient facility at the hospital, one of many rotations she’ll experience this year.
Many of those she sees each day as part of a team of professionals have substance-abuse issues, she said, adding that it was work in this realm several years ago at the Riverbend Medical Group that inspired her to go to medical school and pursue work in that field.
“We admit patients, evaluate them, treat them as necessary, and monitor their progress,” she explained, adding that such individuals are then released either into the community or to a treatment facility.
This is work she finds rewarding on a number of levels, especially when she and other members of a team can change the course of someone’s life.
“I did a lot of substance-abuse treatment before medical school, and found it’s a field that I really like,” she said of her chosen path in healthcare. “It’s very much on the front lines, and it’s an opportunity to help someone who may have hit rock bottom. That’s a tragic state of being for a person, and if I can be there in the moment and try to help someone come out of that, get through that … that’s very important to me; it’s very meaningful.”

Local Flavor
As she walked with BusinessWest to the NICU for a few photos, Rockwell pointed to a small courtyard area where staffers can enjoy a meal or a quiet moment.
“That’s where I used to bring pizza for my dad,” she said, adding that she would often deliver him snacks when he was on call for stints that could last 24 hours or more.
Soon, the two might be sharing lunch or dinner there again, only this time they’ll both be wearing white coats and badges identifying them as doctors.
That journal entry logged all those years ago hasn’t officially come to fruition yet, but the younger Rockwell is a giant step closer to making it all reality.
For now, though, she’s another of Baystate’s local residents, and one of many happy to be back home.

George O’Brien can be reached at [email protected]

Health Care Sections
Sugary Drinks Play a Major Role in Obesity, Related Health Problems

Jeff Sautter and Michelle Edwards

Jeff Sautter and Michelle Edwards say the calories in drinks can add up quickly.

Imagine sitting down and eating a bowl filled with 15 to 20 teaspoons of sugar.
According to Dr. Teresa Mitchell, although most people would never do that, they don’t realize they are consuming the same amount of sugar every time they drink a 20-ounce soda.
The excess is not only harmful to health, but its high calorie count can lead to unwanted weight gain. In fact, research has shown that sugary drinks play a major role in the obesity epidemic.
That epidemic — it affects about one in three Americans — was officially classified as a disease last month by the American Medical Assoc., requiring a range of medical interventions to advance treatment and prevention.
And there are some preventive steps anyone can take to decrease their obesity risk and slow the advance of weight-related diseases, from diabetes to cardiovascular issues.
For example, a study done by the Harvard School of Public Health shows that drinking one 12-ounce soda every day causes a weight gain of one pound every four years. “People don’t realize that one soda a day can make a big difference in their lives,” said Mitchell, director of pediatrics at Mercy Family Life Center in Springfield. “But over time it can lead to obesity, which then leads to other chronic diseases.”
Jeff Sautter agrees. “Soda is the most abused and unnecessary form of caloric intake,” said the clinical dietitian from Baystate Medical Center in Springfield. “It should not be used as a hydrating beverage.”
In March, researchers at an American Heart Assoc. conference reported they had found a link between sugary drinks and 180,000 obesity-related deaths worldwide, which included approximately 25,000 adult Americans.
But children also enter into the equation. The Harvard School of Medicine says sugary drinks are the top source of calories in teens’ diets. In addition, a study they conducted found that, for each additional soda a child consumed each day, their odds of becoming obese increased by 60%. Part of the reason is that, even though a 64-ounce cola fountain drink can contain up to 700 calories, adults and children who drink sweetened beverages do not feel as full as if they had eaten the same number of calories from food.
“It’s very easy to consume more calories than you need when you drink sugary beverages because they add up very quickly,” said Michelle Edwards, a clinical dietitian with Baystate Medical Center.
Dr. Teresa Mitchell

Dr. Teresa Mitchell says adults often pass bad nutritional habits to their children, who then grow up relying on sweet drinks instead of milk and water.

However, weight gain isn’t the only problem related to sugar-filled beverages. People who guzzle one to two cans of soda a day have a 26% greater chance of developing type II diabetes than people who rarely consume these drinks, and a connection exists between sugary drinks, heart attacks, heart disease, and gout.
“The bottom line is that we eat too much sugar and drink too much sugar,” Sautter said, adding that it’s difficult to avoid since 80% of the typical 600,000 items in a grocery store contain added sugar.
But many caring adults unknowingly pass bad habits onto children due to a lack of knowledge. “Some parents give their children more juice than milk,” Mitchell said. “It tastes so good that children naturally want it, and parents offer it because they think it’s healthy. But that’s a misconception. The American Academy of Pediatrics says infants younger than 6 months should not be given any fruit juice because it offers them no nutritional benefits, children 1 to 6 years old should be limited to four to six ounces a day, and children ages 7 to 18 should not have more than eight to 12 ounces a day.”
Still, soda and juice are not the only culprits. Sugary drinks come in many forms, ranging from sports beverages to those touting added vitamins. But drinking a sweetened beverage is no substitute for a healthy diet, and experts say education, including learning how to wean children off sweetened beverages, can make a significant difference in health.
“It’s better to get vitamins from a natural source than a fortified source,” Mitchell said. “Fruit is better than fruit juice because it contains vitamins and fiber.”

Societal Changes
Sautter said fruits and foods that contain natural sugar take time to digest, while the sugar in sweetened drinks goes straight into the bloodstream, which can cause a spike in insulin.
This can be problematic. Edwards said a rise in insulin can increase appetite, cause people to put on more visceral fat, or fat around the abdomen and other organs, and lead to insulin resistance. “There are risks involved with elevated blood sugar over time. It can damage small vessels and also lead to chronic kidney or eye disease,” she told BusinessWest.
Mitchell agrees. “Simple sugar causes a rapid increase in insulin release, which lowers blood sugar and causes a craving for more sugar, which increases caloric intake,” she said. “Sugary drinks can lead to obesity and insulin resistance, which leads to type II diabetes.”
But consumption of sugary drinks has been on the rise for decades. “In the ’70s, sugary drinks made up 4% of the U.S. daily caloric intake. By 2001, it was up to 9%, and between 1989 and 2008, the calories consumed from sugary drinks in children ages 6 to 11 increased by 60%,” Mitchell said, adding that youngsters in this age group averaged 209 calories a day from sugary drinks, and the percentage consuming such beverages rose from 79% to 91%.
Edwards tells patients that sugar is addictive. “The more you drink it, the more you are going to want or crave it,” she said.
So, although a small amount of juice — say, four ounces — can be healthy, Edwards suggests parents give children water or low-fat milk instead of fruit juice or drinks containing juice. Another tactic is to dilute juice with more and more water over time. “But the best option is just to keep sugary beverages out of the house,” she said. “When you hydrate with sweet beverages, it’s much easier to consume an excess of calories.”
Mitchell agrees, adding that sports drinks are unnecessary unless someone is engaging in an unusually high level of physical activity. “Water is the best drink. It satisfies thirst, hydrates you, and is all that most children need when they are playing sports.”
The earlier parents reduce their child’s intake of sugary beverages, the better off they will be, she added. “Obesity has been shown to increase the risk of diabetes, and in the last few years, we are beginning to see children as young as 4 with type II diabetes. It’s a disease that used to be seen primarily in obese adults.”
But in order to make good choices, people need to learn to read labels. “There are many names for sugar,” Sautter said, adding that sugar alcohols include sorbitol, manitol, and xylitol. “Some of them are known to cause diarrhea if they are consumed in excessive amounts, and they can also cause bloating and constipation.”
People should also avoid beverages that contain high-fructose corn syrup. “Fructose is rapidly absorbed by the bloodstream. It goes straight into the liver and can trigger an elevation in cholesterol, including triglycerides,” Edwards said.
Although some people switch to diet soda, that can also lead to health problems. “The chemicals in them have been shown to increase the risk of cancer. And soda in general can increase the risk of osteoporosis because it decreases absorption of calcium,” Mitchell said. In addition, people often eat more than they normally would when they choose a low-calorie beverage.

Long-term Benefits

Mitchell says consuming liquid calories does not result in the same satisfaction that comes from eating food, but few people stop to think before they drink.
“Obesity is on the rise, and sugary drinks lead to weight gain without people realizing it,” she noted.
That means maintaining a healthy lifestyle may not be as difficult as some people believe, Sautter said. “Just doing one simple thing — changing what you drink — can be a game changer for your health.”

Health Care Sections
Sleeve Gastrectomy Is the Hot Option in Weight-loss Surgery

Dr. John Romanelli

Dr. John Romanelli says sleeve gastrectomy is “elegant in its simplicity,” offering the effectiveness of gastric bypass, but with much lower risk.

Surgically shrinking the stomach to combat obesity is nothing new in the medical world.
But the options for doing so are looking better all the time.
Specifically, sleeve gastrectomy has begun to overtake gastric-bypass surgery and gastric-banding procedures as the surgical weapon of choice, boasting comparative effectiveness with far fewer side effects.
“This operation is elegant in its simplicity,” said Dr. John Romanelli, medical director of the Weight Loss Surgery Program at Baystate Medical Center. “Anyone in the public can get this. We make the stomach smaller, and the way we do that is, we take out everything but the lesser curvature side of the stomach. In other words, we make a sleeve or a tube of the stomach the width of the esophagus, which comes down until it gets to the bottom of the stomach.”
Unlike gastric bypass, which moves a portion of the small intestine, sleeve gastrectomy is performed only on the stomach itself, he noted, so the digestive process is unaffected. “The intestine is left undisturbed, so it’s closer to gastric banding in terms of digestion, and closer to gastric bypass in terms of performance.”
The procedure, which is irreversible, reduces the stomach to about 25% its original size, thereby suppressing appetite in the same way gastric bypass or gastric banding do, said Dr. Andrew Lederman, director of the Berkshire Medical Center Weight Loss Surgery program.
Sleeve gastrectomy was originally performed as a modification to another bariatric procedure, the duodenal switch, and then later as the first part of a two-stage gastric-bypass operation on extremely obese patients for whom the risk of performing gastric-bypass surgery was deemed too large, he noted. The initial weight loss in these patients was so successful, it began to be investigated as a standalone procedure. Today, it’s the fastest-growing surgical option for weight loss in North America.
The reduced impact on digestion is only one reason why sleeve gastrectomy is attractive to patients and surgeons, Romanelli said.
“From my end of things, very simply, the complications are so much lower than bypass or banding. As one of my colleagues said, ‘it’s like bariatric surgery, except you get to sleep at night.’ That’s key; most surgeons report complication rates of 20% to 30% with gastric bypass.”
He explained that there might be 10 or so little things that could go wrong with bypass, and while each may happen only 2% to 3% of the time, combined, the odds add up. With banding, complication rates are 5% per year, and it’s not uncommon for patients to have to undergo repeat procedures.
“It’s easy for patients to understand, easy to perform, with a minimum of complications,” Romanelli told BusinessWest. “In a lot of respects, it’s the holy grail of operations.”

Who Qualifies?
Sleeve gastrectomy uses a stapling device to create a thin, vertical sleeve of stomach, with most of the original organ then removed. It differs in many ways from both gastric bypass, which divides the stomach into a small upper pouch and a much larger ‘remnant’ pouch and then rearranges the small intestine to connect to both; and gastric banding, which incorporates an inflatable band around the upper part of the stomach to create a smaller pouch. But all three procedures have the same goal: to limit food intake while creating a sated feeling.
Romanelli performed his first sleeve gastrectomy in 2006, and it became more common in 2008 and 2009 as more insurers began covering it. “Success bred success,” he said, “and more patients started asking for it.” By 2010 and 2011, the procedure had gained wide approval, and virtually all payers were on board.
Lederman said people considering weight-loss surgery must have a body-mass index greater than 40, between 35 and 40 with two weight-related health risks, such as diabetes, high blood pressure, high cholesterol, cardiac disease, obstructive sleep apnea, arthritis and joint pain, and incontinence, among others. Typically, candidates are 100 pounds or more overweight, and have already tried other options to lose weight.
He added that, when surgical patients begin losing weight, those obesity-related medical problems often disappear; in fact, 86% of diabetics improve with bariatric surgery, while 74% of type II diabetics are effectively cured of their diabetes.
Romanelli said Baystate’s standards are similar, and he’s particularly intrigued by candidates who present with those ancillary medical issues.
“Those are the people I’m more interested in because we can make those diseases go away and add 10 years to their life,” he said. “I don’t care what dress size they wear; I want them to throw the pillbox in the garbage. They desperately need that.”
As for the age range, typically Romanelli performs sleeve gastrectomy on those between 18 and 65. He said 18- to 21-year-olds are often an underserved population in healthcare in general because they’re transitioning from a pediatrician to an adult doctor and often don’t have a primary-care physician. But it’s important to establish a surgical track record with that group to determine whether even younger patients would be good candidates for the procedure.
When talking about 16- and 17-year-olds, he continued, “the problem is the psychological component; kids aren’t at maturity, so you’ve really got to be careful. A lot of adolescents have serious emotional problems and are probably not suitable candidates.”
In addition, he added, “we’re sifting through much more variable family dynamics.” For instance, if a teenager lives in a house with two morbidly obese parents who do not plan to change their lifestyles, that’s not an ideal environment for gastric surgery.
The upper age limit isn’t set in stone, either, Romanelli said. “It’s not like, on their 66th birthday, they no longer qualify. But a fair amount of data shows that cardiac diseases don’t go away as easily when they turn 65. They’ve already got hardened arteries; the damage is already done.” Meanwhile, complication rates rise in older patients as well.
“But someone who is, say, 67 and in reasonable health, if they want weight-loss surgery, we wouldn’t turn them away. Age 70 has been my limit, but others have gone up to age 80, which I think is a bit excessive.”
That said, Romanelli told BusinessWest, “I’ve done more surgeries on 65- to 70-year-olds in the past year than ever before. There are a fair number who are healthy. But we do take a closer look at them. I have medical colleagues who work with us to give them a once-over before we put them through this elective operation.”

Risk and Reward
All surgery involves risk, Lederman stressed, and even with the reduced odds of complications in sleeve gastrectomy, patients still undergo a medical and psychological evaluation to determine if they are healthy enough to undergo the procedure. Meanwhile, all types of gastric surgery require serious lifestyle adjustment.
“Weight-loss surgery was not an easy way out,” said Tracy DiGrigoli, one of Berkshire Medical Center’s gastric-surgery patients. “I have to make an effort every day to make the right choices in what to eat and to exercise.”
Added patient Michelle Simon Grady, “there are days I get down, but I keep a picture of myself 100 pounds heavier, and people will see me and say, ‘you look wonderful. How do you do it?’ Well, it’s not easy. I eat in moderation, not binging the way I did before.”
Meanwhile, even sleeve gastrectomy carries some drawbacks, Romanelli said. Nausea is common during the first six weeks following the surgery; for some patients it’s profound, while others have a relatively easy time.
But, buoyed by their own research and desire to lose triple-digit weight, patients are increasingly clamoring for this relatively new option.
“I would say 50% who come in are already asking for this operation,” Romanelli said. “The bottom line is, if you’re going to have an operation, the results are about as good as bypass, but it’s a lot safer.”
He went so far as to predict that gastric banding will become relatively rare within three to five years. “I do think diabetics do better with gastric bypass, but everyone else will get sleeves. I think that’s where we’re heading. I’d like to tell you that one operation fits all, but I’m not convinced; it’s not that good, to where we’d do that and nothing else. Patients should have a choice.”
Indeed, “I don’t go out of my way to encourage banding, but if a patient wants it and it’s reasonable, I’ll do it,” Romanelli said, noting, for example, women who want to get pregnant at some point in the future; they can have the band deflated during the pregnancy and tightened afterward. “So there’s an adjustability factor for women of childbrearing age. And bypass is good for people with metabolic disease. But for most people, sleeve gastrectomy is becoming the most popular.”
“Between its effectiveness and relative safety, it’s really the best of both worlds,” he told BusinessWest. “I know that makes it sound too good to be true, and maybe five, 10, 15 years from now, like all things in the media, people will be saying, ‘yeah, that’s too good to be true.’ But the results have been great, and patients are happy. They come in and say, ‘I can’t believe how easy this is!’ I never hear that with gastric bypass. I never hear that with banding patients. But I always hear it with sleeve patients.
“They can eat what they want, just less,” Romanelli concluded. “So they keep the same quality of food and lose weight every week. Who wouldn’t want that?”

Health Care Sections
Don’t Put Off Estate Planning for Your College-aged Children

Lisa L. Halbert

Lisa L. Halbert

Summer is here, and your college-aged kids (or grandkids) are on break, or home from school, if only for a short period of time. While these technically ‘legal’ adults are likely trying to work, catch-up on Zs, and reluctantly make the rounds for various doctor and dentist appointments, it’s a good idea to add an appointment with a lawyer to the list.
Everyone over the age of 18 — including college- or post-college-aged individuals — should consider the prudence of executing a healthcare proxy and a durable power of attorney.

Healthcare Proxy
A healthcare proxy (HCP) is a document by which a legally competent person over the age of 18 (usually referred to as the ‘principal’) appoints another adult (the ‘agent’) to help make healthcare decisions for the principal, but only if the principal is unable to either make or communicate their own healthcare decisions.
Signing an HCP does not allow an agent unfettered access to the principal’s healthcare information. So long as a principal has the requisite capacity, an agent cannot access the principal’s medical information unless or until a medical release (and not just the HCP) is signed by the principal.

Durable Power of Attorney
Conceptually, a durable power of attorney (POA, or sometimes referred to as a DPA) is similar to an HCP in that the principal (in this case the college-aged student) nominates another adult (usually referred to as an attorney-in-fact) to step into the shoes of the principal and act on his or her behalf for almost any financial transaction. The proposed attorney-in-fact needs to be trustworthy, in an almost blind-faith sort of way. The attorney-in-fact may be a parent, trusted friend, sibling, or other advisor. Authority granted under a POA is typically quite comprehensive, with college-aged adults frequently concerned about the following:
• Banking, including online accounts, check writing, opening and closing accounts, and transferring funds between accounts (especially where money is coming from parents);
• Entering into or changing contracts, i.e. for rental agreements, airline flights, cell-phone and Internet access, student loans, and credit cards;
• Changing beneficiaries on contracts, including creating and funding of individual retirement accounts; and
• Buying and selling cars, securities, or real estate, although these are less-often needed by college students.
The document should be durable, so that it remains in force and effect even at a time when the principal might lose legal capacity, whether due to periods of serious mental or physical illness or injury resulting from a fall, car accident, alcohol, or drugs, which leaves the principal alive, but unable to think or reason clearly.
If the POA does not reference that it is durable, then if the principal becomes incapacitated or incompetent, and unable to think or express thoughts clearly, the authority of the attorney-in-fact terminates. And whether the document is durable or not, upon the death of the principal, all authority terminates, and the attorney-in-fact is no longer authorized to act.
While an HCP can be used or invoked only where the principal is not able to make certain decisions (and therefore cannot be used when the principal is fully able to think and reason), a POA can be crafted to allow the attorney-in-fact access to financial affairs at the same time as the principal, or to take effect at a later time, whether based on the principal’s losing capacity or upon certain events (such as a trip out of the country).
As a general statement, if the principal does not (almost) blindly trust the appointee with access to his or her finances, then do not appoint that person. And if you do have that kind of trust, then it is likely administratively easiest to have the document in full force and effect from the original date of signing, as opposed to a later date.  If you decide to make the POA invoked upon injury or illness, it may not be easy to get you to agree to see a doctor, or it may take time to get an appointment, both of which can delay the process during a pivotal time.
The principal may want to consider appointing not just one person, but likely up to three individuals to serve consecutively under both the HCP and POA. Therefore, if the first person becomes unable or unavailable, there is a second person to act, etc. If the principal does not change his or her mind about appointing these same people, then by naming individuals to serve consecutively, the document should remain viable and valid for a longer period of time.

Good Reasons
Why should you encourage your son, daughter, or grandchild to meet with an attorney and sign a healthcare proxy and separate durable power of attorney?
Many 18- to 25-year-olds do not live at home. They are at college, or beginning to branch out and live far away from home. Many want their independence but have not yet really learned to plan for the unexpected, at least in terms of legal documents. Your adult child could have a medical emergency, perhaps due to being hit by a drunk driver, a fall down stairs, an emotional issue that severely impacts thought processes, or a financial situation that needs prompt or urgent action (such as limited access to bank funds while traveling in a foreign country).
With a healthcare proxy and durable POA in place, these and many more issues can be addressed quickly and in a cost-effective manner by someone whom your child has chosen.
The ramifications of not having the documents in place could mean that court action may be necessary in order to have someone appointed to make medical decisions, or to help access accounts and/or address various financial issues. The cost associated with a court action, in terms of time, emotions, and money, can be problematic.
Further, if court action is necessitated because the person did not have a POA or HCP, then it is someone around the principal who initiates the request for court assistance or intervention. In effect, the principal loses control of choosing who makes certain decisions (whether medical or financial) and whether they will be made consistent with the principal’s approach.
This summer, consider a unique way to express your love and caring to your independent-minded 18- to 25-year-old. Gently suggest that he or she take an hour or so to talk to an attorney about these documents. You can even make a present to your child or grandchild that covers the cost of having the work done. In the long run, having an HCP and POA is a great investment in your child or grandchild by encouraging their independence and sense of responsibility to self. It shows that someone cares enough to help them plan for the unexpected. The documents are valid for years into the future, with originals being kept safely at the law firm or in a safe. If properly authorized, copies can be provided to medical professionals, financial institutions, and the named appointees, or provided via computer, as well as kept with passports or travel itineraries.

Lisa L. Halbert, Esq. is an associate in the Northampton office of Bacon & Wilson, P.C. A member of the estate-planning, elder, and real-estate departments, she is especially focused on legal matters relating to elder and estate planning and asset protection; (413) 584-1287; baconwilson.com/attorneys/halbert

Health Care Sections
When Disaster Strikes, Caregivers Spring into Action

ResponseAs a surgeon at Brigham and Women’s Hospital in Boston and associate director of its Center for Surgery and Public Health, Dr. Atul Gawande knows a little something about how hospitals respond to emergencies.
And as a staff writer for the New Yorker, he was able to share some of that insight after twin explosions rocked the Boston Marathon last month, killing three people almost instantly and injuring more than 250 others, all of whom survived.
“They had their limbs blown off, vital arteries severed, bones fractured, flesh torn open by shrapnel or scorched by the blasts’ heat,” he wrote the day after the terrorist attack. “Yet, it now appears that every one of the wounded alive when rescuers reached them will survive. Medically speaking, this is no small accomplishment.”
He noted that, within minutes, the runners’ first-aid tent was converted to a mass-casualty triage unit, and emergency medical teams mobilized en masse throughout Boston, resuscitated the injured, dispersed them to eight different hospitals, despite the chaos and snarled traffic.
“How did this happen?” he asked. “Something more significant occurred than professionals merely adhering to smart policies and procedures. What we saw unfold was the cultural legacy of the Sept. 11 attacks and all that has followed in the decade-plus since. We are not innocents anymore.”
Gawande’s words resonate with Brian Rust, manager of Security Services at Cooley Dickinson Hospital.
“My philosophy has always been to steer away from the complexity of information-management systems and all this other stuff that sounds good when you get a degree in emergency preparedness,” he told BusinessWest. “Because, when something happens, people revert to what they know best. Doctors and nurses know how to take care of patients — two at a time, 10 at a time, it’s pretty much the same concept. That’s why hospitals respond so well to these events — they’re used to it. They deal with stressful situations all day long.”

In a disaster situation, says Jim Keefe (left, with Emergency Preparedness Coordinator Bob Moore),

In a disaster situation, says Jim Keefe (left, with Emergency Preparedness Coordinator Bob Moore), Holyoke Medical Center relies first on the accurate assessment and triage performed at the scene.

Gawande echoed that sentiment, noting that events in Boston happened too quickly for any well-practiced disaster plan to fall into place. Dr. Stanley Ashley, chief medical officer at Brigham and Women’s Hospital, told his colleague that “I mostly let people do their jobs.” And without being called, scores of doctors, nurses, and other staff just showed up at the hospital, ready to do what they knew how to do.
Yet, no hospital downplays the importance of planning for a mass-casualty event and then playing out their strategies during periodic drills — a challenge, given that no two scenarios are the same.
“The response is based on the nature of the event,” said Dr. Niels Rathlev, chair of Emergency Medicine at Baystate Medical Center. “With what happened in Boston, clearly trauma surgeons would play a role at the forefront of managing these victims. With a flu pandemic, it would be people from infectious diseases. With a fire like in West, Texas, there would likely be trauma surgeons and toxicologists” because of the toxicity of the chemicals in the fertilizer plant.
But there are similarities in each case, too. Baystate, like most hospitals, follows an incident command system in which emergency responders, police, fire, and other officials set up a command center near the disaster site and communicate with area hospitals about how many patients each is able to accept. Baystate, being the region’s only level 1 trauma center, would receive the most critically injured.
“We implement what we call our disaster plan — all hands on deck,” Rathlev said, meaning no one is allowed to leave, and additional medical professionals are called in. It also means sending home patients who don’t need beds, canceling non-urgent procedures, and clearing out the emergency room as much as possible, moving patients already admitted there to other beds in the hospital.
James Keefe, vice president of Inpatient Services at Holyoke Medical Center, said that facility follows a similar policy of not letting anyone go home during a crisis.
Meanwhile, “we rely on a lot of accurate assessment and triaging outside the hospital at the scene, and we provide resources according to our availability here. If we were going to receive a large number of injured, we would say, ‘don’t start any more elective surgeries. We need the operating rooms empty; don’t put another case in there.’”
In short, once incident commanders let hospitals know how many patients need care, each hospital must make a call based on its capacity. “And every day is different for us,” Keefe said. “We could have the emergency room jammed with 100 patients that day, or it could be empty.”
Planning for a contingency no one can really predict — after all, who foresaw a tornado touching down in Springfield two years ago? — may seem like an impossible task, but hospital leaders say it’s necessary. One look at the TV on Patriots’ Day demonstrates why.

Prepare for the Worst
“Speaking of the tornado, we’ve had our fair share of practice here — I’ve been here four years, and we’ve had three major events,” Rathlev said, referring to the twister, last November’s natural gas explosion in downtown Springfield, and the freak October 2011 snowstorm, which in many ways was more challenging for the hospital than the other two scenarios. “Everyone lost power, and we were inundated with patients who came here needing to plug in ventilators, home oxygen, BiPAP and CPAP machines. They came here because we had backup power.”
Tom Lynch, Baystate’s chief of Security, explained that the hospital has an emergency-planning committee — a multidisciplinary team of employees that includes physicians, other providers, and support staff — and part of the team’s role is to examine all disaster possibilities and try to determine which are most likely to occur locally. “We take that as a starting plan.”
He explained that regulatory agencies dictate some of the things that all hospitals have to do, including the exercise of at least two drills per year. “One has to be a mass-casualty drill, and it has to be community-based; that is the key. The whole idea is to have the involvement of public safety. It’s important for people inside the hospital to know who the outside players are, and for people on the outside to know what we’re doing. It makes it easier to communicate.”
Afterward, Lynch explained, the various players break down what happened during the drill. “It’s helpful to have people sit down in a room, see what we’re doing, and make suggestions about ways to improve it.
“We try to take advantage of every opportunity to learn something, even if it’s outside of our scheduled drills,” he continued. “If a situation presents itself, we say, ‘if it had gone to the next level, how would we handle it?’”
He gave two examples of using real-world, non-crisis situations to simulate emergencies. One was the opening of Baystate’s MassMutual Wing. When patients were moved into that area, the hospital essentially ran the transition like an evacuation drill. “We had observers come in from the city and from the Department of Public Health,” he explained.
Then, when the hospital opened its new Emergency Department, it ran a similar drill when moving patients. “When we had to close in one area and open in another area, it’s a great opportunity for a planning session in real time,” Lynch said. “Again, we had people come in from the outside to evaluate how we did that. Those are the kinds of things that build confidence and skills and allow you to work with people in the community. Then, in the event of some kind of issue, we feel like we have a place to start, and we know what to do.”

Brian Rust

Brian Rust says strategies and drills are important, but most critical are caregivers who know what to do in a crisis.

Specific considerations come into play depending on the emergency, Rathlev said, from decontamination in the case of a chemical explosion to the possibility that some victims will arrive at the hospital on their own, not by ambulance. “You have to secure the perimeter of the hospital and not let anyone in unless you’re sure they’ve been adequately decontaminated. Once that happens, they can be brought in.”
Hospitals also must prepare for an inflow of concerned family members, as well as media members, who want to know what’s happening at every turn. “It’s all very systematic, and we practice it on a regular basis,” Keefe said. Those practices often take the form of drills that are unannounced to virtually all participants until they launch, followed by a debriefing and discussion period involving all stakeholders.
Meanwhile, the hospital is constantly monitoring medical trends as part of its planning, since an emergency can conceivably take the shape of a widespread pandemic, not just a localized disaster.
“Every year, we review our policies and procedures, and this year we predicted a tough flu season,” he said, noting that flu cases were showing up earlier than usual, in October, and vaccines were proving ineffective for more than one-third of recipients. The situation never became too serious, but hospitals were alert to the possibility.
“The Department of Public Health asked us to test our ability to handle an influx of flu patients, but we do that anyway,” Keefe said. “If we know we’re going to get a large flu population, we’d open up more beds to take care of the less-ill population; we’d look for alternate locations to treat patients besides the ED.”

Hope for the Best
Rust noted that Cooley Dickinson, like virtually all acute-care hospitals, conducts drills regularly. “We try to plan for everything and anything, but the bottom line is, no matter what it is, it’s sort of the same response. Whether we have a large number of patients come in with a contagious disease or a large number with burns, it’s all about caring for patients.”
Rathlev noted that the larger hospitals in Boston quickly admitted around 25 or 30 patients each, and emergency response personnel worked very quickly to distribute all the injured who needed hospital care — about 140 in all. That kind of response is a reflection of both intensive planning and, as Gawande noted in the New Yorker, caregivers who simply knew what had to be done.
“There is a reason to have plans. That’s important. But that’s not the most important thing; to me, it’s having people who are available,” Rust said, noting that it can be a challenge to mobilize the entire hospital at once, and Cooley Dickinson is working on improving its notification system to manage it more quickly. Still, said all those BusinessWest spoke with, once word of a crisis gets out, medical professionals don’t need much prodding.
“People in our line of business would be rushing to help,” Keefe said. “We would have a hard time keeping people away; they’d want to come. I’m sure Mass General had people coming out of the woodwork — interns, residents, fellows … they want to help. Those guys deal with traumas on a daily basis.”
Rathlev isn’t surprised that disaster management has a high profile right now. “Since 9/11, interest in the public eye has somewhat waned, and now it’s obviously back at the forefront, given what happened in Boston,” he said. “I think it’s very important to teach young medical students and doctors how to manage these situations. The fire in West, Texas, the bombings in Boston … they could happen anywhere. That’s one lesson you have to come away with.”
People often have a short attention span regarding disaster preparedness, Rust agreed, expecting public interest, just like after 9/11, to spike and then fade — except for the people, like him, who are tasked with thinking about it all the time.
“Like everything else, it’s important right after something happens, and then the interest begins to wane and takes a back seat,” he said. “Everyone is so busy dealing with today and yesterday that it can be a challenge getting people thinking about tomorrow.”
But considering the various possibilities is critical, he continued, because large-scale events can occur at any moment. “We know something could happen. Whether it’s a bus tipping over or a dramatic terrorist attack, there’s no longer that shock.”
And, as Boston demonstrated, it won’t be shocking when doctors, nurses, and other caregivers spring into action immediately.
“It’s really that simple,” Rust said. “When we look at the concept of emergency preparedness, it goes back to what you do every day — just on a larger scale. It comes down to having people who know what to do every day, so they can do it any day.”

Joseph Bednar can be reached at [email protected]

Health Care Sections
Hemophilia Poses Numerous, Lifelong Challenges

Dr. Richard Steingart

Dr. Richard Steingart says hemophiliacs have a shorter average lifespan than those without the disorder, but more meticulous care these days has allowed many to live normal, often-lengthy lives.

Mark Zatyrka’s passion is in his blood — blood that won’t clot.
He’s one of about 20,000 Americans living with hemophilia, a rare condition that prevents blood from clotting normally. But he’s turned his challenges into a gratifying career as vice president of American Homecare Federation, a company that provides services to patients with blood disorders. He also educates young people about HIV, which he contracted from a blood transfusion in the 1980s — a decade when AIDS killed many of his friends.
“I have severe hemophilia, so I know the challenges I grew up with, and I have a personal relationship with a lot of our patients,” he said. “I can mentor the younger kids and show them that disease does not need to define them; this disease does not have to hold them back, and they can still create great things with their lives.”
Dr. Richard Steingart, medical director of Adult Hematology at Baystate Medical Center, agrees.
“The average lifespan is definitely less than normal, although we’re finding that, with meticulous care, these people are living longer and longer,” he said. “Every ethnicity can get it — black, white, Hispanic, Pacific islanders, Asian, it doesn’t matter — and the incidence is about the same throughout the world.”
People born with hemophilia have little or no ‘clotting factor,’ which is a protein needed for normal blood clotting. Normally, when blood vessels are injured, clotting factor helps platelets — blood-cell fragments that form in the bone marrow — stick together to plug cuts and breaks on the vessels and stop bleeding.
People with hemophilia A — which accounts for about 90% of all hemophilia — are missing, or have low levels of, what’s known as clotting factor 8. The rest, who have hemophilia B, are missing or have low levels of clotting factor 9. Hemophiliacs ‘infuse’ themselves with pharmaceutical clotting factor; while those with a mild version of the disease may infuse only before an operation, dental visit, or potentially risky activity, many with severe hemophilia must infuse as often as every day, to prevent dangerous internal bleeding.
“A lot of different drug companies make a lot of different factors,” Steingart said, but noted that they can cost upwards of $3,000 every other day.” Home-care companies like Zatyrka’s exist partly to help patients navigate and access insurance. Overseas, however, that cost often becomes a dangerous challenge. “The product is so expensive that it’s much harder to treat in third-world countries.”
In this issue, BusinessWest takes a look at an often-misunderstood blood disorder and how those who struggle with it are able to find some measure of normalcy despite the ever-present danger.

Blood Simple
The hazards of hemophilia are clear; patients may bleed for a longer time than others after an injury, and may also bleed internally, especially in the knees, ankles, and elbows — all of which can cause long-term damage to organs, joints, and tissues. With rare exceptions, hemophilia is a male disease — about one in 5,000 boys are born with it — and it’s usually (but not always) inherited genetically.
“About a third of the cases are spontaneous mutations; that’s not an insignificant amount,” Steingart said. “It can show up even in a family with no history of hemophilia at all.”
The lack of clotting factor in severe hemophiliacs, like Zatyrka, is dramatic; people without hemophilia have factor 8 activity of 100%, while it’s often less than 1% in those with severe hemophilia. So, while a mild hemophiliac might need clotting factor infusions only on rare occasions, like before dental surgery, those with severe hemophilia may be constantly at risk of internal bleeding and joint bleeds, which can lead to arthritis, skeletal deformities, and even an inability to walk.
The disease often first presents in a childhood operation, often circumcision; today, children born in families with a history of hemophilia will typically undergo a screening for clotting factor 8, which can then be infused before they are circumcised. Meanwhile, some babies first present for hemophilia in the form of large bruises or welts incurred simply from rolling around a crib.
Although most hemophiliacs can live a relatively normal life, some activities — contact sports, for example — are typically not recommended. “But I have hemophiliacs who go skiing carefully, and swimming is perfectly fine, although diving is probably not a good idea,” Steingart said. “Obviously they don’t play football, and they’re not allowed to be in law enforcement or go into the Army.”
For lower-contact sports and other activities that pose slight risk, hemophiliacs will typically infuse themselves with clotting factor before the activity, “so they can get banged around and not have bleeding problems,” he noted.
“It’s really important to streamline these people into normal activities,” he was quick to add. “They don’t have learning disabilities, and they’re just as smart as everyone else — in fact, they’re probably smarter because they know how to live with this lifelong chronic illness.
“Sometimes their joints can hurt when they do have a bleed, so there’s concern about pain medications and addiction,” Steingart explained, “but most of them take pain medications for a certain amount of time, then get off of them. They’re not drug-seeking addicts.”
Better management of hemophilia — and thus longer life — has led to some ironic problems, he added, like the onset of heart disease and other conditions that strike older people. “How do you do a stent in a person with a blood disorder, who needs a blood thinner when, in fact, their hemophilia is a blood thinner, and it’s not protective? That’s becoming extremely challenging.”

Sad Chapter
Perhaps the biggest challenge for hemophiliacs in recent decades — and easily the most tragic — was the AIDS epidemic that tripled the death rate of the hemophiliac population during the 1980s due to infected blood transfusions, before the medical community fully understood what was happening.
Zatyrka, who lost many childhood friends during those years, feels fortunate to have a career that resonates so personally with him and that allows him to shape other people’s lives for the better, and he has gradually become a public advocate for hemophilia, HIV, and AIDS issues, partnering with a number of local organizations and regularly speaking to young people.
The hemophilia community “was devastated by HIV and AIDS back in the early ’80s; about 90% of severe hemophiliacs contracted HIV,” he said. “I’m HIV-positive, and I do my best to help educate others in the community.”
That includes his co-founding of the AIDS kNOw More Project, an initiative of the AIDS Foundation of Western Mass. that trains young people to educate their peers about HIV and AIDS, around which there’s plenty of misinformation.
“Unfortunately, a stigma still exists around HIV. That drives me nuts,” he said. “And a lot of the stigma comes from uneducated, unknowledgable people.”
Thankfully, the plasma-derived infusions of clotting factor common in the 1980s have been replaced by genetically engineered products that do not require plasma, which has eliminated the risk of AIDS from a transfusion.
In any case — mild, moderate, or severe — patients simply learn to live with the challenges, Steingart said, adding that, typically, “around age 7 or 8, a child learns how to self-infuse with help of mom or dad.”
There’s no cure for hemophilia — although hepatitis patients who receive liver transplants have often been able to generate enough clotting factor 8 in the new liver to eliminate both the hepatitis and hemophilia — but scientists continue to work on ways to improve current treatments.
An increase in the length of time an infusion is effective would be a major breakthrough; currently, it’s only about 12 hours. “What they’re looking for is a long-lasting factor 8,” Steingart said. “Wouldn’t it be cool if people could take a shot once a month rather than taking it every day?”
Until then, patients manage as they always have. Some of them, like Zatyrka, are doing more, working to change perceptions and help others cope.
“Sometimes I have a hard time labeling what I do,” he told BusinessWest. “Is this work, or is it personal? It just means so much to me.”

Joseph Bednar can be reached at [email protected]

Health Care Sections
With STDs, Information Is Often the Key to Prevention

By DR. PATRICIA BAILEY-SARNELLI

Dr. Patricia Bailey-Sarnelli

Dr. Patricia Bailey-Sarnelli

Did you know that nearly 20 million new sexually transmitted diseases — some of the most common being chlamydia, herpes, and gonorrhea — occur in the U.S. each year?
Or that a new Centers for Disease Control and Prevention (CDC) analysis released in March — which included eight common STDs: chlamydia, gonorrhea, hepatitis B virus (HBV), herpes simplex virus type 2 (HSV-2), human immunodeficiency virus (HIV), human papilloma virus (HPV), syphilis, and trichomoniasis — noted that about half of all new infections each year occur among young people ages 15 to 24?
Those numbers, especially among our youth, highlight the critical need for prevention. I see many adolescent girls in my practice, and a part of the problem has to do with their normal adolescent psychological development.
Adolescents go through a phase of magical thinking where they have a sense of invulnerability, that nothing can hurt them. For that reason, they tend to be less consistent about condom use, and that puts them at greater risk. The other part of the problem is their lack of knowledge and general understanding of the risks of STDs. In one study, for example, 25% of urban adolescent females developed an STI (sexually transmitted infection) within one year of first intercourse.
While the terms STD and STI are often used interchangeably, there is a difference, and STI is now being used more often in the public-health sector. The difference can be found in the terminology used to refer to an infection versus disease. You can have an infection spread through sexual contact that may or may not lead to symptoms and a future medical problem, but when it does, the result is a disease. In other words, STDs are preceded by STIs, but not all STIs result in the development of an STD. There is also a belief among some that referring to an infection, rather than a disease, has less of a stigma attached to it and is therefore less embarrassing to talk about.
Also, the CDC cites stigma, inconsistent or incorrect condom use, limited access to healthcare, and a combination of other factors as contributing to higher rates of STDs among teens and young adults.
Despite the challenges remaining, parents and schools are doing a better job about informing young people about sex and its consequences, including discussions about abstinence, reducing their number of sexual partners, and how to correctly use a condom.
The girls that I am seeing now are somewhat better-informed, and most talk about learning about sex in their health class at school. It’s also very important for parents to have a frank discussion with their children about sex and its risks. Literature shows that the results cut across all socioeconomic and racial boundaries, that kids whose parents have spoken with them about sex tend to make better decisions.
When it comes to talking to my young patients about STDs, I tell them that we are all sexual beings, and that the most important part of that is being a responsible sexual being — responsible to themselves, their partners, their family, and their community — and part of that includes using protection against sexually transmitted diseases.
The concern among clinicians is that, while most of these infections are treatable — many are curable — some can result in serious health consequences if left undiagnosed and not treated early. Also, the CDC’s March analysis noted that, while the consequences of untreated STDs are often worse for young women, the annual number of new infections is about the same between women and men.
According to the CDC, four of the STDs included in the analysis are easily treated and cured if diagnosed early: chlamydia, gonorrhea, syphilis, and trichomoniasis.
Because they often have no symptoms, many of these infections go undetected. However, even STDs with no symptoms can seriously affect one’s health. Undiagnosed and untreated chlamydia or gonorrhea can put a woman at increased risk of chronic pelvic pain and life-threatening ectopic pregnancy, and can also increase a woman’s chance of infertility.
But while gonorrhea and chlamydia can be treated with antibiotics and cured, other STDs are lifelong, affecting both the physical and social health of an individual.
HSV-2, HBV, and HIV are lifelong infections that together account for nearly one-quarter of all prevalent infections. HSV-2 can lead to painful chronic infection, miscarriage or premature birth, and fatal infections in newborns. HBV can lead to cirrhosis, a life-threatening liver disease. And HIV damages a person’s immune system over time, increasing an infected person’s susceptibility to a number of diseases. Additionally, nearly 18,000 people in the U.S. die of AIDS each year.
Herpes, which will affect you for the rest of your life, is a very individual disease process. Some will experience a single outbreak, then may go for years without another. Others will have an outbreak every month. As for the psychological and social repercussions, those with herpes must make the responsible decision to tell a new partner and face the consequences of how they will react to the news. This can have enormous consequences and seriously affect one’s ability to connect with others throughout their life.
Also, when you think about sexually transmitted diseases, most people don’t always think of human papillomavirus (HPV), which can cause cervical cancer. HPV, for which there is no treatment, is the second-leading cause of cancer deaths among women worldwide. The virus accounts for the majority of prevalent STDs in the U.S. today, and more than half of sexually active men and women will become infected at some time in their lives.
While there is no cure for HPV infection, there is a vaccine that parents can have administered to their sons and daughters to protect them from certain HPV-related diseases. In fact, the CDC recommends routine vaccinations with Gardasil for boys and girls ages 11 or 12. Gardasil is given as three injections over a six-month period.
Based on information from the gardasil.com website, the vaccine helps protect against four types of HPV. In girls and young women ages 9 to 26, Gardasil helps protect against two types of HPV that cause about 75% of cervical cancer cases, and two more types that cause about 90% of genital warts cases. In boys and young men ages 9 to 26, Gardasil helps protect against approximately 90% of genital warts cases. Gardasil also helps protect girls and young women ages 9 to 26 against approximately 70% of vaginal cancer cases and up to 50% of vulvar cancer cases.
As importantly noted on the website, “Gardasil may not fully protect everyone, nor will it protect against diseases caused by other HPV types or against diseases not caused by HPV. Gardasil does not prevent all types of cervical cancer, so it’s important for women to continue routine cervical cancer screenings.”
In addition to the severe human burden STDs place on individuals, STDs also cost an already-stressed American healthcare system nearly $16 billion in direct medical costs alone, according to CDC figures.
Baystate Medical Center’s two community health clinics — Baystate Brightwood Health Center and Baystate Mason Square Neighborhood Health Center — offer both free testing and treatment of sexually transmitted diseases. STD testing is available Monday through Friday from 8 a.m. to 4 p.m., including rapid HIV testing, as well as testing for gonorrhea, chlamydia, syphilis, and hepatitis C. Nurse practitioner Rebecca Reed also provides exams and treatment at Brightwood Health Center on Tuesday and Mason Square Neighborhood Health Center on Wednesday from 8 a.m. to 4:30 p.m. She is also at Brightwood on Friday from 8 a.m. to noon and at Mason Square from 1 to 4:30 p.m.

Dr. Patricia Bailey-Sarnelli is director of Pediatric and Adolescent Gynecologic Services at Baystate Medical Center.

Health Care Sections
Head Trainer Tom Bourdon Keeps the Falcons Flying

Tom Bourdon

Tom Bourdon (right) says athletic trainers hope for the best but prepare for the worst, knowing they have to be ready for any situation that may arise during a game or practice.

In his first 104 home games with the Springfield Falcons, head athletic trainer Tom Bourdon had never dealt with an on-ice emergency. But all that changed in game 105.

“We always hope for the best and prepare for the worst. That’s the way we approach it. You just never know when there’s going to be an emergency, and Sunday was a prime example of that,” he said a few days after Wade MacLeod collapsed on the ice in a Feb. 17 matchup against visiting Adirondack.

MacLeod had just been checked into the boards late in the second period and was headed to the bench when he suffering an apparent seizure — a situation so frightening that both teams agreed to postpone the remainder of the game. MacLeod’s family later reported that a CT scan discovered a benign mass in his brain.

“We got the best results we could have possibly hoped for in that he was removed from the ice and got the medical attention he needed as quickly as possible,” Bourdon said, emphasizing at the same time that MacLeod’s long-term outlook is still uncertain.

“You just never know — since I’ve been here, we’ve never had an on-ice emergency. That’s not to say this weekend we won’t have another one. You just don’t know, and you always have to be ready. We go through a lot of training, and you hope.”

Most days for Bourdon aren’t nearly as harrowing. As head athletic trainer, he puts in long hours performing a variety of duties for Springfield’s American Hockey League franchise, all aimed at maintaining his players’ health.

“I’m fully in charge of the players’ well-being, from treating their injuries to diagnosing illness — just making sure the players are ready to go on the ice,” he explained. “That includes evaluating them and deciding when there is an injury, deciding what treatments we need to seek, and then seeking those treatments.”

This month, BusinessWest sits down with Bourdon — whose decade-plus of experience with professional hockey teams includes three seasons with the Falcons — to talk about the day-to-day life of a head trainer, and how it melds his passions for sports and medicine in many satisfying ways.

 

Head Games

Bourdon, who had played sports his whole life, was first intrigued by sports medicine after his own injury in middle school. “I broke my leg when I was playing football in eighth grade. Everyone assumes, when you have a bone break, that you’re getting a cast. But the doctor I saw decided not to put me in a cast, and I did my rehab with an athletic trainer.”

After only eight weeks, he was back playing with no side effects. The experience affected him, and he decided he might want to pursue that field as a career. Besides loving sports, he was already interested in medicine, as his mother was a nurse.

“It intrigued me, and it’s a good fit. I get to stay involved in athletics and do something in the medical profession, too,” he explained. After college, he got a job at a physical therapy clinic in Maine. Having interned with the Boston Bruins while in school, he eventually found a position as the trainer of the Lewiston MAINEiacs, a U.S.-based franchise of the Canadian Hockey League that launched in 2003. After seven years there — wrapped around a short stint with the Providence Bruins — he returned to Massachusetts to take the Falcons job in 2010.

Beyond injuries and those rare emergencies, Bourdon maintains conditioning and health-maintenance programs for the players. In recent years, that means a stricter regimen for dealing with head injuries.

“In medicine, things are always evolving — we can always learn better ways to treat things. But the biggest change has been with concussions,” he noted. “It’s scary how much we know now, and it’s scarier how much we still have to learn. This is just the tip of the iceberg, what we’re finding out compared to what we knew 20 years ago.

“We’re better equipped to handle concussions, better equipped to return our players back to playing in a safer manner,” he continued. “I think players’ education is much better now — they understand what’s going to happen when they have a concussion, and as tough as it is for them, they need to understand that they need to tell us what’s going on.”

That’s because it’s not natural for athletes — especially those in a rough sport like hockey — to admit they don’t feel right after sustaining a blow to the head. But a flood of new data — as well as the examples of Junior Seau (the former Patriots player who died from a self-inflicted gunshot wound last summer) and other high-profile athletes who have struggled in various ways with brain issues since leaving their sports — have changed that equation.

“They know we’re here for them, and not just because they’re a Falcons player,” Bourdon said. “We don’t just worry about the next game or next season, but the effects a concussion could have on their life down the road.”

The challenge for a trainer, he said, is that, “when you have a concussion, you look normal; you don’t seem injured, and people don’t understand what’s happening inside your head. If you were walking around with a sling or a crutch, people would know you’re hurt. But we don’t wrap your head.”

The team follows the ImPACT regimen so common today in sports at all levels, from high school through professional leagues. After a concussion, a player must be asymptomatic for a day or two before being allowed any activity at all. From there, if the player continues to show no symptoms, he’s allowed to engage in more activity each day — stationary bike riding, then free skating, then skating in practice with no contact, then full practice, and eventually game play, all the while being monitored using a computerized test that measures responses to stimuli against his established baseline. The whole process can take a week or more.

“There’s no bend to it, no cutting out steps,” Bourdon said. “We really adhere to it, and it’s for the players’ safety. I tell my players, ‘I take no joy in telling you that you can’t play.’ We’re not here to keep them from playing, but to keep them healthy when they are playing.

“I can identify with them; I played baseball in college, and I never wanted to hear that I shouldn’t be playing,” he added. “But we present them with the facts and tell them what they need to do next.”

 

Heading into Overtime

Beyond concussions, there’s no one injury that pops up more often than others; rather, injuries tend to cycle, and a team could undergo a rash of knee injuries, hand injuries, sprains, or pulls. Bourdon said part of his job is educating the players in caring for their own bodies to minimize the risk of injury. “We preach to our players good nutrition, hydration, stretching and cooling down — all things that are important to maintaining their health.”

Bourdon’s days are anything but short. Practice days begin around 6:30 a.m., and shortly after, players begin to filter in at staggered times, depending on who’s active, injured, or at various stages of rehab. Bourdon watches the mid-morning practice session — which generally lasts about 75 minutes — then conducts post-practice treatments with the players, who are typically out the door by early afternoon.

For Bourdon, however, those tasks are followed up by his administrative duties, including touching base with doctors and the Falcons front office — as well as staying in the loop with the Columbus Blue Jackets, the team’s NHL parent, which can call up players at any time and need to know their status.

“Every day an e-mail goes out updating management, the coaching staff, and medical staff as to what’s going on with everybody, and what their status is for the next day,” he explained. After cleaning down the training area and managing inventory, his day typically ends around 3:30 or 4.

Game days are much longer; the first part of the day is much like a practice day, except that Bourdon will give himself some down time between 2 and 3:30. Around 4, the players will start to filter in, “and we make sure those guys have whatever they need to be ready to go, whether that’s stretching or some kind of therapeutic modality, taping them, getting them ready to go on the ice that night.” After the 7 p.m. tilt ends, typically around 9:15 or 9:30, he puts in the same administrative and cleanup duties as on a practice day, and goes home around 10:30 — about a 14-hour workday in all.

As a key member of the bench during the game, “I watch for injuries — and I’m not always watching the play,” he said. “Things may be happening behind the play; maybe a player got hit and is getting up slowly. So I might not be watching the puck going down the ice, but watching another player.”

As for emergency situations like MacLeod’s collapse, the key is simply to be ready to handle something that might not come up for many years. “We make sure the medical staff covering the game that night understand the emergency protocols,” he said, again stressing the importance of communication among various parties. “There are a lot of behind-the-scenes things that seem taken for granted, but it’s all about the details. You have to pay attention to the details on this job.”

 

Love of the Game

Bourdon told BusinessWest he’s pleased to have a job where the challenges change daily.

“Honestly, I love the fact that the job’s not the same every day,” he said. “You never know what’s going to happen on any given day. We have our routines, but within that routine, we’re always adapting to changes. That makes it exciting.”

But he’s also gratified when he sees the results of his work, when he sees a player return to the ice after an injury and perform well. “When someone’s been out for six weeks and the first game back scores a goal or has a good game, for us there’s a sense of pride.

“That,” he concluded, “is what I enjoy most about my job — helping players get back to doing what they love.”

 

Joseph Bednar can be reached at [email protected]

Health Care Sections
Studies Show Acupuncture Helps Treat a Broad Range of Conditions

Dr. Shewee-Tian Chou

As a child, Dr. Shewee-Tian Chou recalls, he watched his father treat people using acupuncture and thought he had magical powers.

Emily Angotti had never heard of the Chinese method of healing known as acupuncture until her daughter came home from medical school and told her about it.

But it has made a remarkable difference in her life and is a modality she has turned to repeatedly for pain and other problems.

“I would probably be in a wheelchair without acupuncture; I was looking for anything that would help me when I found it,” she said, adding that she has rheumatoid arthritis, fibromyalgia, lung cancer, and severe allergies. “I don’t know how it works, but for me it has been a miracle.”

Angotti said her family doctor sent her for treatments when physical therapy failed to relieve the pain she was suffering as a result of from fibromyalgia. “It was so bad that I couldn’t walk,” she told BusinessWest. Acupuncture has also helped with stabbing pain that occurred after she had a portion of a lung removed and medication made her so nauseous she couldn’t continue taking it. “It helped me breathe better and has also helped my allergies.”

Marianne Mahoney and her family have also benefited from acupuncture.

“I began getting it for my daughter when she was 7 years old,” she said, explaining that she was uncomfortable with the idea of putting the girl on steroids for a long period of time for an autoimmune disease. “I did a lot of research and was concerned about the side effects of the drug. And I have no doubt that Chinese medicine was one of the factors in her slow, but profound, recovery.”

She also utilized acupuncture herself after a variety of surgeries that resulted in pain and complications. “It works on all aspects of your health and well-being. Every time I have acupuncture, I get a deep sense of immediate relaxation, and it has provided me with enormous relief over a period of time,” she said.

Angotti and Mahoney are among millions of people who have turned to acupuncture for help in relieving pain and curing conditions that range from insomnia to infertility, headaches, asthma, depression, anxiety, and more.

The treatment, as defined by the National Center for Complementary and Alternative Medicine, is a procedure that stimulates points on the body through a variety of techniques. The one most often scientifically studied involves penetrating the skin with thin, solid, metallic needles that are manipulated by the acupuncturist or by electrical stimulation.

“It’s a great treatment for a variety of conditions and has been used for more than 5,000 years,” said licensed acupuncturist and nationally certified herbalist Susana Byers, who has offices in Easthampton and Amherst. “The great strength of Chinese medicine is that it is truly holistic, since it treats the connection of body, mind, and spirit as one. In fact the World Health Organization recognizes acupuncture as effective for treating allergies, depression, dysmenorrhea, headache, knee pain, low back pain, adverse reactions to radiation and chemotherapy, as well as a host of other conditions.”

Dr. Shewee-Tian Chou, of the Acupuncture and General Medicine Center in Springfield, is a licensed physician in China as well as the U.S. He practices Eastern and Western medicine, incorporating Chinese herbs and other modalities into the treatment plan as needed.

He began studying acupuncture in China 57 years ago under his father’s tutelage. “When I was 7 years old, I saw my father help people in wheelchairs and thought he had magical powers,” he told BusinessWest, adding that he spent years studying Chinese medicine, became a physician in the Republic of China, then went on to study Western medicine to gain modern scientific knowledge, and finally became a board-registered physician in Massachusetts.

“In Oriental medicine, a disease is viewed as the result of an imbalance in the body,” Chou said; practitioners of acupuncture aim to correct that imbalance.

The needles used in the treatment are usually about the size of a cat’s whisker, so there is little if any pain and no bruising. They typically remain in place for 15 to 30 minutes. In ancient times, they were manipulated by hand, but today, battery-operated electrical stimulation is used, which is consistent and comfortable.

“But the needles must pierce the skin to a certain depth and in a certain direction,” Chou explained. “It is not a simple procedure that someone educated in Western medicine can learn in a short period of time.”

And success depends on the severity of the problem. “The longer someone waits, the longer it will take to fix,” he said.

 

Inner Workings

Although many people turn to acupuncture to resolve a specific issue, others use it to maintain their health and well-being.

“There are many diseases and physiological dysfunctions that do not yet amount to a disease that can be cured by acupuncture,” said Chou, explaining that sometimes people go to their doctor with vague symptoms and leave without a diagnosis, but still don’t feel right.

Byers concurs. “Acupuncturists are interested in your diet, your lifestyle, and all aspects of your life as it impacts your health,” she said. “A lot of people feel there is something wrong with them, yet nothing shows up in tests, so their doctors send them home. But they still don’t feel right. And acupuncture is really good at putting the body back in balance by improving the immune system.”

The cost of private sessions typically range from $60 to $125, although there are low-cost clinics at which treatments cost $20 to $40. And some acupuncturists use a sliding scale.

“People generally feel somewhat better after one treatment, but to fully resolve a problem may take a number of treatments,” Byers said.

Chou said his working definition of acupuncture is that it “works to normalize physiological functions by balancing the chemicals in the body.”

Chinese medicine says energy comes from chemicals, and energy runs through meridians in the body. “Even water has a chemical formula,” he said, adding that chemicals are used in every bodily function, including digestion.

Chou was the director of a hospital in China that employed both types of medicine, and he treated people from all over the world, including a doctor from Florida who wanted to learn acupuncture. He also trained many practitioners in the discipline.

He said the modality was first discovered about 5,000 years ago when a cave dweller’s illness was cured due to pressure from pointed objects on certain parts of the body. “And experience taught man to apply pointed bamboo, wooden sticks, or rocks to certain locations on the body to treat illnesses. Gradually, Chinese physicians discovered the nerve centers strategically located at certain vital points of the body, Chou noted.

But although acupuncture is an ancient form of medicine, it did not become popular in the U.S. until 1972, when President Nixon’s secretary of State, Henry Kissinger, traveled to China accompanied by a journalist for the New York Times. The journalist had an emergency appendectomy in a Chinese hospital, and doctors there used acupuncture to relieve his pain.

However, Byers says many misconceptions exist about the treatment. “Some people think it’s nothing more than a placebo. It’s very hard to prove how it works in a way that Western medicine accepts. But there are many scientific studies that show that it is effective,” she said.

Byers offered more insight in how acupuncture works. She explained that, when life energy, known in Chinese medicine as ‘qi’ (pronounced ‘chee’), doesn’t move smoothly through the body, it is due to a blockage in the meridian. For example, when a person has neck or shoulder pain and feels a knot or hard spot, it is the result of the blockage of energy.

Chou said treatments enhance the immune system by causing the brain to release positive chemicals. “Acupuncture stimulates the skin, and the nerve endings transmit the sensation through the spine to the brain. Then the brain discharges chemicals, including endorphins, hormones, and others which the body needs to fight the disease and increase the immune system. The brain produces chemicals instead of the person having to take medication.”

The goal is holistic treatment of the entire person, since a blockage can result in a variety of symptoms or conditions that can affect people in different ways.

“We treat the person, not the disease. For example, if someone is suffering from insomnia, it may be due to a variety of reasons,” said Byers, adding that causes could range from constipation to worry or anxiety.

“There is not one treatment strategy for any Western disease,” she told BusinessWest. “But acupuncture is very good at helping people minimize sickness, such as the effects of colds and allergies. We can help to build their immune system or treat their fever and sore throat. And if they have a cold, they may also have neck or shoulder pain or a runny nose, and we can treat that, too.”

Chou said acupuncture is effective in treating many problems at once, as some are secondary. It works because “we are trying to normalize physiological functions. And different combinations lead the brain to produce different chemicals.”

Scientific studies show acupuncture relieves pain in the body by releasing natural painkillers or opiates, Byers said. But depression often occurs in conjunction with chronic pain.

Mahoney agrees. “When you are ill or injured and have a bad outcome, you get depressed,” she said. “And our bodies can’t be well if we are emotionally stressed. But acupuncture doesn’t separate the two. Acupuncturists look at your whole system, and the way it works is amazing.”

Both Chou and Byers cited cases of people with a wide range of conditions they have helped. Byers recalled, from her early training, conducting an externship at a Veterans’ Administration hospital where acupuncture was used to treat patients who could no longer take pain medication due to damage to their kidneys. “It provided them with the only pain relief they could get,” she said. “And there is a cumulative effect with treatments. The more you have, the longer the relief lasts.”

 

Health Maintenance

Byers often combines acupuncture with Chinese herbal medicine, which she says is quite safe as long as the herbs are obtained from a licensed, certified practitioner.

“Many people use acupuncture as a last resort,” she said. “But it is more effective if people seek treatment earlier. It is very valuable and is a complementary form of treatment that can be used in combination with Western medicine.”

Mahoney agrees. “Acupuncture is phenomenal,” she said. “I have a smile on my face after a treatment. And we are lucky to have many skilled acupuncturists in Western Mass.”

Health Care Sections
The Art and Science of Hypnosis Can Benefit a Variety of People

Ann Buscemi

Ann Buscemi says it’s important to understand what’s important to each patient before crafting an individualized strategy for hypnosis.

Ann Buscemi says it’s important to understand what’s important to each patient before crafting an individualized strategy for hypnosis.
[/caption]Hypnosis, Marlene Quinlan says, is not a loss of consciousness, or a ceding of free will. And it’s not a party trick.

“I always make sure people I’m working with understand that I am their guide,” said Quinlan, an oncology social worker at the D’Amour Center for Cancer Care in Springfield, who uses hypnosis with some patients who are struggling with anxiety and other aspects of a cancer diagnosis. “I’m not doing anything to them; they’re allowing themselves to enter this hypnotic trance state. It’s a skill they actually have inside them. My goal is to help them do that on their own.”

Some patients begin the process with skepticism, she added, spurred partly by distorted perceptions about hypnosis from the entertainment world. “I always explain what hypnosis is and what it isn’t. It won’t make you undress or cluck like a chicken … unless, of course, you want to cluck like a chicken.”

In short, it’s not a loss of control, she explained. Quite the opposite, hypnosis done for the right reasons is empowering. “Basically, people feel like they possess a tool inside of them that allows them to feel like they can deal with the stress in their life. People are most stressed when they feel like there’s nothing they can do about their situation; they want a tool like this to manage their stress.”

Ann Buscemi, a certified hypnotherapist and educator who spends part of her time working with patients at Cooley Dickinson Hospital, conducts a program there for pregnant women called Deep Relaxation for Pregnancy, Birth, and Beyond.

“It’s not centered on the outcome being a guaranteed, non-medicated birth, but focuses on confidence and feeling comfortable and calm, regardless of what comes your way in birth, because birth is always unique and different,” she told BusinessWest.

“What I’ve found, from many, many years working with pregnant women, is that, if I can help them find a quiet space within, and allow their body to do the work it knows how to do, everyone will be in a better place; it’s better for the woman, better for the partner, and better for the baby.”

Women in the program learn to enter a hypnotic state in order to relax and regulate their breathing, but the process is also beneficial for women preparing for a scheduled cesarean birth, she said, to deal with the anxiety of what is, in fact, major surgery.

“We really focus on the relaxation piece,” said Buscemi, who also teaches a class for nurse midwives on the basics of childbirth education. “The feedback I get from the midwifery center is that it really makes a difference.”

For this month’s focus on healthcare, BusinessWest explores what hypnosis in a medical setting involves, and why many patients grappling with fear, anxiety, pain, and other issues find the process liberating — and healing.

 

Free Your Mind

Buscemi, like Quinlan, emphasizes the free-will element of hypnosis, reiterating that it’s most effective on individuals who are open to it and understand what it is.

“A lot of people fear it because, so often, we hear about a guy at the Hu Ke Lau bringing people up on stage, and they start quacking like a duck. If someone wants that to happen, it will happen; it’s not mind control. You can’t make somebody do anything against who they are, religiously or ethically.”

So, how does hypnosis work?

“It’s getting to that subconscious space where I can plant a seed for positive results,” Buscemi explained. “It’s sort of moving beyond your fears and anxiety and introducing positive words, positive images, deep relaxation, lower blood pressure, and, again, better outcomes.

Much of the success of hypnosis is improved confidence and attitude, she explained, adding that each individual experiences the specifics differently. For example, in learning to breathe during labor, “you can think of your breath in any way you wish. Some women see their breath as fueling their body, so their body can do the work. Other women see it as a parachute above their body; they see it as a means of staying outside their body and therefore not getting in the way. … I never say, ‘you must do it this way.’”

Buscemi said she tries to bring a sense of humor to the process as well, again, to decrease the tension of impending childbirth. “Having a baby can be incredibly scary for people, and I try to help them find that quiet space.”

As an oncology social worker, Quinlan’s job entails a number of functions. “Hypnosis is a small part of what I do on a regular basis,” she said, “and not every patient I work with would necessarily want to think about hypnosis as something helpful to them. For those who are interested, I would discuss it with them as an option in the bigger picture of helping them cope with cancer.

“There are, for sure, situations that come up where I have been able to use hypnosis,” she added. “Essentially, the first step is working with the patient to establish what their goals are. I’m very goal-oriented.”

Marlene Quinlan

Marlene Quinlan says pain relief isn’t one of her goals in treating cancer patients, although some find they’re able to manage their pain more effectively afterward.

In addition to helping them reduce anxiety, Quinlan has worked with cancer patients on smoking cessation — obviously, an important factor in helping the body fight off the disease. But, she said, there first needs to be a deeply felt desire to make that life change — or any change for which hypnosis might help.

“Hypnosis won’t make you do anything you don’t want to do,” Quinlan said. “That’s why it’s important, when doing an assessment, to find out what their goals really are, if it’s what they really want. If I receive a referral to help someone quit smoking, and during my assessment, I hear them saying, in so many words, that they’re not really interested in quitting, that can be an obstacle.”

Therefore, some patients need more conventional counseling first to get to the bottom of what they really want, or to assure themselves that they really want what hypnosis could help them achieve.

“It’s not a magic pill,” she told BusinessWest. “And one session of hypnosis isn’t going to cure all your ills, although many people think of it that way.” In fact, sometimes the first session doesn’t involve hypnosis at all, but is a thorough assessment of the patient’s mindset and goals.

 

The Rest Will Follow

Buscemi also conducts hypnotherapy for cancer patients, through the Cancer Connection in Northampton.

“It’s really taking time with people who are looking at surgery or chemotherapy or radiation therapy, and focusing on healing,” she explained. “It’s really challenging to be faced with a diagnosis — a life-threatening diagnosis — and then everything you have to do to get through it.

“I’ve found, in working with people at the Cancer Connection, that they haven’t thought about being OK,” she continued. “I help them come up with visualization and focus, seeing themselves as healed, helping them through their fear, anxiety, and stress, using the things going on around them and within them to help them promote more relaxation.”

While different patients call for different techniques, Buscemi said she often uses a “color healing” form of visualization, where chemotherapy patients picture the liquids going into their bodies as a healing color. Similarly, “I’ve written a script about powerful beams of light for working with a man with prostate cancer.”

Every case is different, she said. “I take the time to find out what they love. Do they love the beach? Then let’s use [images of] waves, waves of healing. You have to make it something they can relate to, never something I think they should be thinking about. I think that’s important; I don’t know what’s going to work for people, so it’s a discovery time for me.”

Buscemi also creates a CD that patients can use at home — before, during, or after their treatments — to practice self-hypnosis as an ongoing tool. “That’s important, that they have this tool to listen to anytime,” she said. “I’m not just planting a seed, but really pressing it in and making sure it’s well-sown in their mind.”

Anytime a patient can relax — whether it’s a woman giving birth, a patient prepping for surgery, or someone sitting in a dentist’s chair — it makes life easier for everyone, including the care provider, Buscemi said. And often, when hypnosis is conducted in conjunction with serious procedures, “you need less anesthesia, you leave the hospital earlier, you need less pain medication. That mind-body piece is significant, and it makes a difference.”

The concept of seeking hypnosis before a surgical procedure has been promoted by Massachusetts psychotherapist Peggy Huddleston, who offers a course to healthcare providers called “Prepare for Surgery, Heal Faster.”

Huddleston’s process involves using visualization to turn surgery worries into positive, healing imagery; listening to her relaxation CD or mp3; asking family and friends to wrap the patient in a “blanket of love” before surgery; and using “healing statements” during and after surgery that, she claims, reduce the need for pain medication in most patients.

“You’re planting a suggestion that the surgery will go well, and recovery will go well,” Quinlan said. “Entering that procedure feeling really positive about the outcome can help you.”

Hypnosis can also help them with ancillary stressors for cancer patients, she added. “Some people have difficulty sleeping, and cancer does create anxiety, which causes difficulty sleeping. If I can teach them how to relax and go into a trance state at bedtime, they’ll sleep better” — and, in circular fashion, reduce the stress that caused the sleeplessness to begin with.

 

Peace of the Action

Some hypnotherapists use the process for pain relief, but Quinlan is careful with how she frames that idea.

“I never say to somebody, ‘if you see me and we do hypnosis, it will help you with your pain,’” she told BusinessWest. “But a couple of my patients have had pain issues, and they’ve actually been able, as a side effect of hypnosis, to feel like their pain has improved. I think they’re able to relax, and there’s less tension in their bodies, and therefore they’ve felt some relief from their pain, but I don’t promote that as a substitute for whatever pain management is being promoted by their doctors.”

She also stressed that hypnosis is not a cure-all, and is generally undertaken in tandem with other treatment modalities.

“Often, in conjunction with hypnosis, we’re also doing counseling around what they’re thinking and feeling, and somehow, the combination of these things helps them reframe their thoughts on the situation.

“If you’re focusing on your fears,” she added, “you’re going to have anxiety. But if you’re finding a way to distract yourself and not always be focused on your fears, and having some mastery over your stress, I think I can help you get into a better place emotionally.”

Buscemi says her work is gratifying on a number of levels.

“I know this works; I know it makes a difference,” she said, but she’s still thrilled when patients tell her the process has helped them in some way, and honored that she can be a part of helping them through events both happy — the birth of a child — and traumatic, like cancer.

“That’s a gift to me,” she said. “It reminds me how precious life is.”

 

Joseph Bednar can be reached at [email protected]

Health Care Sections
Baystate’s New ED Is Focused on the Patient Experience

Ann Maynard

Ann Maynard says the new emergency department at Baystate Medical Center was designed with the patient experience in mind.

Ann Maynard acknowledged that visitors to Baystate Medical Center’s new, 73,000-square-foot emergency department will likely spend less time there, on average, than they would in the 17,000-square-foot facility it is replacing.

But getting patients seen, treated, and back out the door in good order is not the overriding mission of the new ED — although that’s certainly a big part of it, said Maynard, a registered nurse and director of Emergency Services for Baystate.

Instead, overall patient satisfaction is the guiding principal behind every facet of the new facility — from the colors on the walls to the sheltered ambulance bays; from the private rooms (each with their own sink and supplies) that replace bays with sliding curtains in the old ED, to a more comprehensive triage system.

“We’ve focused on comfort and privacy as much as expediency,” said Maynard, stressing repeatedly that so-called wait times will be improved. “This is not about time, but what’s happening while you’re waiting. Now, you’ll be in a private room with your family, and not in a hallway where people have to move your stretcher to get to a sink.”

Maynard made these observations and many others as she gave BusinessWest a tour of the expansive, $45 million ED, which officially opened its doors on Dec. 3.

Part of what was known before it was built as the Hospital of the Future, the ED was christened at an elaborate grand opening on Nov. 30 that was attended by more than 200 people and featured comments from Maynard; Baystate President and CEO Mark Tolosky; Richard Steele, chairman of the Baystate board of directors; and Niels Rathlev, chairman of Emergency Medicine for the system.

Among the many common threads among those speeches were the phrase ‘state of the art,’ the clear need for such a facility within the community, and the fact that the new ED came about through exhaustive research and the feedback of not only who will work in this unit, but those who will be treated there.

This point was stressed repeatedly by Maynard as she took BusinessWest through the new ED’s six ‘pods,’ waiting rooms, and other facilities a few days before the unit opened its doors.

“When we started this project, there were some guiding principles,” she said. “When we made decisions, we made them looking through the patient’s eyes and the staff’s eyes. And we always went back to patient safety — with each decision we made, we started with, ‘how will this affect our patients?’”

And this philosophy helps explain everything from the tiny, low-to-the-ground toilets that sit beside standard units in the pediatric pod, to the laptops in the children’s waiting room, to an expedited registration process.

For this issue and its focus on healthcare, BusinessWest takes readers on their own tour of the facility, in a figurative sense, and explains the many thought processes behind its design and operating model.

Space Exploration

The pediatric pod at the new ED

The pediatric pod at the new ED has its own entrance, triage area, look, and feel.

Maynard said the new ED was originally scheduled to be a big part of phase 2 of the Hospital of the Future, but was eventually moved into what she called the “fast lane” because of the basic inadequacy of the facility it has replaced.

The now-former ER, last updated in 1985, was originally designed to treat roughly 60,000 patients a year. In recent years, however, it was administering services to roughly twice that volume, and with obvious negative impact on overall patient experience.

“Just that constraint alone needed to be fixed,” she said, referring to the ED’s footprint. “We were really limited by the space we were in.”

The new ED is not merely almost four times larger than the old one in terms of square footage, said Maynard, noting that, in addition to more room — 94 private rooms compared to 48 bays — it has a design and individual components chosen to both create efficiencies and improve the overall experience for patients and family members.

And as she talked about how it all came together, Maynard said those designing and building the new ER took the simple yet effective approach of putting themselves in the shoes of both the ED staff member and the patient, whether that individual was 4 or 94.

“We’ve had family-advisory groups that we’ve met with and had discussions with about their visit with us and their perception of the experience,” said Maynard, adding that those perceptions, perhaps as much or even more than the actual care administered, played into how the new facility was designed. “People think things like, ‘does anyone know I’m here?’ and ‘does anyone care that I’m here?’

“We save lives every day in this emergency department,” she continued. “And those people send us thank-you notes. It’s the patients who wait for five or six hours that became frustrated because of the  process that we had in place.”

The new ED was designed, in essence, to make such questions, and such frustrations, relics of the past, she said, adding that she was part of a large team that visited other emergency departments, conducted extensive research, and asked myriad questions of patients and staff to design a facility that will serve the system and the region for decades to come.

That team included ED staff and leadership, the architect firm hired to design the facility (Boston-based Steffian Bradley, which also designed the MassMutual Wing, another part of phase 1), and others within the system. This group visited other ERs of comparative size to Baystate, which is the second-largest facility in the state.

Those visits, and the answers to the questions put to staff, patients, and family, helped inspire a design and operating system that Maynard believes will address those issues of comfort, privacy, and expediency.

 

The Lights Fantastic

The feedback Maynard described has led to what she considers some vast improvements over the old emergency facilities.

And perhaps the most visible example is the pediatric pod, with its Disney-inspired characters on the walls in the waiting area, bright colors, counters shaped like lilypads, and even a strobe-light effect in the imaging room, designed to take the patient’s mind off what they’re going through.

Such features, in addition to the dedicated entrance, waiting room, and triage area, make sense on a number of levels, said Maynard, adding quickly that young children are not adults, nor should be treated like them — or near them — in the emergency department.

“Children should not have to compete for the adult resources or with the adult resources,” she explained. “Meanwhile, parents don’t want want to have their children exposed to what we see in the adult pods.”

The children’s waiting area has a reading area and computers, and each private room in that pod has a television set, she continued, adding that all of these features are designed to help make what is usually a traumatic experience for young people less so.

In their own way, each of the other pods — designated by letters and designed for various levels of emergencies — embodies that basic philosophy of the children’s unit, meaning a patient-focused approach.

The private rooms are good examples, she said, adding that, in addition to a sink — there were only 14 sinks total in the old ER — each one has its own supplies, chairs for family members, and adequate privacy. What’s more, staff members in each pod face these private rooms, where in the old ED, they had their backs essentially turned to patients.

“If you’re a patient and you’re on one of these stretchers, I [the attending nurse] have a computer I can do my documentation with, a monitor … all the supplies and equipment I need to take care of the patient are right here in this room,” she said while taking BusinessWest into one of the units in Pod B. “This makes things much more efficient when it comes to time — I no longer have to leave the room to get anything; it’s already here.”

The supply carts in each room, she went on, are stocked to handle the needs of four or five patients, which is about how many times a room will be turned over each day, saving more time for those attending to patients.

And these are just some of the elements that should enable the new ER to create quicker, as well as better, stays for the patients, said Maynard, adding that several measures and design features will likely improve wait times.

“From the minute the patient walks in the door, the focus is on how we get the patient to the doctor to start the treatment as quickly and safely as possible,” she said, adding that this process starts with triage, or, to be more specific, streamlining that process.

At Baystate’s new ED, triage and registration (known as ‘quick reg’) are essentially combined, with a nurse handling both duties, said Maynard, adding that treatment essentially begins at the point of triage.

Meanwhile, nurses can also handle protocol orders — blood draws, urine samples, and other matters — so that, by the time a patient sees a doctor, results from those tests are back.

As she talked about the improved triage system, she referenced something known as the emergency services index (ESI), which rates patients’ situations on a scale of 1 to 5.

That highest number might be assigned to someone with a minor rash, she explained, while a 1 would be an individual “with the potential of dying,” a patient with severe trauma, for example, or one going into cardiac arrest.

The pods in the adult portion of the new ED are arranged to treat people at various spots on the ESI spectrum, she explained, adding that, in the old ER, there was far less segregation, and therefore less efficiency.

 

To the Future

Maynard told BusinessWest that the new ED will not magically reduce the waits in the ER from four or five hours down to one or two.

It will still take time to properly and safely administer care, she stressed repeatedly, and the new facilities were designed to create a better, more efficient, more patient-friendly environment in which that can happen.

All this is certainly worth celebrating, and that’s exactly what the Baystate community did on Nov. 30.

 

George O’Brien can be reached at [email protected]

Health Care Sections
Local Author Provides Insight into Asperger’s and Autism Spectrum Disorder

John Robison

In different ways, John Robison’s three books, challenge people’s assumptions about living with Asperger’s.

When John Elder Robison was a child, he thought he was “defective.”

Other children didn’t like him, and despite his best efforts, he couldn’t master social skills or figure out how to respond when people talked to him.

Robison failed continuously in school, wouldn’t make eye contact with anyone, and blurted out inappropriate responses to conversation, such as the time he cracked a grin when his mother was told about a child who had been killed. His parents were concerned and took him to several mental-health professionals who labeled him as “lazy, angry, or a social deviant,” and said he might have to be institutionalized if his behavior continued.

But Robison wasn’t malicious. He was simply different due to Asperger’s syndrome, an autism spectrum disorder characterized by restricted and repetitive patterns of behavior and significant difficulty with social interaction.

At the time, not much was known about the condition, so Robison suffered continuous shame and ostracism. “For my first 40 years, I was unaware that I had Asperger’s. I knew I was different, but I didn’t know why, and that lack of knowledge suffused me with a feeling of inferiority that permeated and poisoned my life,” he said. “Those feelings handicapped and hampered me in countless ways.”

Robison dropped out of high school and left home at age 16. At that point, a combination of luck and his savant-like “differences,” which were indeed rare gifts, led to work with famous musicians, including Pink Floyd and KISS. A professor had introduced him to electrical engineering, and the self-taught genius worked around the clock, creating revolutionary electronic breakthroughs for the industry that forever changed the world of music, including custom guitars with fiery smoke bombs inside.

Today, Robison is the author of the New York Times bestseller Look Me in the Eye, which chronicles his life growing up, and Be Different, which is filled with practical advice for “Aspergians, Misfits, Families and Teachers.”

A third book, expected to hit stores in March, is titled Raising Cubby, and is a memoir of Robison’s unconventional relationship with his son, who also was born with Asperger’s.

“It’s a unique story of parenting,” Robison told BusinessWest, explaining that he felt compelled to write it because the majority of books about raising kids who are “different” are about “heroic moms with disabled kids,” which he deemed depressing.

“I thought there should be something entertaining and hopeful, as real stories serve a powerful social purpose,” he said. “My book about my son Cubby celebrates being unique.”

In addition to owning J.E. Robison Service in Springfield, which restores and services European luxury cars, the Amherst resident and author is a strong advocate for people with autism and neurological differences. He is involved with autism research and therapy programs at Harvard’s Beth Israel Deaconess Hospital and Massachusetts General Hospital, sits on the science and treatment boards of the nonprofit organization Autism Speaks, and serves on the Interagency Autism Coordinating Committee, which makes strategic plans that become the blueprint for treating autism in federal agencies including the National Institute for Health and the Centers for Disease Control and Prevention.

Robison also gives 30 to 40 talks each year at a wide variety of international medical centers and conferences, ranging from Massachusetts General to Mount Sinai Hospital to Baystate Medical Center’s Child Psychiatry Conference in Springfield. Last year he spoke in Australia, and this month he will lecture at the most prestigious medical schools in Italy about Asperger’s, autism, “and how we think.”

His mission is clear. “I want to show young people, parents and teachers that kids who are different bring something unique to the world and can grow up to be OK,” he said. “Sometimes people talk about autism like it’s a disease, but the world needs us. If wasn’t for autistic people, we would still be in caves. It’s people like me who invent things and drive the world forward.”

 

Targeted Focus

Robison said the newest Diagnostic and Statistical Manual of Mental Disorders will be published next year, and it will replace about 40 distinct conditions with the umbrella diagnosis of ‘autism spectrum disorder.’

The change has generated tremendous controversy, as people fear if they lose their diagnosis, their insurance companies could cancel or withhold services. To ensure this doesn’t occur, a number of validation studies are being conducted, including one at Baystate Medical Center.

Robison says evidence from these studies shows the new criteria not only includes the vast majority of young people with prior diagnoses, but also picks up adults with other diagnoses who had not been identified with the disorder. This is important, since people who are not properly diagnosed may assume they are “defective,” which leads to poor self-esteem, he continued.

In addition, a diagnosis can give people an understanding of what they are failing to do that other people expect. “It can be an important step in making adaptive changes and allowing people to get along better in the world,” Robison said, adding that his success “is relatively unusual and was facilitated by being different.”

For example, his auto-repair facility came about due to his childhood fixation with Land Rovers. “Today, a fixation like this would be seen as a disability. But if someone starts a business related to what they are focused on, there may not be anyone else in the world who knows as much about the topic,” he explained.

Autism affects about 1% of the population and is usually seen as a significant disadvantage. But Robison said taking a different viewpoint can lead someone to find answers to seemingly unsolvable problems. “Since 98% of people think the same way, the 1% with autism may see an obvious answer to a problem that is totally invisible to everyone else,” he told BusinessWest.

In fact, approaching a problem from a different mindset can result in revelations and insights. “If you have different wiring in your brain, you can approach things in a unique manner. You don’t need to be smarter than everyone who came before you; you just need to have a different vision,” he said.

Robison used this gift when he worked for the music industry, and said it allowed him to envision and create things no one had ever seen or heard of before. It also led to success in his car-restoration business, and the vehicles he has worked on have been featured on magazine covers. “And it has proved true in my writing. People say my stories are unique, not because they are literary masterpieces, but because things that are obvious to me due to my differences are things other people have not seen before.”

His talents include professional photography, and he has captured images used by publicists in many venues because they are unique. For example, during this year’s circus at the Big E, he climbed a 50-foot pole and braced himself against a tower connected to a high wire to get close-ups of aerial performers. Then he went inside the lion’s cage to photograph the beasts jumping through rings of fire.

“Autistic people are often driven to be the best at what they do,” he said.

 

Uncommon Struggles

Still, life is not easy for people who are different. “Children are often bullied and ridiculed, which can be frightening for parents as they worry about whether their children will ever be able to live independently,” he said. “I feel my stories show these children, as well as adults and teachers, that it is possible for them to succeed and do better than other people.”

However, that can only occur if the person’s ability to hone in on a topic is directed toward something that can lead to career success, which he says does not include playing video games.

“In many instances, children get fixated on things that don’t have commercial value and don’t offer a career path,” Robison said. “Many autistic children immerse themselves in something, and their parents think the behavior is unhealthy. If it’s a dead end, it may be a problem. But rather than suppress the fixation, if parents can redirect the child to something that can have a productive outcome, it may be the best thing they can do.”

However, this can mean thinking outside the box. “If someone is fascinated with cockroaches, they may be seen as a freak at age 15, but later in life companies like Orkin may pay them a lot of money if the person becomes a world expert,” he said, referring to the large, national pest-control company.

In his case, Robison’s interests aligned with people who wanted to hire him, and although he never took a formal educational course in the areas of his success, his intense interest resulted in “thousands and thousands of hours of study facilitated by a social disability. If you don’t have friends and places to go, nothing stops you from studying 18 hours a day.”

However, not understanding how to interact socially was a real handicap for the author and inventor, who refers to his second wife as ‘Unit 2’ because she is the second sister of three in her family. He said the fact that people’s social responses and interactions often defy logic was the reason why he had such a difficult time mastering acceptable responses to conversation.

However, he eventually learned the skill and realized that, if everyone was completely honest, their relationships might not survive.

“But it was frustrating and lonely growing up because I was not in sync with everyone else; if you are a logical person in an illogical world, you are isolated,” he said.

Robison hopes educating people about autism and related social behaviors can make a difference for children growing up with those disorders today. “We should be talking about remediating disability as opposed to curing it, because the world needs people who are different. These are all messages that I bring to people.”

 

Value and Validation

Robison believes he serves as an example of how differences can be assets. “Everything I have done is because I think differently. When I was 16 or 17, it wasn’t obvious to people that I would do anything I have accomplished, so seeing someone like me is very encouraging to people,” he said, adding that no one has any real idea of a child’s true potential.

His books are enlightening and offer an inside view of the way people with autism think and interact with the world. And it’s that striking difference that allowed the child who once thought he was “defective” to grow into a man who is giving his all to facilitate positive change in our world today.

Health Care Sections
SPHS Breaks Ground for a New Medical Office Facility

Dan Moen

A new, three-story, 75,000-square-foot medical office building is one more phase in what Dan Moen believes will be continued growth for Mercy Medical Center.

Dan Moen, president and CEO of the Sisters of Providence Health System (SPHS), is rather proud of the new silver ceremonial shovel in his office.

He told BusinessWest that it’s more than a souvenir from an elaborate groundbreaking ceremony staged late last month for a medical outpatient office building at the corner of Carew and Chestnut streets. It’s also a symbol of an intriguing partnership — and a fairly new and different business model.

Indeed, in a departure from past practice, SPHS will not own the three-story, 75,000-square-foot facility to be built on the Mercy Medical Center campus that will become the new home to the Weldon Rehabilitation Hospital’s outpatient rehabilitation programs, the Mercy Hearing Center, and two Mercy-affiliated physician practices. (Hampden County Physician Associates will also occupy half of the office space in the new facility through consolidation of several existing medical-practice sites in the area.)

Instead, it will lease the space from developer Carew Chestnut Partners, a firm with medical-commercial real-estate development and management. Under the terms of a construction and land-lease agreement, Carew Chestnut Partners will develop and own the new building, while the SPHS will maintain ownership of the land, which it will lease to Carew Chestnut Partners.

“In this case, we get revenue from leasing the land to the partnership, so that’s a plus for us, and we’re not using our own capital for a facility that we really need,” Moen explained. “For lack of a better term, it’s what we call a ‘non-core’ asset, meaning we don’t have to own it because there are developers out there that do a very good job at medical development, so it’s a win for everybody.

“I’m a big believer in the concept that we don’t have to own everything,” Moen continued, adding that the lease-back model is becoming popular among healthcare systems nationwide because it allows the hospital or system to do what it does best — while also freeing up resources for other medical programs — and developers to do what they do best.

“Many hospitals and healthcare systems across the country are doing this type of partnership these days because access to capital for hospitals can be scarce, and we want to make sure we are saving our debt capacity for those projects that only the hospital can do,” Moen explained.  “So if we want to expand a particular service that is hospital-based, an in-patient service or a cancer program, we want to make sure we have the ability to borrow money to do that.”

Andrew Henshon, managing partner of Carew Chestnut Partners, said his company has extensive experience not only in the construction and development of medical office space, but also in the management of such properties.

“We’re very pleased to participate in this new venture with Mercy Medical Center and Hampden County Physician Associates,” he said. “The new, environmentally friendly medical office building promises to be one of the region’s leading destinations for outpatient medical care and services.”

Plans for the facility were taking shape when Moen took the helm at SPHS in early 2011, but over the past 12 months, the project has come off the drawing board, and with a design that places a heavy emphasis on mopdern, ‘green’ building features and techniques.

“Whatever type of construction we want to do these days, we have to pay attention to the environment,” Mosen explained. “It’s the right thing to do, and it will cost us less money over the long run.”

Henshon told BusinessWest that green aspects of the development include solar panels, green roofs, water-efficient fixtures, high-efficiency heating and cooling systems, and recycled and environmentally friendly materials, including limited use of volatile organic compounds (VOCs).

The Mercy Hearing Center building, built in 1927, as well as an on-site maintenance building, will be torn down to make way for the new development, which Moen said is expected to be complete by December 2013.

The design, not to mention the operating model, are a reflection of the health system’s broad mission, said Moen.

“Mercy Medical Center is committed to the delivery of outstanding patient care and the best healthcare experience possible,” he explained. “This innovative partnership will allow us to further that goal so we can offer patients quality care in a spacious, bright, state-of-the-art setting that also features easily accessible parking.”

As the construction commences, Moen added that plans past the new building are being discussed.

“We just engaged a firm, MorrisSwitzer, to help us with a facility master plan for the campus,” he said. “This is a very experienced healthcare consultant firm, and it will help us look at what the campus will look like five or 10 years down the road.”

The master-plan discussions, being undertaken with all departments at SPHS, should take about six months to complete, he said.

For now, though, the focus is on the project just launched, which, like the shovel in Moen’s office, is symbolic of new partnerships and imaginative ways to meet the system’s mission and improve service to the region.

 

— Elizabeth Taras

Health Care Sections
Many Children Suffer from This Dietary Intolerance to Gluten

Dr. Christopher Hayes

Dr. Christopher Hayes

Nancy Anderson

Nancy Anderson


For some people, following a gluten-free diet may be a fad, but for others — including those with celiac disease — it’s a very real necessity.

Celiac disease, a dietary intolerance to gluten, a protein found in wheat, rye, barley, and some everyday products such as medicines and vitamins, is one of the most common genetic disorders in the U.S., affecting 1 in 100 people.

Celiac disease is a digestive disorder that damages the small intestine and interferes with absorption of nutrients from food. When people with celiac disease eat foods containing gluten, their immune system responds by damaging or destroying villi — the tiny, fingerlike protrusions lining the small intestine. Villi allow nutrients from food to be absorbed through the walls of the small intestine into the bloodstream. Without healthy villi, a person becomes malnourished. Ingesting gluten can also cause diarrhea, bloating, weight loss, and a multitude of other symptoms from fatigue to constipation.

Some children may have mild symptoms or none at all. What makes celiac disease challenging to diagnose is the fact that some symptoms are similar to other diseases, such as irritable bowel syndrome or inflammatory bowel disease.

The only definitive test for celiac disease is a small-intestine biopsy involving the insertion of a long, thin tube called an endoscope through the patient’s mouth and stomach into the small intestine to remove tiny pieces of tissue for examination.

Lifelong and incurable, celiac disease is treated at this time by strict adherence to a gluten-free diet. After diagnosis, young patients are often referred to a registered dietitian who specializes in celiac disease and gluten-free diets, who will assess their  growth and nutrient needs and help them maintain their quality of life while eating a gluten-free diet.

For the celiac patient, as well as for those with gluten sensitivity, eating gluten often makes them feel, quite simply, lousy. In addition to the medical benefits of eating a gluten-free diet, they will feel better.

Until they began a gluten-restricted diet in earnest, some patients never realized how terrible they felt before the offending gluten was removed. For children, this makes adherence to the diet easier to swallow. In the past decade, there has been a huge increase in gluten-free products available, and manufacturers are increasingly improving product taste and texture so that kids are very accepting of the switch.

Given the information available on the Internet, some patients believe that they can be self-taught to follow a strict gluten-free diet. But it’s not that easy.

For the celiac patient, even 20 parts of gluten per million (the upper allowance for gluten in a serving) can be toxic to villi and absorption. The Internet often gives either inconsistent or inadequate information about ingredients or sources of cross-contamination in our foods, kitchens, restaurants, and other places. Families also need menu planning, recipe conversions, and general strategies to deal with food exposures.

Because many gluten-free grain products are not fortified with minerals and vitamins such as a regular loaf of wheat bread would be, those with celiac disease should take a daily multivitamin to ensure adequate sources of B vitamins and trace minerals. Many children already have nutrient deficiencies from years of malabsorption before being diagnosed.

It is common to see inadequate vitamin D levels, inadequate calcium intake from secondary lactose intolerance, and failure to thrive or stunting in celiac patients. It is important that a qualified, licensed, and registered dietitian assess your child’s total diet for all micronutrients and fiber, since many gluten-free grains are deficient in that as well.

In addition, 10% of celiac patients also have juvenile insulin-dependent diabetes, another autoimmune disease. Many gluten-free products can cause blood-sugar issues for people with diabetes because they may be more carbohydrate-dense compared to regular grain products.

The more fruits and vegetables — as well as legumes, including beans and nuts — that a child can eat, the better … even more than the five recommended daily servings. This will ensure adequate vitamins, minerals, and fiber, as well as promote healing of the intestinal cells. Also of note, many gluten-free ancient grains, which contain more nutrients than processed ones, are now re-emerging in the United States and are becoming widely available.

Many restaurants across the country are now boasting gluten-free menus. But be warned that many well-meaning staff working in the kitchens of these restaurants, as well as those at schools and colleges, are not properly trained to understand that even a crumb of gluten can sicken patrons, and therefore cross-contamination occurs frequently.

A restaurant might claim they have gluten-free hamburger buns, for example, but cooks are likely to put it down in the same spot where a regular bun just was, put gluten-free fries into a fryolator shared with breaded foods, or use a shared colander for gluten-free pasta. Cross-contamination can also occur in pizza shops and bakeries; deli slicers, toasters, and cooking utensils can be additional sources of problems.

Those with celiac disease must advocate for their needs in order to change the environment. After all, this is big business, and stores and restaurants want your business.

In the meantime, bringing your own food to school or to a dinner party is the safest way to be absolutely sure you are not eating gluten. Even if someone is trying their best to provide you with gluten-free foods, many people don’t realize how easily cross-contamination occurs.

And celiac disease is not just for kids.

The disease was originally thought of as an illness that first affects people in childhood. However, as celiac disease has become more recognized, we now know that people can develop the disease later on in adulthood. Also, because celiac disease is hereditary, any close relative of someone with celiac disease should be screened with a simple blood test.

Today, many older teens and adults are self-diagnosing themselves and following a gluten-free diet. While some people may have celiac disease and go undiagnosed, many have what is known as gluten sensitivity. They have a gastrointestinal sensitivity that improves on a gluten-free diet, but more importantly, they do not have celiac disease or the health consequences that accompany it.

It is important to be tested and to know for certain if you have celiac disease, which, without proper treatment from a doctor, can lead to long-term consequences involving nutritional deficiencies, poor bone density, and even cancer.

Despite the challenges facing both children and adults with celiac disease, they can still maintain an active social life, feel healthy, and enjoy some foods they weren’t able to before as the gluten-free market continues to expand.

For more information on celiac disease, visit celiaccenter.org or celiac.org. For more information on Pediatric Gastroenterology and Nutrition at Baystate Medical Center, call (413) 794-2270.

 

Dr. Christopher Hayes is director of the division of Pediatric Gastroenterology and Nutrition at Baystate Children’s Hospital. Nancy Anderson is a clinical dietitian in Food and Nutrition Services at Baystate Children’s Hospital.

Health Care Sections
Care @ Home Keeps Clients Independent and Moving to the Beat

Sherill Pineda

Sherill Pineda says she started Care @ Home with some inspiration from her friends and a desire to bring a higher level of service to the region.


Sherill Pineda calls them her “angels.”
These are the close friends who starting coming to her in the summer of 2010 looking for help with the care of aging parents, many of them veterans, in their homes. And they are the individuals Pineda, a veteran of the home health care industry, credits with giving her the motivation, confidence, referrals, and a solid foundation in the form of a growing client base to start a business she calls Care @ Home.
“My friends said, ‘don’t worry about the money — worry about taking care of our parents; that’s the most important thing,” said Pineda. “That same set of values — safety and independence and quality care — is what we have put in place for all our clients.”
And today, it is those friends, not to mention a host of other clients, who are using that word ‘angel’ to describe Pineda and her staff members, who bring a decidedly personalized style of care to their work, one that has enabled the company to achieve steady growth and a reputation for education, innovation, and giving back to the community.
Regarding the latter, Pineda has created what she calls the CARE Foundation, which stages a number of fund-raising events, with some of the proceeds funneled to local charities, veterans groups, and other local help organizations. “We try to do our part, whether it be big or small,” she told BusinessWest.
As for education and innovation, Pineda does a good deal of speaking, especially on the subjects of Alzheimer’s disease and the importance of physical fitness to the quality of life of all seniors. In fact, she’s a certified instructor in what’s known as Zumba Gold, a modified version of the increasingly popular Latin dance workout program designed especially for Baby Boomers.
And she’s brought it to a number of area senior centers and other gathering places, with solid results in terms of participation and reception.
She admits that she never thought that she’d be educating and entertaining seniors to the beats of ’40s ‘boogie woogie’ or ’50s Elvis Presley tunes through the popular Zumba dance-exercise routine, but it has become a big part of her community outreach.
In fact, it’s working so well that her fitness work, and her ties to the veterans community, led the 44-member 215th U.S. Army Band to reach out to Pineda and volunteer its talents for a CARE Foundation fund-raiser that became “A Tribute to Our American Heroes,” staged recently in the Holyoke High School auditorium. The event raised funds for homeless veterans.
Pineda told BusinessWest that other programs, in addition to 24/7 home care, include educational outreach in the workplace (called Care @ Work), at assisted-living centers, or anywhere she can plug in her speakers and iPod and get people dancing. In some way or shape, Pineda says all outreach, volunteer or otherwise, benefits the company, the client, or the community.
With a trained staff of 40, Care @ Home is well on its way to securing a firm foothold in the home-care industry in the Pioneer Valley. And for this issue, BusinessWest takes a look at the company and its ability to give back to the community in unique ways, while also offering skilled nurses and certified nursing assistants (CNS) to care for those who need compassionate, sometimes physical, and usually fun care and attention.

Working Relationships
In Pineda’s East Longmeadow office, there is a wall of yellowed, official Armed Services portraits, as well as recent photos, that showcase some of her first clients.
While veterans are not her only target group, they are the core of her young company’s client base. The company is an authorized agency for the Veterans Administration (VA), she explained, “and based on their eligibility and the VA requirements, if veterans meet the standards, they can receive home-care services through what is known as the Home Base Program; our state really supports our veterans.”
Kathleen Plante, care transition and community liaison for Care @ Home, adds that the Home Base Program’s goals mirror those of the agency, and include safety, independence, and reducing the need for future hospitalizations.
“The program is designed to facilitate keeping them at home as opposed to having to go into an institution or other facility,” she explained. “Our person-centered approach is the mission of the agency, and it secures the best possible outcome for our clients and their families. And, of course, our skilled nurses work with the physician, all to reduce the potential for relapse of a health issue, which could mean going back into an institution and the loss of their independence.”
Potential clients are introduced to the agency through relationships built by Pineda and her team. In fact, it is through current relationships, especially connections in the business community, that she projects strong growth for the new Care @ Work program.
The planned outreach to employers and employees through Care @ Work serves to explain to those still working and caring for a family member of any age, and for pretty much any medical reason, that help is available. The presentation, which is in the development phase, is designed to move through a human-resources department or employee-assistance program.
Whether from a work-related injury or one of the top four health issues Pineda sees — dementia, post-traumatic stress disorder, diabetes-related aliments, and cancer — transitional efforts from hospital to home or assisted living can be traumatic. Pineda and Plante both say that, from the start, effective care planning and medical follow-through both lead to better overall health and a sense of security for the clients and their families, including the need for respite services.
Early transition planning, quality care, and engagement, said Pineda, are qualities that make Care @ Home a different and innovative aging-in-place company.
“We are clinically and socially involved with our clients,” she noted. “We’re creating an individualized care plan and making sure we continue to have activities with them.”

Young at Heart
But when Pineda means ‘activities’, she’s not talking about crossword puzzles and bingo. In fact, she finds that some of her volunteer speaking and Zumba Gold requests stem from the fact that older individuals don’t want to play bingo anymore.
“They say to me, ‘we don’t want to hang out with those ‘seniors’ at senior centers … we want to learn new things; we’re tired of playing bingo,’” said Pineda.
Plante added good naturedly, “they don’t think they’re old; they think the others are old!”
And that dislike of a ‘center for old people,’ explains Pineda, is what is keeping many younger seniors away from physical activity, which is typically offered only in the local senior centers — and she notes that using the words ‘senior,’ ‘golden,’ and ‘elderly’ is already becoming increasingly unpopular among her clients.
This changing view of what old age really means to her clients, coupled with her awareness of the importance of staying active throughout one’s life, explains the emphasis Pineda places on physical and mental fitness in her work.
Last year, she became an Advisory Council member of the Western Mass. Healthy Aging Coalition, and a Matter of Balance coach in partnership with the Mass. Department of Public Health.
“Through the Matter of Balance program, we do a series of eight sessions that are two hours each, educating our aging population about fall prevention,” said Pineda, adding that one bad fall can physically and emotionally shut a person down due to the severity of the incident, resulting in depression and the often-debilitating fear of falling again.
But Pineda says learning and then practicing dance can potentially provide a needed confidence level to those who have fallen and fear a repeat, and this is one of many reasons she has tried to introduce audiences to Zumba Gold and its many potential benefits.
As a certified Zumba Gold instructor, Pineda has incorporated her exercise routine, a combination of Latin and international music with a fun and effective workout program, into weekend programs in which she educates her audience (people in their 60s and 70s), about the importance of staying active, no matter their age.
In that class, she discusses exactly what Alzheimer’s disease is, the early signs, what future help will be needed, and, more importantly, how staying healthy may slow or prevent the onset of the disease and various forms of dementia. Staying as active as possible is the key, said Pineda, who also serves as chairperson of the Alzheimer’s Assoc. Diversity Advisory Council of Massachusetts and New Hampshire.
After some quick discussion with questions and answers, she explained, Zumba begins.
“Then, and only then, do they get to do the dancing; they have to listen first, and then we have fun.”
But she stressed repeadedly that the dancing is far more than just fun; it’s medically important, and will become ever more so as the huge Baby Boom generation continues to age.

All for One, One for All
While Pineda is building her business to care for those in need now and in the future, she and Plante will complete the structure of the CARE Foundation, and will soon have a board of directors to determine the future beneficiaries of fund-raising events for local charities, and a possible endowment for clients that need help with financing their care.
To that end, Pineda says Care @ Home is constantly looking for collaboration and partnership, not just in home health care and fund-raising, but with other skilled professionals who can assist Pineda with bringing more educational outreach to the seniors and family members.
“We’re bringing health care to the next level,” said Pineda. “And that next level means breaking old molds and keeping as many seniors moving, educated, and engaged as possible.”
Plante agreed. “This whole model of reaching into every piece of people’s lives is what health care is going to be; we’re being proactive about it.”
And Pineda, who by all accounts is now fulfilling that role of ‘angel’ to her clients, will be singing and dancing to Elvis, or whatever song of choice her audience wants to step to, just to keep them moving, safe, and independent at home, or wherever home is.
“As long as I have my portable speaker, my iPod, and my flats,” she said, “I’m ready to go.”

Elizabeth Taras can be reached at [email protected]

Health Care Sections
Coping with Being Stuck in the Middle, Caring for Parents and Kids

Lisa L. Halbert

Lisa L. Halbert

They call it the ‘sandwich generation,’ those individuals who care for their young, college-aged, adult, or boomerang kids, while at the same time caring for parents or in-laws who need some level of assistance. These stuck-in-the-middle people are overworked, stressed, tired, and oftentimes financially strapped from the burden.
Typically there is some hope or expectation that, as a child ages, parenting modulates from hands-on caregiving duties to those of chauffeur, disciplinarian, and behavior-modeling duties, and then the child goes their own way. For many with aging parents, however, the roles reverse, and caring for parents expands from driving them to appointments to moving them in to live with you, to engaging in disagreements as if you had another grumpy child — and even to the adult equivalents of diapering and assisting with feeding.
For some, it is an honor to care for aging parents. This commitment comes not only from a strong sense of family, but also from concern that nursing-home experiences are not ideal and can be prohibitively expensive. For others, it is an obligation, whether self-imposed or not. For most people caught in the sandwich generation, perhaps it is a blend of love, obligation, and concern about how they would want to be treated if or when they become stuck in such a needy situation.
While the sandwich generation connotes comfort, the nitty-gritty is that caregiving for any one person is hard enough, but when attention and care must be divided among three generations — your parents, spouse, and children — the emotional, physical, and financial toll can become devastating. From both a practical and estate-planning perspective, steps that caregivers might consider taking include the following:

Anticipate Problems Before They Arise
As early as possible, consider typical sandwich-generation issues. Initiate discussions with your parents about how they want to live, whether they have long-term-care insurance, what kind of health care and life-saving measures are desired, and who should make legal and medical decisions for them if they are no longer able to handle their own affairs. Yes, these are difficult topics and not ripe for the holidays, but as an adult child of aging parents, you must address these types of questions while there is still time to plan. This can help your whole family avoid a lot of problems down the road.

Apply the Golden Rule
Remember your parents telling you that you should treat others as you would want to be treated? Well, now is the time to take that to heart, especially as even loving family members are sometimes not nice to those who are infirmed. You might talk about them rather than to them, or make decisions for them rather than with them. You might overestimate your loved one’s disabilities and underestimate their capabilities.
Too often, we equate intelligence with language and the ability to communicate, but how would you feel if you became hard of hearing or lost your ability to speak? Would that make you less intelligent?
Now is also your opportunity to train your children about how to treat you a few decades down the road. Teach them by example to be tolerant, loving, and kind. Teach them to include seniors in decision making and to be respectful.

Essential Legal Documents
In addition to a will, there are three basic estate-planning documents that every adult should consider. A health care proxy (HCP) authorizes another to make health care decisions when someone cannot make those decisions for himself or herself. A durable power of attorney (POA) authorizes someone to make decisions about issues in another’s legal world, such as bank accounts, brokerage accounts, or almost anything relating to money. This document can be drafted so that you and your elderly relative can access accounts at the same time. As the attorney-in-fact under a POA, therefore, you can help reinforce your family member’s independence in that he or she can retain some control until capacity diminishes.
The third document, a living will, provides a specific directive to the individual’s physician regarding under which circumstances the individual is to be kept alive by life-sustaining equipment and when the physician is to stop such mechanical approaches and allow the patient to die with as much dignity and as little pain as possible.  Some attorneys combine this directive within the HCP, while others leave it as a standalone document. Either approach works.
It is important to note that a diagnosis of Alzheimer’s or early dementia does not prohibit the consideration and signing of essential estate-planning documents. As early as possible, you must have your parent talk to estate-planning counsel. If your parent remains aware of basic information, he or she may still have capacity to sign the forms. This documentation is important, if not imperative, for both you and your parent. Statistics show that caregivers actually frequently falter because the stress and the pressure of caregiving may lead to their own injury or illness.
When documentation is in place, have it reviewed periodically, especially with any change in family structure, to ensure that the appropriate people are named to the appropriate positions.
Keep in mind that, while you might be a wonderful caregiver, loading up with financial responsibilities may result in too much of a time commitment for you. Sharing those same responsibilities with siblings or others might be the better choice.
Understand that, without a POA and/or HCP in place, situations will likely arise that require court action, whether guardianship or conservatorship, to be initiated. And while a POA and/or HCP are not a guarantee that you can avoid these actions (and additional costs), the chances of needing court involvement drops significantly.

Preserve Your Own Assets
Financial planners constantly say it is foolish to raid your retirement savings to pay for your children’s college education or your parents’ long-term care. Your kids can take out student loans that they have plenty of time to repay, and your parents’ own assets should finance their care for as long as possible.
If caregiving to a parent is likely to be in your future, urge your children to explore multiple financial-aid options to fund college, which will help alleviate the burden on you, especially merit grants and scholarships that neither of you will have to repay after they graduate. For some, one part of the puzzle might be to consider having your child spend a couple years at a community college, and then transfer to a four-year program, which can save tens of thousands of dollars. For others, consider whether your child might qualify for more money from needs-based aid as opposed to merit-based scholarships. A good college advisor should be fluent in advising which schools look at what information relative to financial aid. Also, understand that the optimal time to consider college financial-aid planning is when your child is in 9th or 10th grade.
As for your parents, you might consider involving a financial planner in advance of their caregiving needs changing. An evaluation of assets and income as well as expenses (current and then modified for the new living situation) can be done to consider whether investments should be adjusted so as to produce more or less income. Also consider long-term-care insurance, whether for nursing home care and/or home care — and the earlier, the better.
Identify a qualified financial planner who can advise whether a long-term-care insurance or home-care insurance policy may suit your parents’ needs. It is important to ascertain that the policy you’re considering meets current Medicaid requirements. These requirements are quite specific, so while your financial planner or insurance agent may have some knowledge of the issues, check with your legal counsel, who should be able to lend insight. Typically the premium will increase with age, and you and your parents should carefully consider the services provided and length of the term. Your lawyer may also be able to provide guidance while you’re in this process.
A caregiving contract may also be appropriate for services that you will provide for your parents, especially in cases where you leave or decline traditional employment in favor of caregiving. Such contracts should address the prospective wages and range of services to be paid under the contract. Contracts can also address your parent’s financial contribution to any modification of the residence where your parent will be living, yours or their own.
When considering caring for a parent who could potentially need traditional nursing-home assistance or renovating your home to accommodate the new caregiving duties, in order to avoid violating certain Medicaid regulations, a properly written contract must be made in advance of the cash outlay. If your parents make promises to compensate you via their will, or you are too proud to discuss the issues in advance, the result could be you bearing the financial brunt and never receiving appropriate compensation, irrespective of good intentions.

Check Your Health
From a practical standpoint, it must also be mentioned that you will be no good to your parents or your children unless you make yourself a priority. Get proper exercise, rest, and relaxation. Remain involved with your interests and friends. Keep communication lines open with your partner, parents, siblings, and children, and enlist the help of others. You cannot bear this burden alone without considerable stress taking its toll on you.

Lisa L. Halbert, Esq. is an associate in the Northampton office of Bacon & Wilson, P.C. A member of the estate-planning, elder, and real-estate departments, she is especially focused on legal matters relating to asset protection; (413) 584-1287; baconwilson.com/attorneys/halbert

Health Care Sections
Family Care Medical Center Marks 30 Years in Business

Drs. David Doyle, left, and Ira Helfand say the Family Care Medical Center

Drs. David Doyle, left, and Ira Helfand say the Family Care Medical Center has become what they call a “community institution.”

Dr. Ira Helfand says the staff at the Family Care Medical Center in Springfield  may eventually get around to doing something this year to officially mark the facility’s 30th anniversary, but at present, people are simply too busy to have any kind of party.
But that doesn’t mean there isn’t anything to celebrate at the urgent-care facility that has been at the same location on Allen Street since the start. Actually, there’s plenty.
For starters, there’s the sustained, steady growth that Helfand and partner Dr. David Doyle have orchestrated since they acquired the business six years ago from founder Dr. Ty Matthews after working for him for many years. There’s also continued diversification of the center — which now handles everything from camp and school athletic physicals to a host of urgent-care matters; from physical therapy to suboxone treatment for those with opiate addiction — a key source of that growth.
And then, there’s the fact that the center is still thriving long after many competitors have opened their doors — and then eventually closed them because their operating model wasn’t profitable. “We’ve seen a lot of them come and go,” said Doyle, referring to rival urgent-care facilities.
But what is perhaps most celebration-worthy, said Helfand, is that the center has become what he considers “a community institution,” a part of the fabric of the Western Mass. health care sector.
“There have been people who have been coming here for two decades or more,” he explained. “They have their own primary-care doctor, but come here for their urgent-care needs on a fairly regular basis. We have charts for all our patients, and some are big and thick, because people have been coming back year after year for their urgent-care problems.”
For this issue, BusinessWest takes an indepth look at just how the FCMC has gained institution status in this region, and how it intends to continually build on the success that has enabled it to reach a notable milestone like 30 years and boast shelves crowded with those thick files Helfand described.

No Cake Walk
There were about 15 people in the waiting room at the FCMC when BusinessWest visited the facility in the late afternoon on a Friday in mid-April. That’s typical for the center, said Helfand, noting that its staff will treat 90-100 people per day, on average, numbers that have remained fairly constant through the years.
And those waiting at that particular time represent the many different reasons why people come to the center, he continued, noting that some required attention but couldn’t get an appointment with their primary-care physician for several days or even weeks, while others could have opted for a hospital emergency room, but were wary of a lengthy wait that has become the norm in such units. And still others have less-urgent needs that don’t require a visit to an ER or PCP — and thus can be handled at the center.
All these reasons explain why the FCMC and other urgent-care facilities were created, said Doyle, noting that this type of facility is certainly not a recent phenomenon. But they don’t make clear why this facility has succeeded while others have not.
The explanation for this lies in the center’s ability to essentially provide what it promises — quality, compassionate care that is usually administered in an hour, on average, he told BusinessWest, adding that the answer also lies with a staff that boasts many who have been at the FCMC for decades and thus understand the large and diverse population it serves.
The center’s successful track record is reflected in the fact that the vast majority of new patients are derived from word-of-mouth referrals from existing clients, said Helfand. “We’ve never done much marketing, mostly because we haven’t needed to.”
Backing up a bit, Helfand and Doyle said they both started in health care as emergency-room physicians and worked together for many years at Cooley Dickinson Hospital in Northampton. But both were attracted to the urgent-care model, and more specifically, the one in place at the FCMC.
In 2006, with Matthews easing into retirement, the two acquired the facility, and have since made the often-difficult transition from employee to employer, while achieving roughly 50% growth in revenues over that six-year span and expanding the staff to roughly 30.
Helfand and Doyle said many things have changed since 1982, and even since 2006, including the advent of health-care reform in Massachusetts, which has mandated insurance coverage for all residents (bringing some logistical and bureaucratic challenges), as well as ever-improving information technology and a constantly changing competitive landscape. But some things haven’t changed, he went on, including the factors that gave rise to urgent-care facilites.
In fact, some of these have become more exacerbated in recent years. This includes the declining numbers of primary-care physicians — a phenomenon that exlplains those issues of accessibility — and the still-growing use of the hospital emergency room as a PCP among some constituencies, creating more crowding and longer waits.
“I think people have more difficulty accessing their primary-care physician,” said Doyle. “When they have an urgent problem, they’ll call their primary care, and not be able to see him or her for weeks or months; they might have an acute infection, allergic reaction, poison ivy, a sprained ankle, and need some attention. Also, emergency rooms are overutilized, and we are able to see a lot of the minor emergencies.”
Helfand concurred, and noted that being able to help people impacted by these converging forces in health care is one of the most rewarding aspects of working in an urgent-care setting.
“So many patients in the emergency room are just so unhappy,” he said by way of contrasting his current work assignment with the one he had several years ago. “They’ve been waiting for hours — even in the best emergency rooms. So many of the patients who come here are just so pleased that they can be seen by a doctor, get treated, and get discharged in an hour or an hour and 15 minutes.”
Today, the FCMC provides a host of services it has offered since the beginning, such as school and camp physicals; primary-care services for those suffering from hypertension, diabetes, and other conditions; and urgent care for everything from flu-like symptoms to urinary infections to lacerations. It also offers lab and X-ray services, FAA exams, psychological counseling, and orthopedics, and has an on-site physical-therapy facility.
In recent years, though, the center has added additional services, such as the suboxone practice for opiate addiction involving heroin, but also pain medications such as oxycontin. Suboxone is an alternative to methadone, and one that Doyle believes is more effective.
“We feel strongly that works much better than methadone,” he explained, adding that the number of patients being treated for opiate addiction continue to rise, and the extent of the problem isn’t generally understood.
“When we started doing this five years ago, experts estimated that there were 1 million people with opiate addiction,” he continued. “Now, they’re saying 4 million to 5 million, and it’s probably many times that number.”

On the Mark
As he talked with BusinessWest in the center’s conference room/break facility, Helfand helped himself to one of the large chocolate-chip cookies from a box someone had left on the table.
“This is our celebration, I guess,” he joked, noting that, while 30 years in any business is a noteworthy achievement, and three decades in this one is certainly an accomplishment, nothing elaborate is planned to commemorate what started in 1982.
Instead, the FCMC will celebrate by doing what it has always done, and that’s meet a need, and do so in an effective, patient-friendly fashion.
In other words, it will go on being a community institution.

George O’Brien can be reached at [email protected]

Health Care Sections
A Health Care Proxy Ensures That Wishes Will Be Honored

Hyman Darling

Hyman Darling says a health care proxy solves the issue of who’s in charge of making critical medical decisions.


No one likes to think about what might happen if they were in a serious accident or had a disease that left them unable to speak and make their wishes known.
But, unfortunately, such situations occur every day. And although people may have expressed opinions about medical measures that could prolong their life if they became ill or injured, loved ones may disagree on what is best.
Fortunately, there is an easy solution to the problem that costs $100 or less. People can create a document that declares someone their health care proxy, granting them the power to make medical decisions if a doctor declares the patient mentally incapacitated. This can result from a wide variety of circumstances, ranging from a stroke or advanced dementia to an auto accident. The document can include specific instructions, such as whether the person wants to be an organ donor or be cremated.
“Everyone who is at least 18 should complete a health care proxy after giving simple consideration to their intentions and the people they plan to appoint as future decision makers,” said Hyman Darling, an attorney with Springfield-based Bacon and Wilson, P.C., noting that it’s important to discuss decisions with the person named as agent/decision maker and provide them with a copy of the document.
Designating someone as a health care agent/proxy can reduce arguments among family members in difficult situations.
“Everyone wants to be in charge, but if a health care proxy hasn’t been appointed, no one is in charge, including the spouse,” Darling explained. And although doctors might perform surgery or proceed with treatments for a patient if everyone in the family agrees on a proposed course of action, if they disagree, the matter may end up in court and take weeks to resolve, especially if it is contested.
“It’s much better to have a health care proxy than not have one, even though there may still be family differences and a lot of emotion,” said attorney Jeffrey Roberts of Robinson Donovan, P.C. in Springfield.
If the document is prepared by an attorney, that individual can also defend it if a family member disagrees on anything. “The power to make life-and-death decisions only goes into effect if a physician declares a person mentally incapacitated. And if that occurs, the person designated as their agent is required to speak for them and act as they would act, which is not necessarily the way the agent would normally act,” Roberts said, adding that the more information a document contains, the easier it is to know exactly what someone wants and carry out those wishes.

Historical Perspective
The issue began receiving national attention several decades ago when high-profile cases, such as one involving a woman named Karen Ann Quinlan, came to light. After the 21-year-old suffered irreversible brain damage, her parents discovered they were legally barred from turning off the artificial life-support systems that were keeping her alive, even though her condition was deteriorating and doctors felt there was no hope of recovery.
Darling said this case, which ended up in the Supreme Court, and others like it cost hundreds of thousands of dollars to resolve and exact a heavy emotional toll on the families involved.
Prior to these cases, people typically assigned someone to take care of their affairs if they were unable to do so; this was often the case for soldiers who went to war. “But there was never anything legal where states allowed people to designate someone as their agent to make health care decisions for them if they became incapacitated,” Roberts said.
“This in a relatively modern concept,” he told BusinessWest. “In the past, the health care provider had the choice of relying on the nearest relative to make decisions or having a guardian appointed by the court if family members couldn’t agree or there were no relatives.
“The system called out for order because health care providers wanted some protection,” he continued. “It’s a very cumbersome procedure to have a guardian appointed, and if two people disagree, they have to go court and fight it out. The health care proxy law created a safe haven for Massachusetts residents that resolves 98% of these issues.”
In recent years, many states have enacted laws that allow people to sign a document which names someone to stand in their stead if anything extreme happens. “In Connecticut it’s called an advance-care directive, in Florida it’s a health-care surrogate, in Massachusetts it’s a health care proxy, while in other states it’s a living will,” Roberts said.
Documents that are legal in one state are honored by the others, and in Massachusetts the language typically found in a living will can be included in the proxy document. This language can include whether heroic measures should be taken to keep the person alive.
“Someone may only want to be given pain medication if it reaches that point,” Darling said. “And it’s a lot more stressful on the family if someone hasn’t named a health care proxy.”
He added that, if family members disagree with the person appointed as the proxy, the attorney who drew up the document can hold a family meeting.

Transfer of Power
Darling said physicians should have a copy of a person’s health care proxy form so they can release information needed to make medical decisions. He also advises clients to talk about their wishes with the person they plan to name as their agent.
One of his clients was a soldier being deployed to Afghanistan who did not want artificial measures taken to keep him alive if he was injured in the line of duty. He had planned to name his parents as his health care agents, but they told him it would be too difficult for them to carry out his directives.
Darling cited other cases where family members told a loved one they would not be comfortable doing what was asked. “The person who is appointed should be responsible, trustworthy, and able to carry out the wishes that have been expressed,” Darling said, adding that Internet tools such as Skype and e-mail make it easy for physicians to communicate with people who are geographically distant.
However, despite advance directives, decisions can still be difficult. “There is no bright line, but at least this gets rid of vagaries,” Roberts said.
Some people elect to name several individuals as agents on their health care proxy document, but Roberts advises against this. “The statue states that a person can name a proxy and an alternative,” he said, adding that listing more than one person has never been challenged in court. “But if you name three children, you may be creating arguments that the system was designed to avoid.”
Darling said a proxy document can include what is known as the ‘five wishes,’ which are included in a national advance directive created by the nonprofit organization Aging with Dignity. They are:
• Who you want to make health care decisions for you when you can’t make them;
• The kind of medical treatment you want or don’t want;
• How comfortable you want to be;
• How you want people to treat you; and
• What you want loved ones to know.
Although health care proxy documents can be obtained via the Internet, they do not usually include such provisions or language that specifies anything other than who the proxy will be. An attorney can provide that language or the person can do research and add it to the document. But the person named as proxy will need to have a copy of the document in the event of an emergency.
“Living-will language makes sure there are no arguments about issues as whether to put someone on a ventilator if doctors say there is no chance of recovery,” Roberts said.
Other things people need to know are that signing a new document revokes previous ones, and that Massachusetts law prohibits an ex-spouse from making decisions if the document was written while the couple was still married. In addition, people cannot list the administrator, operator, or employee of a health care facility such as a hospital or nursing home where they are a patient or resident as their proxy or resident unless the person is related by blood, marriage, or adoption.

Keeping the Peace
Roberts says that if people want to get their affairs organized, they should appoint a durable power of attorney as well as a health care proxy, so both their financial and health care wishes can be handled in the event that help is required.
“It’s the flip side of the coin and you can name different people,” he explained. “But in the end, you need a decider, even though the person may consult with other family members. And the more you do in advance, the more it reduces risks.”
It also gives people power over what might happen to them today and in the future if their ability to make and voice decisions is compromised. “It’s simple, but complicated,” Roberts said. But it’s a powerful measure that can provide people and their families with peace of mind, which is a priceless gift.

Health Care Sections
Rockridge Retirement Community Changes with the Times

Beth Vettori

Beth Vettori says many residents discover a sense of belonging they were unable to achieve living alone.

For Beth Vettori, success in senior living is all about staying ahead of the trends.
“I think it’s really important that communities such as this one never sit back and rest on their laurels and be satisfied with what they offer,” said the exective director of Rockridge Retirement Community in Northampton.
“We are continually looking at trends and what the stakeholders — meaning the residents, families, the new generations coming up, our employees — are looking for, and where we want to go in 10, 15, 20 years,” she said. “And the only way to stay successful as a community is make sure we’re aware of those things.”
Vettori speaks from experience, having overseen a tidal shift at Rockridge since arriving on the scene less than a decade ago.
Specifically, the facility, which had been a residential-care neighborhood since its inception more than 40 years ago, opened independent- and assisted-living components in 2004 that allow people to age in place, with a continuum of service levels — everything but nursing-home care — available as residents grow older and often frailer.
“One of the things people are constantly seeking is a place where they hopefully have to make just one more move [to nursing care], and we’re able to provide assisted-living services that allow for that aging in place,” Vettori said. “We hope that people are able to stay with us through their remaining days, as we provide a full spectrum of assisted-living services, such as personal care, medication management, meals, housekeeping, maintenance, those types of things.”
And while residents become part of the Rockridge family, Vettori explained, their family members can be exactly that, rather than overburdened caretakers.
“Sometimes, when somebody is living at home, a family member is the primary caregiver,” she said. “Here, they get to become just family again — a son, daughter, granddaughter, niece, or nephew.”
In this issue, Vettori sits down with BusinessWest to share some ways Rockridge is trying to create a true home life for people who, in many cases, can no longer live at home.

Sea Change
Rockridge was founded in 1971 by Elmo Young, who was given land by the Laurel Park Assoc. He partnered with the Deaconess Assoc. of Concord, Mass. to build a 61-suite residential-care neighborhood, and that it remained for more than 30 years.
But the expansion of 2004 added 12 cottages and 30 apartments in the new independent- and assisted-living model, reflecting a quickly growing wave of assisted living across Massachusetts and the U.S.
“When I started in the assisted-living field, there were maybe 20 or so assisted-living communities throughout the Commonwealth,” Vettori said. “Now there are about 200. There’s been an explosion throughout the nation.”
Then, in 2006, Rockridge responded to another industry trend — the growing prevalence of facilities targeted at residents with Alzheimer’s disease and other forms of dementia — by opening the Gardens, an assisted-living memory-care neighborhood with 18 suites.
“With the Gardens structure, it’s a small, close-knit neighborhood, with only private suites available, and that allows for a tight-knit, very family-oriented approach,” she said. “The ratio of staff to residents is such that it creates bonds that enhance the offerings for each resident and helps them maintain their individuality.”
The goal in such a community is to program a routine of meals, cultural events, and other offerings that follow a daily structure. “That helps decrease anxiety, and it helps when residents begin to have that cognitive decline,” she explained. “They have that routine, and they don’t have to worry about what to do next. The staff is right there to keep them at their baseline and provide them with experiences to help them thrive.”
With the Gardens or the standard assisted-living model, the goal is to keep residents satisfied and healthy at Rockridge for as long as possible. Many residents, Vettori said, are surprised at how much more vibrant their lives can be when they’re part of such a community.
“That’s one of the most common quotes we hear — that people felt they weren’t ready, but after they move in, they say, ‘I can’t believe I waited so long. Why did I wait so long? This is amazing.’
“They wouldn’t be able to get that sense of belonging by themselves; here, they start participating and get back into what they enjoy doing. A lot of residents come from rural towns, but even those in bigger towns had so many barriers to participating in external community events,” she explained, such as snow and the inability to drive.
“Here, participating in life is extremely fulfilling,” she went on. “We have an extremely wide range of eclectic, diverse programs and cultural events. We offer trips to Tanglewood and the Symphony, the Bulb Show at Smith College, Gould’s Sugar House in Shelburne, and concerts on the lawn.”
Transportation is available for errands such as shopping, banking, and medical appointments, while in-house activities run the gamut from bell-chime and craft groups to bridge and mah jongg clubs; from historical groups to exercise sessions such as yoga, tai chi, walking, and strength training.
Those tend to be adaptable, Vettori explained, “so that if somebody isn’t fully able to do one of the more intense activities, they’re more than welcome to join in and do it at a modified level. For many, that means yoga in a chair is fine.”
Across the range of activities and programming, she noted, residents have a seat at the decision-making table. “The population is always changing. We have planning sessions where the residents themselves actually have a say in the programs — ‘we’re not interested in this, let’s do something else instead, this is what I want to do.’ We don’t have cookie-cutter activities or programs by any means. That goes for all neighborhoods in the community. All continually change through the years, evolving to be what people are looking for. So they have to have a say; they know what they want.”

Touches of Home
Vettori kept coming back to that concept of family, of giving residents as close to a home life as possible when the arrive.
“There’s a feeling, when people come in, of a warm embrace, like a family,” she told BusinessWest. “People know each other’s names — not just staff knowing residents’ names, but residents know each others’ names — and the atmosphere here is truly welcoming. A gentleman who came two weeks ago said he was truly thankful to all the staff members and residents who came by; he said he was surprised at that kind of support. He had heard us talk about it, but when he came here, he said, ‘this is great.’”
Vettori said she’s personally gratified at some of the conversations she has with residents and family members — not just about their living arrangements, but about each other’s lives.
“This morning I was able to sit down and talk with a resident who had been here many years, chatting about my Great Dane and dog training,” she said. “She and her husband had trained dogs — they had a dog in the top 9 in the country — and being able to share those experiences from so long ago made her light up.
“Residents say they feel that heartfelt connection, and it’s truly amazing; it’s an endorphin rush that really keeps me young, and helps keep them young as well.”
Vettori added that she tries to encourage that kind of fulfillment among her staff, who eventually become a kind of second family to residents.
“My team — not just the management team but also the frontline employees — have a true heart for this community,” she said. “Knowing that they’re happy and fulfilled in their roles gives me satisfaction. I have a hard time if I know employees are not happy in their roles.”
Meanwhile, Vettori continues to think ahead, to the needs of the Silent Generation who populate the units at Rockridge and the Baby Boomers who are increasingly joining their ranks.
“We need to be very aware of what their needs are,” she said, “by working on that advanced planning — we call them strategic advancements — if we want to continue to offer what people are looking for in the next decade, and on and on.”

Joseph Bednar can be reached at [email protected]

Health Care Sections
Unique Partnership Strives to Reduce Rehospitalizations

Dr. Cynthia Jacelon

Dr. Cynthia Jacelon says rehospitalization is a problem these days because hospitals are under increasing pressure to discharge patients quickly.

Avoidable rehospitalization, when a patient returns to acute care within 30 days of having been released, has always been an issue facing those professionals on the front lines of quality patient care.
Dr. Cynthia Jacelon is the director of the UMass Amherst School of Nursing’s Ph.D. program, as well as the scholar-in-residence at Jewish Geriatric Services in Longmeadow. Her particular field of research in health care centers on dignity of care in older adults. She told BusinessWest that the issue of rehospitalization has received renewed scrutiny in recent years due to federal health care reform.
Specifically, it is the Patient Protection and Affordable Care Act, which has numerous provisions. But one which hits the bottom line is a change in insurance reimbursements for patients who have been subject to what is called ‘avoidable readmission.’
“Rehospitalization has become a problem, in part, because hospitals are squeezed to discharge people at the moment they are ready,” Jacelon said. “Every time a hospital discharges someone at the first second that they are able to be in a different care setting, they are taking a risk that they misjudged that second. If they judge the moment correctly, they get paid for the hospital stay, and it’s all good. But if they misjudge the second, they now face financial penalties.”
However, a partnership comprised of employers, education providers, workforce-development leaders, and philanthropists, which has been in existence since 2006, is in the beginning stages of a program designed to target that concern. Among the many partners in the Healthcare Workforce Partnership of Western Mass. is the Regional Employment Board of Hampden County, where Kelly Aiken is the director of Healthcare Initiatives. She said this partnership is “invested in the future of nursing.”
As she explained, “the whole premise of the project itself is that partners have come together to solve a problem that no one organization can solve on their own. Care transitions are such a critical component of achieving all the industry’s goals around improving access, increasing quality, and reducing costs.”
Since September of last year, the program known as the Care Transitions Education Project (CTEP) has been in the first of three stages in three years to develop what those involved say is a means to directly address the issue of rehospitalization, from both a financial perspective and also that of providing the best in patient care.
And while one primary goal is to reduce financial strain due to rehospitalization, and both Jacelon and Aiken stressed that this is indeed an outcome, they said the implications for health care are nothing short of groundbreaking.
“Yes, it is a strategy to reduce readmission rates,” Aiken said. “But the genesis of our partnership has been about collaboration. It has been a perfect match for trying to advance the type of collaboration that is required amongst these settings, in education and in health care.”

Team Work
Aiken said the CTEP program would never have happened “if the broader partnership of the Healthcare Workforce Partnership of Western Mass. were not in existence.” That group is comprised of three groups:
In health care, the players are Baystate Health, Berkshire Healthcare Systems, Cooley Dickinson Hospital, Commonwealth Care Alliance, Genesis Healthcare/Heritage Hall, Holyoke Health Center, Holyoke Medical Center, Jewish Geriatric Services, Noble Hospital, Holyoke VNA & Hospice Lifecare, Sisters of Providence Health System, Mass Senior Care Assoc., Home Care Alliance of Mass., Mass. Coalition for the Prevention of Medical Errors, and VNA and Hospice of Cooley Dickinson.

Kelly Aiken

Kelly Aiken says effective care transitions are a critical part of the health care industry’s efforts to improve access, increase quality, and reduce costs.

In education, the stakeholders are American International College, Elms College, UMass Amherst, Westfield State University, and Greenfield, Holyoke, and Springfield Technical community colleges.
Finally, the workforce-development group includes the Regional Employment Board of Hampden County and its programs.
The HWPWM has many broad initiatives under its banner, Aiken said, but one of crucial importance is the CTEP. According to the State Action on Avoidable Rehospitalizations Initiative, avoidable readmission rates for patients returning into acute care are as high as 28% of all hospitalizations.
Of course, that rate has long been addressed by a health care industry seeking to offer the best in care to its clients, but the insurance reform puts readmission into high relief.
“Readmissions have long been an issue,” Aiken explained, “but never one that has been tied to reimbursement rates. Now, what is coming down the line … if a patient is going from one setting to another, and it is deemed avoidable, there are going to be changes to the reimbursement rates for Medicaid and Medicare patients. That insurance will no longer reimburse facilities if there is an avoidable readmission that takes place within 30 days of discharge.”
The CTEP timeline approaches its goals in three parts. Currently, the project is in phase one — creation of curriculum for nursing students and incumbent professionals. Subsequent stages are pilot projects to put that information into the field, and the final stage of the process is to disseminate the curriculum, findings, and information statewide. Aiken explained the steps.
“Right now, we’re developing the curriculum which will be packaged as training for our target audience — staff nurses, nurse managers, and nursing students — those health care professionals who are the point of care,” she explained.
“You take that big-picture environment where health care reform is changing,” she continued, “and then you take it down further to an individual organizational level where they understand they are not going to be reimbursed if they don’t change their process and improve their care. And then you take it down even to the unit level, where you say, ‘my workforce needs to understand how to improve care transitions so that ultimately the quality of patient care improves, and I’m going to be reimbursed in an adequate manner for the services that I’ve provided.’”
The second phase of CTEP involves pilot testing and evaluation of the curriculum, rigorously evaluated. “We will be determining if the curriculum itself can help us achieve the learning objectives that we’ve set forth,” Aiken said.
The third phase is about dissemination statewide. Aiken said the lead grantee for CTEP is the Mass. Senior Care Foundation, which is associated with the Mass. Senior Care Assoc., the trade association for long-term-care facilities.
“The fact of the matter is that we’re operating here regionally because of our history of collaboration,” she explained. “But we are working directly with a state-level organization because we believe that what we can develop here has implications across the state.”

Collaborative Effort
The curriculum is designed not for the purpose of reinvention of nursing standards, but rather to offer a new perspective on collaboration between acute and long-term care.
Jacelon said this is nothing short of revolutionary.
“Across agencies, from acute care and long-term care, there can be a lack of what I will call respect,” she said. “For instance, it’s easy for me, as a nursing-home nurse, to say, ‘well, that acute-care nurse didn’t do their job because this patient came here clearly not ready to be discharged from the hospital.’ And it’s easy for the acute-care nurse to say, ‘they were OK when they left here, so the nursing-home nurse must not have known what they were doing.’
“So one of the goals of this CTEP curriculum is to build teams of nurses across settings,” she continued, “so the nursing-home nurse can say, ‘oh my goodness, something bad must have happened on the way here, because I know Joan at the hospital would not have sent me this patient in this condition.’ And for the hospital nurse to be able to say, ‘I know those people at the nursing home do a really good job, so it’s not their care that caused this person to come back; it’s something about the patient’s condition.’”
Summing up that hypothetical scenario, she added, “if we can build that respect, then you have much better communication across the changes of settings. And once you have better communication, then you have better transfers.”

Dollars and Sense
The financial incentives behind CTEP lie first and foremost with the acute-care facilities. But Jacelon and Aiken stressed that dollars and cents are important considerations for their organizations as well. Both stressed that readmission is first and foremost a problem under the purview of quality patient care, but there are fiscal ramifications for their organizations.
“The business point comes in for us because that acute-care facility is highly invested in not having their patients come back within 30 days,” Jacelon said, “and they’re going to be shopping, if you will, for the most effective post-acute-care setting for that patient.
“If the Jewish Nursing Home’s re-hospitalization rate is less than 10%, which I’m pleased to say ours is,” she added, “and the XYZ nursing home elsewhere is 25%, where are you going to send your patients? Therein lies the incentive for us; it makes us more desirable.”
Aiken said that, from the very start of the CTEP’s existence, the REB has seen this program as a means to address new-worker and incumbent-worker training and education needs.
“One, we have staff that our employers say are not prepared to face the future of health care,” she said, “and to help them in the success of their evolving business model. So in that way, it’s an incumbent-worker training need.
“From a new-worker perspective,” she continued, “we want to make sure that we are educating our new nurses so that they are prepared to take the jobs in the region that are here. And frankly, in the work that we had been doing before, we identified that new graduates weren’t interested in taking jobs outside the hospital setting. And in some cases, the employers weren’t prepared to take new graduates.
“There’s been this model for years that your first job is in the hospital, then you get some training, and then you can go into different care settings,” she added. “Well, it’s not necessarily the way it’s going to work in the future. Fewer and fewer jobs are going to be in the hospitals, so nurses have to be prepared and willing and excited to take the jobs that are going to exist in all these other care settings.”

Goal Standard
Because CTEP is funded through a Partners Investing in Nursing’s Future (PIN) grant, a collaborative effort of the Robert Wood Johnson Foundation and the Northwest Health Foundation, both Aiken and Jacelon are eager to see the regional impact of this curriculum and its outcomes. When asked about the national implications of CTEP, Aiken smiled.
“We would love to say that we can ultimately head in that direction, but I think that we start small and see where we can go,” she explained. “But PIN is involved in 37 states. That’s an incredible network that is in the future on our stage for dissemination.
“There is a great expectations of where we could go,” she added, “but first we have to get it right. And we feel that Western Mass. is a good place to test the waters.”
As an educator who has been actively building curricula for years, Jacelon said this is a fundamental building block in how nursing will be taught. “CTEP will be part of the curriculum of nursing school,” she explained, “and it’s designed for practicing nurses and for student nurses. It’s going to fill a hole in the curriculum, in that, to date, not a lot has been taught about these issues.”
Time will tell how CTEP will help to reduce rehospitalization rates, but like their other partner organizations, Aiken and Jacelon are both proud and confident in the partnership designing the curriculum and its subsequent programs.
“But it’s very hard to say whether a project like this will globally reduce rehospitalization,” Jacelon added. “Although, if the rates in the area decline over the next three years, it’s going to be because someone has done some intervention. That is our goal.”

Health Care Sections
Therapy Dogs Make a Difference in the Lives of Children and Adults

Peyton Malloy, who spent several months at Shriners Hospital for Children this winter

Peyton Malloy, who spent several months at Shriners Hospital for Children this winter, looked forward to visits from the K-9 for Kids Pediatric Therapy Unit and its dogs.


Jesse Hagerman says magical things happen when therapy dogs visit Shriners Hospital for Children in Springfield and interact with the patients.
“They light up; it helps them forget why they are here,” said the hospital’s child life supervisor. “These dogs can evoke wonderful responses, and I have seen children really open up around them. “It decreases the anxiety and stress of being hospitalized and enhances self-esteem because the dogs offer non-judgmental, non-threatening attention and give the children unconditional love.”
The canines and trainers that visit the hospital come from K-9 for Kids Pediatric Therapy Unit, a volunteer, nonprofit organization that serves children in Western Mass. and Connecticut. It was established by president/director Melissa Kielbasa of Sandy Hills Farms in Westfield in 1999 at the request of the Melha Shrine Unit, and has expanded to serve other pediatric medical facilities, camp and library programs, school systems, and a youth detention facility.
“The visits are designed to offer emotional support,” Kielbasa said, adding that some handler/dog teams also work with adults in nursing homes and hospitals.
The K-9 program includes dogs who like to cuddle as well as a number who have been trained to do unusual tricks and entertain children. “One dog will hide on command, and the kids think it’s hysterical,” Kielbasa said. Another rolls over on her back and drinks out of a baby bottle which it holds with its front paws. “My dog sneezes on cue. We have dogs that dance, and we have a talking pug that does a yodel that sounds like ‘I love you.’
“And they all love to be petted,” she continued. “Other species might not tolerate it, but dogs are looking for relationships and just want to please people.”
Research shows the interaction between therapy pets and patients is indeed pleasant. The specially trained dogs offer valuable benefits to children as well as adults in settings that include hospitals, hospice units, nursing homes, assisted-living centers, and rehabilitation facilities, to name a few.
Diane Mintz, executive vice president of Spectrum Home Health and Hospice Care, a program of Jewish Geriatric Services in Longmeadow, says its hospice patients and the families it serves find pet therapy extremely beneficial.
The organization works with Bright Spot Therapy Dogs Inc., another all-volunteer, nonprofit group founded by Cynthia Hinckley of Westhampton.
“The dogs are very sensitive to how the person is feeling and are very gentle. When they visit, it makes people smile and brings joy into their day,” Mintz said. “It’s a bright spot for them. Sometimes, when a patient is in a declining state and we gently introduce the dog, they say endearing things to it. It’s comforting for them to have a dog there.”
Daniel Melchionne

Daniel Melchionne, who is in the the Read to Rover program at Franklin Avenue School in Westfield, reads to Cisco from Bright Spot Therapy Dogs.

She noted that the pets are content to simply relax by a person’s side.
Hinckley says dogs from Bright Spot visit hospitals, public and private day and residential schools, psychiatric facilities, senior centers, rehabilitation facilities, and schools with reading programs for children. “Whenever I leave a visit, I know I have made at least one person happier, more comfortable, and less lonely,” she said.
Studies have shown that therapy dogs provide comfort and facilitate learning, and researchers continue to seek empirical evidence to support the theory. The University of California Irvine has begun a four-year, $2.2 million study to learn whether pet therapy can help children with attention deficit hyperactivity disorder improve their social skills and control their symptoms. Meanwhile, other studies in recent years have focused on therapy dogs and people with Alzheimer’s disease.
In addition, last year, a Wall Street Journal article chronicled research that proves a few minutes of stroking a dog reduces the stress hormone cortisol, while a study done at Monmouth Medical Center in New Jersey showed patients waiting to have magnetic resonance imaging (an MRI) found interacting with a therapy dog soothing.

Intense Training
Bright Spot has 90 dogs and 80 volunteers in its program. There is no fee for its services, but the dogs and their handlers must undergo specialized training before the animals are certified to work in therapeutic settings.
Hinckley has been engaged in pet therapy for 20 years, and founded her program in 2004. She became passionate about the mission when she went into a psychiatric facility with one of her dogs and a patient who hadn’t spoken in 20 years began to talk.
“It changed my life,” she said, adding that she runs classes and certifies dogs and their trainers, and has evaluated and mentored hundreds of therapy-dog teams in Western Mass. and Connecticut.
The first step is a phone interview. “The most important thing is their temperament,” Hinckley said, adding that she asks a series of questions to determine if the dog has ever shown any aggression. She also advises owners to take their dogs everywhere they go because the animals must remain calm in a variety of settings.
During training sessions, they work on obedience and control. Dogs must obey commands at all times, never jump on people, and not bark incessantly for any reason. Surprisingly, although some dogs do well during training, they don’t do well when they encounter unusual situations.
Hinckley said one dog panicked at a nursing home when it saw someone approach who was using a walker. “Therapy dogs have to be able to deal with loud, piercing noises and equipment such as hospital carts, food trays, medical devices, and machinery, Hinckley explained. “And if they are visiting children, they have to be able to deal with the unexpected. Some dogs are better with children, while others are more suited to adults or the elderly.”
When she certifies a dog, she makes a recommendation about the type of facility and population it is suited to work with. However, the owner must also be comfortable with the setting. “I recently evaluated a dog that would be fabulous for hospice work, but the owner said she couldn’t do that,” she told BusinessWest.
Cooley Dickinson Hospital in Northampton and Bright Spot formed a working partnership in 2005. “They do a wonderful job and have dogs that are uniquely suited to a hospital environment,” said Robin Kline, the hospital’s director of volunteer services, adding that CDH is grateful to Hinckley because she worked closely with them for several years to get the program off the ground.
However, before dogs and trainers are allowed into the hospital, Kline conducts an additional screening that includes immunization records and a criminal record check on the handler.
Once that is complete, remarkable things can occur.
Kline says the dogs help patients cope with depression, loneliness, and feelings of isolation, and also stimulate social interaction. She explained that, when the handler introduces himself or herself and the dog, it often sparks conversations about a pet the patient had as a child or a dog they have at home.
“It’s part of the magic that occurs with therapy dogs,” she said. “There are really wonderful moments because the handlers are skilled at creating connections and can help patients who haven’t responded or communicated much. And the dogs have a calming effect on patients. Their presence makes the hospital environment more homelike and brings some relief to the stress of being ill.”
If the dog is small and the patient doesn’t have health issues that prevent it from getting in their bed, they often end up cuddling with the animals. “We have had some beautiful little dogs on beds, and the patients love it; it really cheers them up,” Kline said.
The program operates on the North 3 ward and in the psychiatric unit of the hospital, where the dogs are introduced in a group setting. And if people are having a difficult day, that can change when they interact with the gentle canines.
“A dog can really improve someone’s mood. When patients pet a dog and say, ‘I love animals’ or ‘this is such a good dog,’ they are clearly having a positive experience,” Kline said, adding that staff members really appreciate the volunteers who bring their pets to the hospital.

Creating Relationships
Kielbasa also trains therapy dogs at Sandy Meadow Farms. In addition to a general course, she runs an approved, seven-week pediatric therapy dog unit training class.
But taking the class and passing the certification exam are not enough to qualify for her K-9 program. The dogs and handlers must also pass the K-9s for Kids Performance and Evaluation Test and the American Kennel Club Canine Good Citizen Test. In addition, their handlers undergo background checks.
K-9 teams are used in the Read to Rover program at Franklin Avenue School in Westfield, which was designed to help children who have difficulty with reading.
When the dogs arrive in the classroom, all the students are allowed to pet them before they are sent off with the children in the program.
“It helps with their self-esteem because their classmates think it’s pretty cool. Plus, it provides an opportunity for them to sit and read to a very attentive and loving audience,” said teacher Carly Bannish, explaining that the child sits on a beanbag, the dog sits on a little carpet, and the trainer sits nearby on a chair and is available if the child needs help with a word.
The program has resulted in an increase in reading fluency and comprehension. “The dogs are a non-judgmental audience, so it is a very safe environment for the children to practice something that may be difficult. The dogs give unconditional love, whereas adults correct children or try to help when they make a mistake, which can get pretty frustrating,” Bannish said.
Kielbasa concurs. “The dog doesn’t care if the child reads correctly or mispronounces a word, which can be embarrassing if they are reading aloud in their classroom,” she said.
Children who are hospitalized can suffer from anxiety and stress, and Hagerman said the K-9 dogs also improve life at Shriners. “The environment here can be intimidating as there are so many things that are new to children. The dogs make them feel more at home, and if a child is having a down day, the dogs can really lift their spirits.”
Visits take place in the hospital auditorium because animals are not allowed in the direct-care areas due to stringent infection-control policies, which include a handwashing protocol. However, all children who are medically able to attend are invited.
Peyton Malloy entered Shriners Jan. 9 and was there until the end of the third week in March. “It was so exciting for him every time the dogs came to visit. He looked forward to it,” said his mother, Anne Malloy.
The 6-year-old would hold the small dogs on his lap and pet them and play fetch with the larger breeds and try to make them do tricks. “He would stay for the entire hour. He absolutely loved them, and it made a real difference,” Anne said. “It was something he looked forward to. He would peek out of the door to see if they were coming. And when the talking pug said, ‘I love you,’ he would say it back to the dog.”
Hagerman said the opportunity to play or cuddle with a dog has inspired children to leave their rooms, which can improve mobility and help with their mood. “It provides a diversion from the normal hospital routine, helps them pass the time, and is something to remember that is positive,” she said, adding that staff members take pictures of the children with the dogs, which they are given to bring home.
Kielbasa agrees. “It takes their mind off of things, especially if they are facing surgery or doctor’s appointments. And we do just as much with the parents as the children, as they are also nervous. It doesn’t solve anything, but it helps with what they have to deal with that day,” she said.
Playing with the dogs can also aid in physical therapy, as the interaction involves movement that is fun, rather than repetitive. And in some cases, children who have been hospitalized for months have developed strong bonds with the canines.
That also happens in the hospice setting. Mintz says it’s not unusual for a dog to cuddle in bed with a hospice patient. “It is very therapeutic because relaxation takes place when that occurs. And when our patients pet the dogs or talk to them, it distracts them from their symptoms. It is also a way to help them feel connected. Sometimes there is an opportunity for a patient to be involved with a dog for a few weeks or months, so a relationship develops.”
Kielbasa has also seen dramatic changes during visits a team makes to a youth-detention facility. “When we first started going there, the girls were tough and cold. But after a couple of months, they turned into marshmallows when they saw the dogs walk in. They got excited, wanted them to do tricks, and giggled and talked to each other,” she said.

Healing Touch
Laura Coon is a nurse manager at the Linda Manor Extended Care Facility in Leeds, and says Hinckley and her dogs are a welcome sight. “The residents light up when she arrives. So many people had a dog when they were at home, and the visits are calming for them because the animals love unconditionally and people warm up to their warmth. It’s lovely to see.”
It’s also a lovely and love-filled experience for all who take part in these programs.

Health Care Sections
Understand the Significance of This Important Document

Hyman G. Darling

Hyman G. Darling

Paramedics are often called to a home because of an emergency situation. In such instances, most people wish to be resuscitated or defibrillated in order to maintain their life and hopefully recover with quality of life. Most people also desire that extraordinary medical procedures be utilized in a time of crisis. But this is not the case in every situation.
While an individual is competent, he or she may exercise their option to have treatment provided to them or discontinued, so that no further attempt should be made to provide them with life support and related medical treatment. While competent, it is relatively straightforward and easy for someone to make decisions regarding their own health care. When competency falls into somewhat of a gray area, the test for competency helps to determine whether the patient understands the nature of their illness and the effects that proposed treatment or lack thereof would have on them.
Since 1990, a person in Massachusetts has been able to make their own decisions and provide for their future care with a document called a health care proxy. This is similar to a living will or a document called five wishes or advance medical directives. These documents designate another person to substitute for the patient in making decisions regarding end of life and ongoing health care treatment.
However, the standard form provided by medical facilities does not provide for a so-called do-not-resuscitate order (DNR). Many individually prepared documents do include language that permits the agent under the health proxy to make decisions for the patient relative to all medical decisions, including end of life and possibly a DNR.
In the absence of a health care proxy, a guardian will have to be appointed by the Probate Court in order to determine not only ongoing care for the patient, but also extraordinary treatment or the withdrawal of that treatment. These cases may take a significant time period from the inception of the filing of the documents in Probate Court, giving notice to all parties, scheduling a hearing, and, very often, hiring an attorney or guardian ad litem (another person, usually an attorney, appointed to represent the interests of the incapacitated person).
This process will likely be even more drawn out as a result of the enactment of the Uniform Probate Code of 2009, which protects an incapacitated person’s rights by instituting various protections or hurdles that must be overcome before a decision is made regarding an incapacitated person’s health care, especially end-of-life decisions. Certainly, most people don’t want their life made public within the Probate Court, which is also a time-consuming, often-emotionally draining, and expensive process. All of these issues may be compounded when there is a contest regarding who should serve as the guardian and whether or not the person’s end-of-life decisions are being carried out in a manner that is appropriate for them and as they may have desired.
Most people have heard of famous end-of-life cases, namely Karen Quinlan, Nancy Cruzan, and Terri Schiavo, all of which brought national attention to the issue of making decisions for another person, especially relative termination of life support. It is interesting to note that the cases mentioned involve relatively young women, as opposed to older individuals, regarding the withdrawal of mechanical life-support machines, which, when removed, allow an individual to die shortly thereafter. Had these women signed DNRs when they were competent, their families would have been spared tremendous anguish.
A DNR order becomes a separate and distinct issue relative to the decision-making process, because it normally is executed by a person and is also signed off as accepted by that individual’s physician. A DNR is not necessarily made public, but rather provided by the physician to the patient. The form is normally kept in the physician’s office, and copies or separate portions of the form are then given to the patient, who may keep one in their wallet, post one on the refrigerator, or display one in a prominent place within his or her home in the event that it is needed.
Normally, when paramedics are called to a home, they must take all action necessary to preserve the life of the patient, but they are protected from potential liability by a DNR order, which allows them to withhold life-sustaining measures. Each DNR order in Massachusetts has a separate number, as initially a program was considered in which all DNR orders would be entered into a central database, which would be maintained and available 24/7 in situations where the patient may need to have care considered but not administered.
There are many instances in which DNR orders are used effectively. In the case of a terminal illness, such as COPD, liver failure, kidney failure, etc., where one’s life will only be prolonged with more treatment, that person may opt for a DNR order.
This is not to say that oxygen, dialysis, and other procedures would not be continued, but if that individual went into cardiac failure, or was stricken with another ailment, such as pneumonia or a similar life-threatening situation, then the patient could refuse treatment that would prolong their life. The individual should also instruct his or her caregivers to consider not calling 911 in times of crisis, as this normally implies that care is desired.
Normally, a DNR does not come into play when one is placed on hospice, as hospice implies and requires that no heroic measures be used to keep a person alive.
On the other hand, sometimes a person doesn’t want to sign a DNR, but rather prefers a health proxy that includes so-called living-will language, which states that he or she does not wish to be kept alive by heroic means unless there is going to be a relatively good quality of life and a reasonable expectancy to regain the baseline of the care and health that they enjoyed prior to the unfortunate illness, accident, or other issue causing a health decline.
In other situations, DNR orders may be suspended when one is having medical treatment such as a surgery, in which, if the DNR were not suspended, then the medical treatment may have to be terminated. This is similar to instances where a health care proxy is suspended during medical procedures.
It is important to take the decision whether or not to sign a DNR very seriously. Naturally, if an individual is in an accident and there is a good chance that they will recover, then they likely would want such things as a using a defibrillator or respirator to save their life. Individuals who wish to sign a DNR should be fully informed of the effect of signing the document.
Once it is signed, copies should be provided to all other physicians who may be treating the patient, as well the health care proxy agent, family members, and even any attorney who created other estate-planning documents, so that the DNR will be made part of the record with the health proxy.
Possibly someday, a national (or at least a state) registry bank of DNR orders will be initiated, and records will be maintained for the individuals who wish to execute it. After signing, it is a good idea to renew this document on an annual basis to establish that the patient continues to understand the nature of it.

Attorney Hyman G. Darling is chairman of Bacon Wilson, P.C.’s Estate Planning and Elder Law departments, and he is recognized as the area’s preeminent estate planner. His areas of expertise include all areas of estate planning, probate, and elder law. He is a frequent lecturer on various estate-planning and elder-law topics at local and national levels, and he hosts a popular estate-planning blog at bwlaw.blogs.com/estate_planning_bits; (413) 781-0560; baconwilson.com

Health Care Sections
Mercy Medical Center Expands Its Reach in Robotic Surgery

Dr. David Kelley (right, with Dr. Scott Wolf)

Dr. David Kelley (right, with Dr. Scott Wolf) says the technological advancement of robotic surgery makes something that was good even better.

Referring to the new surgical equipment at his hospital, Dr. Scott Wolf used a playful comparison, calling it “something akin to Xbox for surgeons.”
Wolf, chief medical officer and vice president of Medical Affairs at Mercy Medical Center in Springfield, was speaking of the da Vinci Si, the latest word in robotic surgery, which was recently delivered to the hospital. While Mercy has for some years owned an earlier DaVinci surgical robot system, this state-of-the-art device expands on that platform.
Elaborating on his metaphor, Wolf said that not only does the Si provide greater resolution, but the hospital invested in the constituent simulator to act as a training and practice tool for the many complex procedures available with the robot.
“The enhancement of technology in this instance is making something that was good even better,” said Dr. David Kelley, chief of Urology and chief of Surgery at Mercy.
Robotic surgery as a concept is not new to the hospital. In fact, Mercy committed several years ago to investment in the high-tech machinery. “And it’s not just the surgeon,” Wolf said. “You need an extraordinary team devoted to da Vinci surgery.”
For Kelley, a life’s work in surgery has been transformed in recent years. “Laparoscopy has been around for a while, and it was a great benefit, but that was handheld,” he said, adding that the latest da Vinci technology is able to provide invaluable assistance to surgical teams on long, complex procedures.
“The ability to magnify 10 times greater — it’s like Superman,” he added. “And the robot can do things that my hand cannot do, in spaces my hand cannot go, with dexterity.”
Kelley noted that, when he started his practice 25 years ago, the common thought was that one needed to travel far afield of the Pioneer Valley in order to have access to the most current advances in medicine. But this native Springfield resident said that’s no longer the case.
“Machinery such as this gives Mercy, and Western Mass., a competitive edge,” he added. “There is talent that we can attract to our practice because of the hospital’s commitment to bringing in this type of technology. They want to practice here.”
Wolf and Kelley gave BusinessWest a sneak peek at the latest da Vinci equipment at Mercy, not yet fully assembled. While it will be a few weeks before both the robot is fully operational and the robotic-surgery program brought up to compliance with this model, the doctors agreed that this is the cutting edge of medicine.

The Sharper Image
Wolf stated that, while the prior DaVinci system was an important step in Mercy’s commitment to offering robotic surgery, the Si is without compare.
“It offers a tremendous amount of operative advantages for the surgical technique,” he explained, “and it affords our patients a tremendous amount of clinical advantages, from the perspectives of decreased blood loss, decreased discomfort, and a much-quicker recovery time. Ultimately, the goal is to get you back to your normal life sooner.”
A key distinction with the Si is the enhanced, high-definition vision of the operative field, equivalent to 1080i in televisions, Wolf said. It has ability to magnify up to 10 times, “so you can imagine that the visual clarity of the operative field is that much more precise.”

Some of the high-precision instruments of the da Vinci Si.

Some of the high-precision instruments of the da Vinci Si.

“The other advantage is the dexterity and precision with which you can manipulate this robot,” he went on. “It is far better than the human hand. It affords the surgeon the opportunity to access surgical areas with much better confidence and detail than ever before.”
Kelley offered a contrast between the robotic and traditional forms of surgeries. “Before, an open prostatectomy would mean a week in the hospital, and blood loss could be significant,” he explained. “With a robotic prostatectomy, it’s rare that anyone needs blood. In fact, that would be unusual. Blood loss is down to very, very little, which is a major departure from what it had been in the past.”
Robotic surgery at Mercy has heretofore been focused on intra-abdominal procedures. “The urologists first used it on the prostate, we have used it for cystectomies, we’ll remove a bladder, we do nephrectomies — removal of a kidney, urethral surgeries,” Kelley said.
“The entire genitourinary tract outside of the genitals themselves has been accessed through the robot,” he continued. “Likewise, gynecologists have used it through the abdominal cavity to do ovarian surgery, uterine surgery, and prolapses.” He added that the hospital is exploring the possibility of thoracic surgery with the da Vinci as well.
Because of the lessened trauma of robotic surgery, Kelley said that recovery times have been cut significantly. “Patients are often discharged within 24 to 48 hours,” he noted. “The patient needs to get up early, and ambulation is important. But, of course, to achieve that, you need the best team, and we at Mercy have assembled this team.”

Mission Accomplished
The Si has streamlined the mechanics of this latest robot. While the layout of two modules has remained — a control booth in which the surgeon sits and manipulates the controls, and the actual surgical robot itself — the connections have all been condensed into a single cable from one machine to the other.
Also, the function of attaching the patient to the surgical platform has been fine-tuned. Kelley called this “side docking.”
“And it all has to be precise in placing the patient on the table,” he went on. “The placement can’t even be a little off. The manufacturer saw the potential problems with the original model and determined that it can take so long for the staff to figure out how to dock the robot with the patient, that they figured out how to make it easier. The robot and the patient can get together more safely and easily.”
Both doctors credited the many employees associated with Mercy’s robotic-surgery procedures, from surgeons and nurses to the OR staff. “You can’t just bring in a piece of equipment like this without an extraordinary team to use it,” Wolf said.
To help better prepare that network of medical professionals, Mercy purchased a simulator module complementary to the Si.
“It replicates the actual surgical cases that the surgeon is about to perform,” Wolf explained. “It’s giving the ability to assist from a training perspective, but also preoperatively — to get into the seat, if you will, and get the proper frame of reference.
“Not only will this help our existing surgeons,” he continued, “but for any new doctors to become skilled at these techniques. We’re one of the only facilities in the area to have that simulator.”
The learning curve for the Si will not be significant, the doctors said, because the robotic-surgery staff has been skilled in da Vinci equipment for years. “But there are newer details that we all need to be proficient on before the jump from one machine to the next,” Kelley said.
A certain number of hours must be logged on the simulator to realize that goal, and Wolf expects mid-February to be the target date for the Si to become operational. In that time, Mercy is looking at not only how this latest and greatest robotic-surgery technology can redefine the surgical theater, but how it can affect the hospital’s mission.
“We’re putting together a robotics committee to further develop Mercy as a center of excellence,” Wolf said. “The committee will establish protocols around pre- and post-operative care, intra-operative cases, and establishment of our quality metrics to truly build a program here. It’s not just delivering a machine and putting it into the OR. It’s a full robotics program.”
Wolf admitted that the Si was a significant capital investment, but one that further establishes Mercy as a vital resource in Western Mass.
“That’s reflective of our commitment to the community,” he said. “You can’t put a price tag on quality care. And this allows us to continue providing that quality care. For the last two years in a row, we’ve been voted one of America’s top 100 hospitals for value and quality, and we will continue to deliver care in that fashion, regardless of the investments that we make.
“We’re not just the community hospital that can only treat coughs and colds,” Wolf added. “We want to provide the latest to our patients, because they deserve it.”